Annabel
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annabelhowell.bsky.social
Annabel
@annabelhowell.bsky.social
Mum and wife, loving life in Scotland. Medical Director, Childrens’ Hospices Across Scotland (CHAS), ViceChair My Name’5 Doddie Foundation, PhD student University of Hull re digital tech used in palliative care during the pandemic.
Reposted by Annabel
Film #2: Overview
Siblings of children with life-limiting conditions share their powerful perspectives in our second #BecauseWeCare film.
youtu.be/JysuiVrzH-8?...
#ChildHealth #EmpathyInCare
@clairecassidy.bsky.social @drannar.bsky.social @alisonmurray.bsky.social @sarahwishart.bsky.social
Because We Care - The Overview
YouTube video by Strath HASS
youtu.be
May 12, 2025 at 3:38 PM
Reposted by Annabel
Good to talk to Mark @prospectmagazine.co.uk for this interview, following on from this @bmj.com piece on Facing Death Differently www.bmj.com/content/387/...
“ I worry that assisted dying could become the only choice for some people—not necessarily because they want to die, but because they feel a real pressure,” says palliative care researcher @lucyselman.bsky.social.
www.prospectmagazine...
Why we need to talk about death
Palliative care researcher Lucy Selman argues that while interest in assisted dying is growing, support for end-of-life care and bereavement remains i...
www.prospectmagazine.co.uk
April 28, 2025 at 6:29 PM
Reposted by Annabel
My Grief My Way: All welcome to our webinar on the development of an acceptance based bereavement support website to enhance coping and quality of life after bereavement. 10.06.25. With @davidgillanders.bsky.social

Register:
www.mainexchange.org.uk/webinars/

Funded by @mariecurieeolc.bsky.social
Upcoming Webinars
MAIN
www.mainexchange.org.uk
April 4, 2025 at 8:12 AM
Reposted by Annabel
See more details on our website 👇
www.myname5doddie.co.uk/whats-on/art...
April 14, 2025 at 4:15 PM
💙💛💙💛💙
Did you catch Hamish, Kenny Logan & our Director of Research, Dr Madina Kara, on BBC Breakfast this morning?📺

Kenny unveiled the plans for his Doddie’s Lions Challenge, a 555-mile cycle round Ireland, with the aim to raise over £500,000 for the Foundation & Irish Motor Neurone Disease Association
April 14, 2025 at 4:39 PM
Reposted by Annabel
Are you ready to try something new this #DemystifyDeath week?

Try running an Escape Room in your local community!

Find out more and order a kit here (Scotland only)- www.goodlifedeathgrief.org.uk/escape-room/

Watch this short video to see more-
vimeo.com/1072772593?s...
April 11, 2025 at 12:03 PM
Reposted by Annabel
Delighted to share this podcast of our AHRC funded project #BecauseWeCare
Voices of #siblings of children with life-limiting conditions. Listen here: tinyurl.com/4yzpenhn @paedpallcare.bsky.social @alisonmurray.bsky.social @annabelhowell.bsky.social @sarahwishart.bsky.social
#ClaireCassidy
April 4, 2025 at 5:39 PM
Delighted to be part of such a beneficial piece of research- the experiences of siblings of children with life limiting conditions
April 4, 2025 at 8:51 PM
Indeed - and many have found other ways to earn an income and cope- though to their detriment
Essential reading by @doctoroxford.com

"Unless meaningful mental health support is embedded in Streeting’s 10yr NHS plan, the NHS will continue to haemorrhage its greatest asset: dedicated, caring staff."

Staff are being utterly failed in the name of cutbacks.
www.newstatesman.com/politics/hea...
NHS staff are still traumatised by the pandemic
Despite their continuing levels of severe distress, funding has now been withdrawn from mental health hubs.
www.newstatesman.com
April 3, 2025 at 10:13 PM
Wishing you a speedy recovery
April 1, 2025 at 9:57 PM
Reposted by Annabel
My article 'What is a good death? A critical discourse policy analysis' is now in the BMJ Supportive and Palliative Care (Vol 14 Issue e3) [but online first a few years ago] spcare.bmj.com/content/14/e...
What is a good death? A critical discourse policy analysis
Objective The concept of a good death is a motivating factor for end of life care policy; this article examines what English end-of-life care (EOLC) policy defines as a good death. Methods Critical d...
spcare.bmj.com
March 25, 2025 at 11:44 AM
Reposted by Annabel
Our Discovery Network Award is open for applications again: join a highly collaborative network of fantastic researchers and receive up to £1 million over 3 years!

Please share - and get in touch if you have any questions/would like to discuss a project proposal #MND #ALS #AcademicSky
Applications are now open for the Discovery Network 2025. Up to £2m is available to fund interdisciplinary, multi-institutional teams to better understand the biology of MND, with a focused goal of identifying new therapeutic targets 🔬

See more & apply here👇
www.myname5doddie.co.uk/research/fun...
March 24, 2025 at 11:16 AM
Reposted by Annabel
People with lived experience of MND are being invited to join a study to help better understand how to support people with MND to make decisions about their care,and what support people need

For more info or to express interest in involvement, please contact: [email protected]
March 21, 2025 at 10:00 AM
Reposted by Annabel
For those struggling to keep up with the amendments to the Terminally Ill Adults Bill, Prof Alex Ruck Keene KC has an up to date annotated version on his website www.mentalcapacitylawandpolicy.org.uk/terminally-i...
Terminally Ill Adults (End of Life) Bill – Bill with amendments to 15 March 2025
Prompted by a question from a colleague in Chambers who was (understandably) finding it very difficult to track through precisely how the Bill has been amended since starting the Public Bill Commit…
www.mentalcapacitylawandpolicy.org.uk
March 16, 2025 at 3:16 PM
Reposted by Annabel
Letter in today’s @theguardian.com from me and 34 other health and care professionals on the assisted dying panels.

Unfortunately they have cut 33 signatories - including social workers, psychiatrists, geriatricians.

This must be corrected.

www.theguardian.com/theobserver/...
March 16, 2025 at 8:56 AM
March 13, 2025 at 11:23 AM
www.spectator.co.uk/article/on-a...
Informed opinion- but maybe those pushing this do not want that?
Britain must learn from the Netherlands's mistakes on assisted dying
As a former member of a euthanasia review board in the Netherlands, I have followed the debate of Kim Leadbeater’s assisted suicide bill.
www.spectator.co.uk
March 3, 2025 at 7:05 PM
@britawards.bsky.social @teddyswimsofficial.bsky.social great set- delighted to see Gala tartan !
March 1, 2025 at 8:46 PM
@britawards.bsky.social @scarpenterbr.bsky.social really - sexualising women in this day and age is not good
March 1, 2025 at 8:26 PM
Reposted by Annabel
ICYMI - Article in @theconversation.com Death doulas: helping people at the end of their life
theconversation.com/death-doulas...
Death doulas: helping people at the end of their life
There is a growing demand for people who help the terminally ill have a good death.
theconversation.com
February 26, 2025 at 11:42 AM