Benjamin Stecher
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benjaminstecher.bsky.social
Benjamin Stecher
@benjaminstecher.bsky.social
Associate Director of the Silverstein Foundation for Parkinson's with GBA as well as Chair of the Patient Advisory Board to Rune Labs.
Reposted by Benjamin Stecher
What does a positive αSyn-SAA mean?

✅It supports a Parkinson's diagnosis.

✅It does not indicate disease mechanisms, severity, progression rate, biological subtypes, or treatment response.

Important article: www.sciencedirect.com/science/arti...

@albertoespay.bsky.social @ajlees.bsky.social
December 30, 2024 at 4:02 AM
Fascinating work from Laurie Mischley, ND PhD MPH. Thank you for all that you continue to do for the #parkinsons community. I was particularly drawn to the following sections:

mvp-study.com/10-year-summ...
Modifiable Variables in Parkinsonism (MVP) Study
Do Your Decisions Impact Rate of Progression?
mvp-study.com
December 26, 2024 at 4:12 PM
Reposted by Benjamin Stecher
What a huge contrast between their bravery & the lack of courage in the field to admit that the reason there are no therapies might be that our favorite theories are not good enough. Many would rather peddle false hope than confront the possibility of being wrong.
www.nytimes.com/2024/12/22/h...
A Woman With a Rare Gene Mutation Fights to Avoid Her Mother’s Fate
A mutant gene is coming to steal Linde Jacobs’s mind. Can she find a way to stop it?
www.nytimes.com
December 23, 2024 at 2:19 PM
Below is a video of me doing some split belt training in front of a screen this past Tuesday. I found it to be a novel and fun environment to do some dual task exercises. There is definitely something to having to think about each step while doing some basic skills that helps...
December 20, 2024 at 3:05 PM
My Final Visit With A Wizard + The Adventures of Tokkiri

Dedicated to Dr. Alexandra Boogers

tmrwedition.com/2024/12/18/m...
Tomorrow Edition - My Final Visit With A Wizard + The Adventures of Tokkiri
Dedicated to Dr. AB
tmrwedition.com
December 18, 2024 at 3:57 PM
Excited to introduce to everyone the Thriving Brain & Development Project (TBD)!!!

The brainchild of the wonderful Tyaisha Dillon who I got to know through Brian Pepin (you were right we definitely click).

www.thetbdprojectinc.org
THE THRIVING BRAIN & DEVELOPMENT TBD PROJECT INC. | human brain
The TBD Project Inc. empowers communities by promoting brain health awareness, addressing health disparities, and fostering sustainable education practices. We strive to support underserved communitie...
www.thetbdprojectinc.org
December 18, 2024 at 1:37 PM
The 2025 enrollment period for the Silverstein Foundation for Parkinson's with GBA's fellowship program has begun! Super excited to start getting applications, click below for more details.

tmrwedition.com/2024/12/16/t...
Tomorrow Edition - The Silverstein Foundation Fellowship Program
Now receiving applications for the 2025 enrollment of the Silverstein Foundation Fellowship Program!
tmrwedition.com
December 16, 2024 at 3:34 PM
Reposted by Benjamin Stecher
A beautiful arrangement of a classical Egyptian song
youtube.com/watch?v=CzrX...
youtube.com
December 12, 2024 at 5:55 PM
A few details on joining the Silverstein Foundation for Parkinson's with GBA and some info on what my role will be...

tmrwedition.com/2024/12/04/a...
Tomorrow Edition - Announcement
Joining the Silverstein Foundation for Parkinson’s with GBA
tmrwedition.com
December 4, 2024 at 11:48 AM
This looks awesome, exactly what the Parkinson's community needs, thank you Detroit Tigers's legend kirk gibson for spearheading the development of this wellness center. Next time I'm in the Detroit area definitely will come take a look.

www.detroitnews.com/story/sports...
'Let's fix it': Tigers legend Kirk Gibson unveils plans for Parkinson's center
The center, to be located in Farmington Hills, will offer services for free, starting 2025, focusing on movement-based and cognitive therapies.
www.detroitnews.com
November 29, 2024 at 2:09 PM
Reposted by Benjamin Stecher
Mandatory listening: A fascinating & wonderful 'Stimulating Brains' podcast episode from @andreashorn.org interviewing Mark McAuley & Susan Boehnke on patient-led #Parkinsons research, patient-centered care & neuroscience education
stimulatingbrains.org/63-mark-mcau...
November 23, 2024 at 9:04 PM
I asked meta.ai to Draw a funny greeting card that depicts a snowman with Parkinson's disease that says: "Hope this wintery weather isn't wreaking too much havoc on your symptoms."

This was the best I got, oh well. Season's greetings y'all ;)

☃️❄️
November 25, 2024 at 7:34 PM
What an incredible episode of Stimulating Brains from Prof. @andreashorn.org with guests Prof. Susan Boehnke and astronomy CEO Mark McAuley. They covered a lot of important ground from Mark's Parkinson's diagnosis to the challenges he faced getting DBS to..

stimulatingbrains.org/63-mark-mcau...
#63: Mark McAuley & Susan Boehnke – Patient-led Research, Patient-Centered Care and Neuroscience Education – Stimulating Brains
stimulatingbrains.org
November 20, 2024 at 1:35 PM
Reposted by Benjamin Stecher
Did you know that Intro to BN has 13 method videos? Let's start with the deep brain stimulation video by @benjaminstecher.bsky.social and Gina Lupino. This may be one of the most surprising parts of this resource. Watch to find out why: www.youtube.com/watch?v=Yu2k... #neuroscience #openneuroscience
Explaining deep brain stimulation (An OpenStax resource)
YouTube video by OpenStax
www.youtube.com
November 19, 2024 at 12:58 PM
First post on BlueSky seems apropos for a big announcement. I have joined the Silverstein Foundation for Parkinson's with GBA as their new Associate Director! One of my roles will be helping identify the next round of fellows to join the program. Details to come, follow me for more info...
November 19, 2024 at 12:03 PM