intermittent gimp
LightNews LightNews
ashley-e.bsky.social
intermittent gimp
@ashley-e.bsky.social
92 followers 130 following 180 posts
disabled software engineer; pwME; dogs, knitting, making.
Not to scale. Almost always nice to people. Still figuring this place out.
she/her
a.k.a. _ashley_e@twitter intermittent_gimp@InstaGram
Posts Replies Media Videos
ashley-e.bsky.social
@mileswgriffis.bsky.social has written a great, thorough article:
The NIH says it "inappropriately" censored Long COVID patients on social media

#LongCovid #MECFS
https://coviddatadispatch.com/2023/08/20/the-nih-says-it-inappropriately-censored-long-covid-patients-on-social-media/
Screenshot of post from Miles W. Griffis on "X" at 11:49 AM August 20, 2023: 6/ Others said that the censorship wasn't just a one off. "It's a pattern", @Dakota_150 said. For years the agency has largely failed to implement the input of people with infection associated illnesses like #ME. Screenshot of a post by NIH Community Engagement Alliance (@NIHCEAL) on X: Some people don't feel sick when they have #COVID19 but develop symptoms of #LongCOVID later on. If this sounds familiar, speak with your health care provider to find a treatment plan that works for you. Learn more about Long COVID at bit.ly/3ZquDFc Below that, a teaser and link to the article written by Miles W. Griffis: coviddatadispatch.com The NIH says it "inappropriately" censored Long COVID patients on social media.... The National Institute of Health (NIH) is under fire for censoring comments from patients on social media -- the latest in a trend of heavy criticism from...
August 20, 2023 at 8:36 PM