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Bateman Horne Center

@batemanhornecenter.bsky.social

1.2K followers 610 following 280 posts

The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.

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Bateman Horne Center @batemanhornecenter.bsky.social · May 9

The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF

Graphic with a stethoscope and a doctor’s arm, displaying the text 'CLINICAL CARE GUIDE Managing ME/CFS, Long COVID, & IACCs.' The Bateman Horne Center and MERC logos are at the bottom, with a background of a deep blue gradient.

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Bateman Horne Center @batemanhornecenter.bsky.social · 6h

“If everyday tasks like standing in line or taking a shower leave you dizzy, exhausted, or foggy, you’re not alone.”
— Melanie Hoppers, MD

OI & #POTS is common in #MECFS & #LongCOVID. Learn signs + management tips: https://bit.ly/4eLc3eY

#POTSAwarenessMonth #UnitedForME

Woman leaning against a wall with her hand on her forehead, appearing fatigued. Text reads: "Living with Orthostatic Intolerance (OI)."

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Bateman Horne Center @batemanhornecenter.bsky.social · 23h

A new way to connect is here: Coffee with a Clinician ☕
Monthly live webinars start tomorrow, Oct 8, free & open to all.

💙 An optional $5 donation supports education and outreach programs.

➡️ Register: https://bit.ly/3IxgCP6

#CoffeeWithAClinician #MECFS #LongCOVID

Invitation to "Coffee with a Clinician" on navigating clinical uncertainty, October 8, 2025, 10:00 AM MDT, online event. Register at batemanhornecenter.org/events.

Bateman Horne Center @batemanhornecenter.bsky.social · 5d

Correct link bit.ly/3VOM3r1

New Hope in Fibromyalgia Treatment: Understanding Tonmya

Quick Take Fibromyalgia has long been a frustrating condition for both patients and doctors. It causes widespread pain, poor sleep, exhaustion, “fibro-fog” (trouble with memory and concentration)…

bit.ly

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Bateman Horne Center @batemanhornecenter.bsky.social · 5d

Big news in fibromyalgia care:
The FDA just approved Tonmya, the first new treatment for fibromyalgia in 15+ years.

What it is, what trials showed, and what it means for patients: https://bit.ly/3WiAo3R

#Fibromyalgia #ChronicIllness #NewTreatment

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Bateman Horne Center @batemanhornecenter.bsky.social · 6d

Upcoming in Oct! 💙
☕ Oct 8 – Coffee with a Clinician: Navigating Clinical Uncertainty
💬 Oct 14 – Support Group: Healthcare & Self-Advocacy
💬 Oct 21 – Support Group: Parenting w/ Chronic Illness

Free & open to all. Register: https://bit.ly/48DiM7Q

Upcoming events in October 2025 by Bateman Horne Center: Coffee with a Clinician on Oct 8, and Support Groups on Oct 14 & 21.

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Reposted by Bateman Horne Center

#MEAction Network @meactnet.bsky.social · 7d

Stellar new work from @grachstephanie.bsky.social, @exceedhergrasp1.bsky.social, @batemanhornecenter.bsky.social's Bell and Yellman & @raviganeshmd.bsky.social in the Elsevier text 'The Scientific Basis of Fatigue'! The book has chapters on #MECFS, COVID, Parkinson’s, stroke, and multiple sclerosis.

Text-based graphic with one photo. Text: New publication. Managing myalgic encephalomyelitis/chronic fatigue syndrome: a new narrative. a chapter in a new Elsevier textbook written by coauthors from #MEAction, Mayo Clinic Rochester and the Bateman-Horne Center. “I was honored to co-author this chapter with colleagues from Mayo Clinic and the Bateman-Horne Center to give clinicians and researchers the tools they need to better recognize, study and treat ME/CFS.”
Jaime Seltzer,
Scientific Director, #MEAction
Photo: Jaime Seltzer (white woman with long, dark hair) wearing glasses and cream blazer and red top slightly smiling.

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Bateman Horne Center @batemanhornecenter.bsky.social · 7d

October is #POTS Awareness Month!
POTS is a serious condition where simply standing can cause rapid heart rate, dizziness, fainting, and crushing fatigue. It often strikes those with #MECFS & #LongCOVID. All month we’re sharing resources & raising visibility. Stay tuned!

White ribbon on teal background with text: "October is POTS Awareness Month."

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Bateman Horne Center @batemanhornecenter.bsky.social · 7d

September at BHC:
Support Groups: humility & purpose
Final Peer Perspectives: Favorite Things

PPC has closed, but connection continues with new events ahead. 💙
📬 Subscribe: https://bit.ly/3rnvhjq
📖 Access past recaps: https://bit.ly/4pKFYth

#MECFS #LongCOVID

Hands of diverse individuals joined in unity; text reads "September Recap" with a note about outreach events, under tabs "BHC," "Support Group," and "Peer Perspectives."

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Bateman Horne Center @batemanhornecenter.bsky.social · 12d

#Rheumatology once expanded from joints to systemic autoimmune disease. Now, it must prepare for infection-associated chronic conditions like ME/CFS, #POTS & dysautonomia, or risk leaving millions in limbo. Read more on today's blog → https://bit.ly/4mByFl3

#MECFS #LongCOVID

Screen displaying a joint with a magnifying glass and a virus icon, titled "New Blog Post." Text above: "The next expansion: Why Rheumatology Must Prepare for Infection-Associated Chronic Conditions." BatemanHorneCenter.org/blog/

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Bateman Horne Center @batemanhornecenter.bsky.social · 13d

A soft space to land. 💙
BHC holds 2 support groups each month, 2nd & 3rd Tuesdays, 1:00 pm MDT.

Join us: http://batemanhornecenter.org/events/
#MECFS #LongCOVID #PeerSupport

Quote from August 19 Support Group Attendee: "This group is a soft space for us to land when the world kicks us down. We keep showing up for each other."

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Bateman Horne Center @batemanhornecenter.bsky.social · 13d

PEM is a debilitating & hallmark feature of ME/CFS.

New free module covers:
• What PEM is
• Triggers & warning signs
• Pacing & management tips

📘 Learn at your own pace: emerge.org.au/lea-ea-bhc/

Create your account today!
#PEM #MECFS #LongCOVID
@emergeaustralia.bsky.social

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Bateman Horne Center @batemanhornecenter.bsky.social · 15d

ME/CFS scored lower in quality of life than cancer, stroke & MS in one study. Millions, many post-COVID, are now disabled. This illness is real and requires greater recognition, research, and education. 💙Support these efforts today: https://batemanhornecenter.org/donate/

#MECFS #LongCOVID

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Bateman Horne Center @batemanhornecenter.bsky.social · 16d

☕ Introducing Coffee with a Clinician, launching Oct 2025!

Free monthly Zoom (30–45 mins) led by expert knowledge. Learn from the Clinical Care Guide or join Q&A.

An optional $5 “coffee” donation helps us connect with more clinicians worldwide: https://bit.ly/4grlbXr

#MECFS #LongCOVID #Fibro

Invitation to "Coffee with a Clinician" on Wednesday, October 8 at 10:00 am MDT. Visit batemanhornecenter.org/events to register

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Bateman Horne Center @batemanhornecenter.bsky.social · 19d

Thank you for sharing

Bateman Horne Center @batemanhornecenter.bsky.social · 19d

Link works now!

Bateman Horne Center @batemanhornecenter.bsky.social · 19d

For decades, people with ME/CFS faced stigma and little research funding. Now, NIH has spotlighted ME/CFS in its feature on mitochondria—a step toward recognition. Learn about the mitochondria connection & why this matters for #MECFS, #LongCOVID, & related conditions: https://bit.ly/4mjda8g

Illustration of a mitochondrion glowing in orange against a dark background with silhouettes of a man and woman, titled "Mitochondria in the Spotlight".

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Bateman Horne Center @batemanhornecenter.bsky.social · 20d

Back in May, we partnered with @emergeaustralia.bsky.social 🌍
Now we’re highlighting the powerful tools that came from it.

These free education modules help you:
✔️ Understand PEM
✔️ Recognize orthostatic intolerance
✔️ Build a pacing plan

Explore them now: https://emerge.org.au/lea-ea-bhc/

World map background with text: "INTERNATIONAL COLLABORATION ME/CFS & Long COVID Education." Logos of Bateman Horne Center and Emerge Australia. Text: "Collaborating to improve global support for individuals with ME/CFS, Long COVID & IACCs."

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Bateman Horne Center @batemanhornecenter.bsky.social · 21d

🌟 Final Peer Perspectives & Connections → Sept 18, 11:30am MDT
Theme: Favorite Things—what helps, comforts, or uplifts you.
💙 Join us one last time in this shared space.
🔗 Register: https://buff.ly/WRhsRXQ

Woman sitting on a couch with a laptop, smiling. Text highlights event "Peer Perspectives & Connections" on Sept 18, 2025, at 11:30 am MDT. Online event by Bateman Horne Center with registration details.

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Bateman Horne Center @batemanhornecenter.bsky.social · 22d

A major multi-site study shows 97% of people with ME/CFS have autonomic symptoms, from dizziness to GI issues. These are strongly linked to illness severity.

Better recognition through tools like COMPASS-31 & NASA Lean Test can improve care.

Read more: https://buff.ly/VldyR9X

Journal of Clinical Medicine highlights that nearly all people with ME/CFS have autonomic dysfunction linked to illness severity.

Journal of Clinical Medicine: "Recognition is the first step to better care." Encourages reading the full study in the journal.

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Bateman Horne Center @batemanhornecenter.bsky.social · 22d

Tues, Sept 16 • 1:00 pm MDT • Zoom
The Chronic Illness Experience: Creating Purpose & Meaning
Facilitated by Timothy Weymann, LCSW.
✨ Reflection Questions: values, meaning, growth, authenticity.
🔗 Register: https://buff.ly/uf0bWiz
#MECFS #LongCOVID

A woman is seated on a couch using a laptop displaying "Online Support Group." Text reads: "The Chronic Illness Experience: Creating Purpose and Meaning," with event details.

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Bateman Horne Center @batemanhornecenter.bsky.social · 26d

ME/CFS patients couldn’t wait for a government-funded Center of Excellence, so Dr. Bateman created one.
Read how urgency met vision in this BHC blog post: https://buff.ly/1B0915b

#MECFS #LongCOVID #CenterOfExcellence

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Bateman Horne Center @batemanhornecenter.bsky.social · 27d

A decade of growth. From Lunch & Learn ➡️ Peer Perspectives & Connections, we’ve built community & shared wisdom together. 💙

This month we say goodbye to PPC—next up: Coffee with a Clinician launches Oct 2025 ☕

#MECFS #LongCOVID #PeerSupport

Illustrated graphic with the text: 'Where Conversations Began, Connection Continues.' Below the text, a diverse group of people stand in a large circle, arms around each other, symbolizing community and unity.

Reposted by Bateman Horne Center

The Sick Times @thesicktimes.org · 28d

The two-day RECOVER-TLC workshop on new #LongCOVID clinical trials has concluded. You can read our live-blog of every session from the workshop at The Sick Times: bit.ly/4giPmAi

A group of masked advocates with Long COVID who attended the RECOVER-TLC workshop on new Long COVID clinical trials

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Bateman Horne Center @batemanhornecenter.bsky.social · 28d

Because of you, we raised nearly $434K through our #OneGuideOneGoal campaign! 💙

Your support equips providers worldwide with the tools to better recognize, diagnose & treat #MECFS, #LongCOVID & other IACCs.

From all of us at BHC: thank you.

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Bateman Horne Center @batemanhornecenter.bsky.social · 29d

Why does exertion worsen #MECFS?
This study finds the immune system overreacts & energy metabolism breaks down after activity—fueling post-exertional malaise.
📖 buff.ly/Nd1Bs7F

#PEM #ChronicIllness #LongCOVID @nature.com

Research announcement graphic. At the top, citation text reads: 'Che, X., Ranjan, A., Guo, C. et al. Heightened innate immunity may trigger chronic inflammation, fatigue and post-exertional malaise in ME/CFS. npj Metab Health Dis 3, 34 (2025).' Below is an illustration of a person with a magnifying glass examining papers, charts, and a large question mark. Text reads: 'Nature. New Research Uncovers Immune-Metabolic Clues in ME/CFS.' Website link at the bottom: www.nature.com

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