The Sick Times
@thesicktimes.org
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A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
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thesicktimes.org
We're a journalist-founded website chronicling the #LongCOVID crisis. Unlike others, we continue to report on the impact of the ongoing COVID-19 pandemic. No denial. No minimizing. No gaslighting.

Here's our editorial team + writers who've contributed to our publication. go.bsky.app/8zDRx6Y
Reposted by The Sick Times
heatherhogan.bsky.social
You fundraiser perks are coming @thesicktimes.org readers! I dropped off four bike crates full of packages at the post office today! (And now I’m gonna take a nap 😅)

Don’t forget to post pics of yourself in your new TST dad hats and tag us!
A blue e-bike with a crate attached to the back. The crate is full of manilla envelopes. A middle age lesbian wearing a khaki hat that reads “THE SICK TIMES” in stitched purple letters.
Reposted by The Sick Times
betsyladyzhets.bsky.social
We just reached 10,000 (!!!) newsletter subscribers at The Sick Times, and we are doing a giveaway to celebrate! If you already read it, you can enter by forwarding the newsletter to a friend :)
thesicktimes.org
We’ve hit 10K newsletter subscribers, so we’re giving away five The Sick Times swag packs, including pins, stickers, a patch, and our famous dad hat!

Sign up for our newsletter, or forward a recent newsletter to a friend, then comment “10K GIVEAWAY” to be entered. thesicktimes.org/newsletter/
A purple graphic announcing a 10K GIVEAWAY, featuring a photo of the Sick Times swag pack mentioned above (pins, stickers, a patch, and our famous dad hat!).
Reposted by The Sick Times
chromatowski.bsky.social
Great piece on joint hypermobility, which is common among people with Long Covid and related chronic conditions.

I’d add getting diagnosed can lend important insight into how to protect yourself. Better to know in advance than find out the hard way that, say, yoga could really mess you up.
thesicktimes.org
We’ve hit 10K newsletter subscribers, so we’re giving away five The Sick Times swag packs, including pins, stickers, a patch, and our famous dad hat!

Sign up for our newsletter, or forward a recent newsletter to a friend, then comment “10K GIVEAWAY” to be entered. thesicktimes.org/newsletter/
A purple graphic announcing a 10K GIVEAWAY, featuring a photo of the Sick Times swag pack mentioned above (pins, stickers, a patch, and our famous dad hat!).
thesicktimes.org
Since developing Long COVID, Armani Guerra has battled debilitating symptoms, even as he applied for and began his MBA at the University of Michigan’s Ross School of Business. Now, he is organizing the first-ever IACC Case Competition. bit.ly/46Bv0iy
A black and white photo of Armani Guerra wearing a suit and tie. Behind him is a blue-ish tinted photo of the University of Michigan’s Ross School of Business with yellow business doodles on top of it. The text reads, “The Sick Times. Long COVID inspired me to start an IACC case competition at my business school. Here’s how you can get involved. By Armani Guerra.”  I set out to recruit fellow MBA candidates at my business school to develop the first international case competition focused on IACCs like Long COVID, postural orthostatic tachycardia syndrome (POTS), myalgic encephalomyelitis (ME), and more. A task I initially thought would be difficult proved easy, as my peers empathized with my story and saw the daily toll this illness had on me, when I barely made it to class each day.
thesicktimes.org
🩸Thrombotic events doubled since 2020, reinfections increase risk of Long COVID

👃 Olfactory dysfunction occurred in people after SARS-CoV-2 infection

🧘‍♂️ A behavioral trial is assessing a vague “mindfulness intervention” for Long COVID.

This week's #LongCOVID research: bit.ly/4mHhIpj
A scientific drawing shows a blood clot, with red blood cells trapped in a white fibrin mesh. The text reads, "The Sick Times. Long COVID research updates. A large study found thrombotic events doubled since 2020 and that reinfections increased the risk of Long COVID. A study found that olfactory dysfunction, or changes to sense of smell, occurred in people after SARS-CoV-2 infection. A behavioral trial is assessing a vague “mindfulness intervention” for Long COVID." Three slides follow with shortened versions of the text in this caption. Researchers in Spain assessed over 190,000 participants, using data from a public health research network, in a study published in the journal Vaccines. They found that Long COVID prevalence was three to 10 times higher in individuals with three or more reported infections (about 600 people in the dataset) than in those with only one infection. They also found that the number of thrombotic events, including strokes and pulmonary embolisms, in people under 60 doubled from 2020 to 2024, in both people who were and weren’t vaccinated. The authors concluded that policymakers should prevent the spread of SARS-CoV-2 and that healthcare workers should continue wearing protective masks.
A new RECOVER study published in JAMA found that olfactory dysfunction, or changes to sense of smell, occurred in people after SARS-CoV-2 infection, even in those who didn’t report changes. The study included 3,525 participants and formally tested 40 different smells. Researchers found that 66% of previously-infected participants without self-reported change or loss also had olfactory dysfunction, and that dysfunction coincided with cognitive deficits. The authors wrote that their findings corroborated other studies that people underestimate their loss of smell following COVID-19.
A behavioral trial at Columbia University (LONG-CALM) is assessing a vague “mindfulness intervention” for Long COVID. The clinicaltrials.gov page states that participants will view a series of recorded “mindfulness sessions” which were “created by the study team” for eight weeks. The study aims to enroll 400 participants, who will also complete surveys about their symptoms. Mindfulness has been heavily criticized as a treatment for Long COVID by leading researchers and people with the disease. While it can help reduce stress, it has been weaponized against people with chronic illnesses and taken research funding away from trials assessing potential root causes, including immune dysregulation, viral persistence, reactivated viruses, and more.
thesicktimes.org
Literary icon Patricia Lockwood's new novel, Will There Ever Be Another You, is written from inside the mind of someone suffering from neurological symptoms of #LongCOVID.

Read more from @mldavies.bsky.social: bit.ly/3Kt2TcJ
A collage of two images: The cover of of Will There Ever Be Another You, which features a multi-colored floofy cat with bright blue eyes; and a headshot of Patricia Lockwood, a white woman with short brown hair and brown eyes, in a sleeveless dress. Below the collage, the text reads, “The Sick Times. Patricia Lockwood explores the depths of Long COVID in the new novel Will There Ever Be Another You. By Morgan Leigh Davies.” References to COVID-19 and especially to Long COVID, in life and in art, remind people that the pandemic never really ended. But for people like Lockwood and for me, who were both debilitated by Long COVID, forgetting is impossible.

Morgan Leigh Davies

Patricia Lockwood explores the depths of Long COVID in the new novel “Will There Ever Be Another You”
thesicktimes.org
COVID-19 levels continue to decline across much of the U.S. as we proceed down the other side of this summer’s wave. But infectious disease spread remains high, especially in parts of the West Coast & South; plus, cases might be trending further up in parts of the Northeast & Midwest. bit.ly/3KvNYOQ
ID: An orange-ish background and a meter indicating mild-moderate wastewater levels of SARS-CoV-2. The text reads, "COVID-19 levels continue to decline across much of the U.S. as we proceed down the other side of this summer’s wave. But infectious disease spread remains high, especially in parts of the West Coast and South that had the highest peaks this summer; plus, cases might be trending further up in parts of the Northeast and Midwest.

All three major wastewater data sources (the CDC, WastewaterSCAN, and Biobot Analytics) report declines in their national average SARS-CoV-2 levels as of mid-September. Test positivity and emergency department visits from the CDC’s reporting networks are also declining nationwide, as they have for a couple of weeks.

However, two notes of caution. There are signs of disease trends reaching a plateau or perhaps even going back up in parts of the Northeast and Midwest, regions that saw relatively fewer cases over the summer. These are preliminary data, but they are still worth keeping an eye on. And even multiple weeks from the peak of this wave, disease levels remain high in parts of the West Coast and South where it hit the hardest.

In California, for example, the state’s aggregated SARS-CoV-2 wastewater level dropped by 42% between August 28 and September 18 and levels dropped at the vast majority of the state’s 81 testing sites. But the state’s aggregated viral level remained “high” as of September 18, according to the California public health department."

On the third slide, a chart titled, "State summary of California for SARS-CoV-2." The left side of the chart includes text boxes with summary statistics about SARS-CoV-2 in California wastewater. Text reads: "State aggregated summary: Level: High; Trend (compared to 21 days ago): Decrease -42% [-45%, -39%] ID: An orange-ish background and a meter indicating mild-moderate wastewater levels of SARS-CoV-2. The text reads, "COVID-19 levels continue to decline across much of the U.S. as we proceed down the other side of this summer’s wave. But infectious disease spread remains high, especially in parts of the West Coast and South that had the highest peaks this summer; plus, cases might be trending further up in parts of the Northeast and Midwest.

All three major wastewater data sources (the CDC, WastewaterSCAN, and Biobot Analytics) report declines in their national average SARS-CoV-2 levels as of mid-September. Test positivity and emergency department visits from the CDC’s reporting networks are also declining nationwide, as they have for a couple of weeks.

However, two notes of caution. There are signs of disease trends reaching a plateau or perhaps even going back up in parts of the Northeast and Midwest, regions that saw relatively fewer cases over the summer. These are preliminary data, but they are still worth keeping an eye on. And even multiple weeks from the peak of this wave, disease levels remain high in parts of the West Coast and South where it hit the hardest.

In California, for example, the state’s aggregated SARS-CoV-2 wastewater level dropped by 42% between August 28 and September 18 and levels dropped at the vast majority of the state’s 81 testing sites. But the state’s aggregated viral level remained “high” as of September 18, according to the California public health department."

On the third slide, a chart titled, "State summary of California for SARS-CoV-2." The left side of the chart includes text boxes with summary statistics about SARS-CoV-2 in California wastewater. Text reads: "State aggregated summary: Level: High; Trend (compared to 21 days ago): Decrease -42% [-45%, -39%] ID: An orange-ish background and a meter indicating mild-moderate wastewater levels of SARS-CoV-2. The text reads, "COVID-19 levels continue to decline across much of the U.S. as we proceed down the other side of this summer’s wave. But infectious disease spread remains high, especially in parts of the West Coast and South that had the highest peaks this summer; plus, cases might be trending further up in parts of the Northeast and Midwest.

All three major wastewater data sources (the CDC, WastewaterSCAN, and Biobot Analytics) report declines in their national average SARS-CoV-2 levels as of mid-September. Test positivity and emergency department visits from the CDC’s reporting networks are also declining nationwide, as they have for a couple of weeks.

However, two notes of caution. There are signs of disease trends reaching a plateau or perhaps even going back up in parts of the Northeast and Midwest, regions that saw relatively fewer cases over the summer. These are preliminary data, but they are still worth keeping an eye on. And even multiple weeks from the peak of this wave, disease levels remain high in parts of the West Coast and South where it hit the hardest.

In California, for example, the state’s aggregated SARS-CoV-2 wastewater level dropped by 42% between August 28 and September 18 and levels dropped at the vast majority of the state’s 81 testing sites. But the state’s aggregated viral level remained “high” as of September 18, according to the California public health department."

On the third slide, a chart titled, "State summary of California for SARS-CoV-2." The left side of the chart includes text boxes with summary statistics about SARS-CoV-2 in California wastewater. Text reads: "State aggregated summary: Level: High; Trend (compared to 21 days ago): Decrease -42% [-45%, -39%]
thesicktimes.org
It can feel lonely navigating the #LongCOVID crisis. We report on this common, life-changing disease that affects over 400 million people worldwide.

Sign up for our newsletter and join others who want fact-based news without COVID-19 denial, minimizing, or gaslighting. thesicktimes.org/newsletter/
A purple background reads, “The Sick Times newsletter. Reporting on the Long COVID crisis. Long COVID research updates. COVID-19 trends. Personal essays from disabled writers. Health and science expert Q&As. thesicktimes.org/newsletter.” At the top is an illustration of a Caladrius delivering some mail. On the right is a black and white photo of a woman browsing the internet on her laptop.
thesicktimes.org
Many thanks C.H. 🙏🏼
Reposted by The Sick Times
chromatowski.bsky.social
Really important topic.

It’s a great day to donate to @thesicktimes.org. Nowhere else is gathering this critical information for people who have Long Covid—or anyone who might get it, which a new NIH incidence study says is at least 1 in 20 people who get Covid.
thesicktimes.org
#LongCOVID is not functional neurological disorder (FND), but some patients are getting diagnosed with it.

Here’s @davetuller1.bsky.social on what to do if it happens to you: bit.ly/4mxAyiB
 Photo of an art piece: a white object, shaped like an egg, with painted representations of the virus SARS-CoV-2 across its surface. The text reads, "The Sick Times. Long COVID is not FND, but some patients are getting diagnosed with it. Here’s what to do if it happens to you. By David Tuller." What people with Long COVID should do if they receive an FND diagnosis: 

Ask about the basis for the diagnosis. A clinician may render an FND diagnosis when medical tests are negative. That means people with Long COVID and other conditions that lack validated biomarkers might be particularly vulnerable to misdiagnosis. However, FND is not supposed to be a diagnosis of exclusion — that is, a diagnosis given solely because nothing else has been found. 

Don’t automatically accept the diagnosis as final. “Don’t be afraid to question it if it doesn’t feel like the diagnosis fits your symptoms,” said Hargrave. Davenport echoed that advice. “Don’t take it for a definitive answer,” he said. “It’s okay to seek another opinion.” 
What people with Long COVID should do if they receive an FND diagnosis

Keep a full account of your medical care, said Joffe, the Australian expert. “Carefully document all neurological interactions,” he said. “Keep copies of the letters written and all the results. That’s crucial. Not infrequently, I find that something has been missed or overlooked in my patients. Having the original letters and studies is very illuminating.”

Be aware that having an existing FND diagnosis in medical charts might influence the judgment of subsequent clinicians, and take steps to address this issue. David Putrino recommends working with your primary care provider “to have that diagnosis removed from your medical records.”

"Don’t be afraid to question it if it doesn’t feel like the diagnosis fits your symptoms. Don’t take it for a definitive answer. It’s okay to seek another opinion." - Todd Davenport, Professor of physical therapy at the University of the Pacific in Stockton, California
Reposted by The Sick Times
brittashoot.com
Thanks to TST for publishing this letter! I’ve mentioned issues with this bill before & hope Californians will consider why mask advocacy groups oppose this. Folks who crafted this legislation seem unserious.
brittashoot.com
It’s really important to understand that the Bay Area group that won back masking protections several times in the past few years is against the bill that’ll supposedly protect the right to mask in California!

(Full disclosure: I'm part of SDA's mask advocacy working group, tho less active lately)
sdaction.org
Why we're not supporting AB 1326 (the CA bill that supposedly protects the right to mask):

We're fully against mask bans, and we recognize how dangerous they are. We would support legislation that exclusively specifies that it prevents mask bans. [1/6]
thesicktimes.org
💊 Two studies found limitations of Paxlovid for protection from #LongCOVID

🩸 Long COVID may increase menstrual bleeding

👨‍⚕️ A new clinical trial is testing Mitoquinone in combination with “exercise rehabilitation” (which may be detrimental) for LC

This week's research updates: bit.ly/46EXPcu
Five sheets of Paxlovid pills in an array, with a filter on the image making the sheets appear wobbly. The text reads, "The Sick Times. Long COVID Research Updates. Two recent studies found limitations of the drug Paxlovid for protection from Long COVID. Long COVID may increase menstrual bleeding. A new clinical trial is testing Mitoquinone in combination with “exercise rehabilitation” (which may be detrimental) for Long COVID." Two recent studies found limitations of the drug Paxlovid for protection from Long COVID, contrasting prior studies that suggested the antiviral drug might help prevent this disease. The first study analyzed electronic health records from the National Institutes of Health (NIH) RECOVER program, including over 150,000 participants who got COVID-19 after April 1, 2022. The authors concluded that their study “found that Paxlovid treatment during acute COVID-19 had no effect on subsequent [Long COVID].” A second retrospective cohort study from the CDC of over 800,000 participants found that the drug only slightly helped participants who were over 50 years old. It did not meaningfully protect adolescents or younger adults from Long COVID.
Long COVID may increase menstrual bleeding, according to a new survey study published in Nature Communications. Researchers in the U.K. surveyed over 12,000 participants (including about 1,000 with Long COVID) and found a link between Long COVID and abnormal uterine bleeding, which may be a result of hormone changes and increased inflammation in the uterus. The authors stated that COVID-19 and Long COVID may predispose people who menstruate to iron deficiency and anemia. “Reassuringly, ovarian function appears to be maintained in this group of regularly cycling women with Long COVID,” the authors wrote.
A new clinical trial is testing the supplement Mitoquinone in combination with “exercise rehabilitation” (which may be detrimental) for Long COVID. The study aims to recruit 300 people over 50 years old at the Veterans Affairs Salt Lake City Health Care System, in Salt Lake City, Utah. The supplement, also known as “Mito-Q,” targets mitochondrial function and will be given to some participants who undergo exercise, while others will be given a placebo and exercise. The study does not mention post-exertional malaise (PEM) on its clinical trials page; studies have shown that muscle abnormalities worsen after PEM in Long COVID. Many advocates and leading researchers have criticized Long COVID trials focusing on exercise as an intervention.
thesicktimes.org
In May, The Sick Times published an op-ed about a novel bill in Illinois that would enshrine the right to wear medical masks into that state’s law. We received a letter from a reader in California, sharing concerns about the right-to-mask bill currently pending in that state. bit.ly/481168l
A man wearing a respirator stands with his arms folded across his chest. He is in a room with various convenience store stock items, like soda cans, etc. The text reads, “Letter to the editors: Concerns about California’s right-to-mask bill. Written by David Miller.” No one should have to remove their masks “for identification purposes” or otherwise, temporarily or not, at most of those places. And if it’s not already required by law, such policies definitely shouldn’t be codified into law.
thesicktimes.org
Season one of our podcast, Still Here, has come to a close. Our brilliant podcast producer, James Salanga (@hashtagjames.bsky.social), is moving full-time to The Objective (@objectivejournos.bsky.social). It's been a joy to work with James, and we're excited to follow them on their new adventures!
Two photos of James, one with Miles and one with Betsy, are pasted on top of purple construction paper cutouts. They are on top of a purple rug-textured background. The text reads, “The Sick Times. Thank you, James!” A white Caladrius wearing headphones, the Still Here mascot, sits on James’ shoulder. To listeners of Still Here: Thank you for tapping in for the first season of The Sick Times’ podcast! It’s been an incredible honor to work with The Sick Times and start this podcast to help bring the newsroom’s thoughtful reporting and commentary on Long COVID and other infection-associated chronic conditions with you all.

I’m a disabled journalist who has long felt isolated by much of the industry’s haste to minimize the ongoing COVID-19 pandemic and the Long COVID crisis. I’ve been so grateful for The Sick Times both as an employer and a newsroom, and for Betsy, Miles, Heather, and the rest of our contributors’ work in sharing work grounded in lived experience and science that counters minimization narratives around disability and SARS-CoV-2. 

If you’d like to keep up with my work, I’ll be at The Objective, a media criticism nonprofit newsroom analyzing power dynamics in journalism through the lens of systemic inequities. I’m inspired by the reframes The Sick Times’ news and commentary provides, and hope to offer the same at The Objective. (There may be a future TST and The Objective collaboration in the future, too.) 

I’ve learned so much from the team’s care and editorial insight, and I’m looking forward to hearing future seasons of the podcast. You can keep an eye out for more information about what’s next for Still Here in our newsletter, socials, and website soon! 
— James Salanga