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Span @anna2.bsky.social · 3d

So subsisting on oysters not out of the question lol

Span @anna2.bsky.social · 3d

Not as severe as you Tom but I try to ascend stairs at home to my detriment. I can but pay for it.
Now if I attempt them I remind myself to turn backward, sit on the step and pushing up with my arms and feet to sit on the next slowly, thereby get to the next floor.

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Span @anna2.bsky.social · 4d

I was asking something similar recently in another context. If ”normal” parent of a child w/ rare disease share the gene variant, otherwise extremely rare, that variant not considered causal in the child? bsky.app/profile/anna...

Span @anna2.bsky.social · 16d

Milder traits in family members of someone with syndromic autism.

psychiatrists said to us “we can test your child’s genetics, but we test both parents and if discovered rare variants are shared by you the parents, they are not considered (pathological)”

That seemed strange to me.

Span @anna2.bsky.social · 16d

Milder traits in family members of someone with syndromic autism.

psychiatrists said to us “we can test your child’s genetics, but we test both parents and if discovered rare variants are shared by you the parents, they are not considered (pathological)”

That seemed strange to me.

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Span @anna2.bsky.social · 16d

What about subclinical pathological variation? (eg within families,
broad autism phenotype and similar.)

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Reposted by Span

Miska Knapek @miskaknapek.bsky.social · Jul 27

(kindly share)
I'm selling photos to raise money private medical help for a severe - quite lifeshortening - immune damaging disease I have, #MECFS, outside the coverage of public health.
There are some good nature photos in any event ;)

More info here:
payhip.com/MiskaKnapek/...

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Span @anna2.bsky.social · 25d

@cgatist.bsky.social @decodemestudy.bsky.social
@openmedf.bsky.social

Shai Carmi @shaicarmi.bsky.social · 27d

Interesting work. "we analyzed viral load of 31 DNA viruses in human blood and saliva using whole-genome sequencing from UK Biobank (n=490k), SPARK (n=13k), and All of Us (n=415k)... genetic variation at dozens of loci associated with load of seven viruses"

www.biorxiv.org/content/10.1...

Genes and environment profoundly affect the human virome

Many viruses have adapted to persist in infected humans for life. Variable host control of their abundance (or load) can lead to clearance or disease. Here, we analyzed the viral load of 31 DNA viruse...

www.biorxiv.org

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Reposted by Span

This Podcast Will Kill You @tpwky.bsky.social · 28d

Last ep, we took you through all the ways that cold can harm us. Ending the story there would be skipping over the parts where cold is the hero, rather than the villain. In the second of this frosty miniseries, we explore situations in which we might use cold to protect us and how it actually
works.

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Span @anna2.bsky.social · Aug 21

@knittingcultlady.bsky.social

Kathryn Paige Harden @kph3k.bsky.social · Aug 21

#JamesDobson encouraged millions to hit their children, & rationalized mass incarceration by comparing the carceral state to a good parent who hits their child out of love. He was a lifelong propagandist for punishment. I hope his last realization was that no afterlife reward was waiting for him.

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Span @anna2.bsky.social · Aug 12

Thanks. Yours is similar to my regime 🙃

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Span @anna2.bsky.social · Aug 12

Hope you don’t mind me asking but how do you treat MCAS?

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Span @anna2.bsky.social · Aug 12

“As an adult” if only lol. Being raised by erstwhile wholefoodies I can’t eat dried fruit anymore. A heavy staple of child-feeding (why have potatoes chips when you can have banana chips? Chocolate? No, we have carob.)

Fresh figs though a different matter

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Span @anna2.bsky.social · Aug 10

That’s really interesting. Makes me think of gastro Doc Rebecca Ryan not sure if she is on bluesky

( Neurologist eyeball might be shown looking to another eyeball labelled “cardiologist” looking at the dysautonomia circle. Or maybe just rolling their eyeball at everyone around the circle)

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Reposted by Span

Ada Palmer @adapalmer.bsky.social · Aug 9

A very important point! When my cognitive stuff started making long form reading intermittently impossible, I adopted a variety of tools to still engage w/ my craft: audiobooks, graphic novels, short fiction, film adaptations of books & plays, the mix has & hones the tools of writing really well 1/2

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Span @anna2.bsky.social · Aug 2

Where do you put Voltaren if I may ask.. neck? Was it for migraine?

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Reposted by Span

19thnews @19thnews.org · Jul 28

A report from @aarp.org and the National Alliance for Caregiving shows that more than 63 million Americans are serving as family caregivers — and they’re managing financial risks, poor health and isolation.

The number of family caregivers is surging

A new report from AARP and the National Alliance for Caregiving shows that more than 63 million Americans are serving as family caregivers — and they’re managing financial risks, poor health and isola...

19thnews.org

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Span @anna2.bsky.social · Jul 28

Parental care and genome integrity.

(who knew that larval offspring switch on “begging behaviour” for food- that’s a funny image to me as a parent) royalsocietypublishing.org/doi/10.1098/...

Parental care results in a greater mutation load, for which it is also a phenotypic antidote | Proceedings of the Royal Society B: Biological Sciences

Benevolent social behaviours, such as parental care, are thought to enable mildly deleterious mutations to persist. We tested this prediction experimentally using the burying beetle Nicrophorus vespil...

royalsocietypublishing.org

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Span @anna2.bsky.social · Jul 22

Sorry I meant brain training for, for example, poorly understood or medically unexplained chronic conditions,not neuro rehab for injury with neurologically informed physio.

I have seen a loved one take steps again after catastrophic spinal injury with neuro rehab.

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Span @anna2.bsky.social · Jul 21

Brain retraining might better be considered in the therapeutic category of “energy healing”🦋, alongside other **faith based or positive thinking approaches** like crystals💎, homeopathy💧, psychosurgery 🧙, laying on of hands 🕊️, etcetera.

(Good they removed it!)

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Span @anna2.bsky.social · Jul 21

Huff a cat - before its too late! Thanks.

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Span @anna2.bsky.social · Jul 21

Huh no the exact opposite. I seem to not pee much. In fact I know my rizatriptan is close to kicking in when, an hour+ after taking it, I need suddenly to go. It’s always a mega long waterfall diuresis. After that if I’m lucky the pain will subside quite a bit.

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Span @anna2.bsky.social · Jul 21

Can smell that kitten smell just looking at this picture

Haven’t properly huffed a cat in years.

Years.

Not since my human child arrived

Waiting till I’m 75 + and it doesn’t matter so much if I get that toxoplasma again.

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Span @anna2.bsky.social · Jul 20

But kudos to them for releasing Taking Care of Maya subsequently. Pretty sure it doesn’t reach as wide an audience as “The Act” however.

Span @anna2.bsky.social · Jul 20

What I meant was, it looked to me like EDS has looked in other cases, but they decided on a “functional” disorder with a side warning about psychologically unhealthy dynamic between daughter and (understandably protective) mother. Hope they found appropriate treatment outside the docu.

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Span @anna2.bsky.social · Jul 20

Netflix series “Diagnosis” (2019) insinuated the teen and her mom in episode 3 are possible FII.

Knowing of multiple young women who have lost their lives in eerily similar situations since, its hard to watch. Such casual reaching for an even rarer case definition, compared to say, EDS.

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