Tá Čajka
bitterkolac.bsky.social
Tá Čajka
@bitterkolac.bsky.social
Myasthenic Goblin. Psych survivor. Fed up trash bird. TransQueer mermaid. He/They.
Reposted by Tá Čajka
I also recommend downloading a copy of this list of cleaning products effective against norovirus

(It's uh...currently... Available on the EPA website, but who knows how long that will last)

www.epa.gov/pesticide-re...

Note that the concentration of the cleaner is particularly important
EPA’s Registered Antimicrobial Products Effective Against Norovirus (feline calicivirus) [List G] | US EPA
EPA Registered Hospital Disinfectants Effective Against Norovirus (Norwalk-like virus)
www.epa.gov
March 3, 2025 at 2:41 PM
Reposted by Tá Čajka
And so I come back to how this is such a common experience with a complex chronic illness

Because as bad as this is, this is the Lite version due to privilege and a little luck

Erythromelalgia may be rare, but having no treatment or medical guidance is not

bsky.app/profile/unto...
I want to emphasize that as bad as this was, my experience was also basically the optimal, most privileged chronic illness experience:

Housed

Family support

Insured, with the ability to self refer to specialists

Community support from disabled friends

Already on disability benefits
September 8, 2024 at 3:03 PM
I didn't have this symptom when I first got sick, but the past 4 years have been like whack-a-mole, trying to control symptoms as the disease progresses.
February 16, 2025 at 3:42 PM
Usually, thin, hot, liquids are the worst culprits, specifically coffee, but any liquid might do it. Beyond the embarrassment, it can be painful and v difficult to clear out of my sinuses.
February 16, 2025 at 3:42 PM
I spent 2 days a month there, I've gotten used to the process, as jankity as it is
February 15, 2025 at 3:47 PM
On the good day, my nurse came out masked and stayed that way, was efficient, and got me in and out as fast as possible.
February 15, 2025 at 3:47 PM
Shit day gave me a migraine and a nurse who just failed to follow infusion instructions multiple times. Maybe if I didn't feel like hot trash, I would be more forgiving but also like, I do all my little steps to get ready, so it is frustrating when people don't put in the effort.
February 15, 2025 at 3:47 PM
There is exactly one other country in which my skillset is applicable,
and they are only marginally
safer. But they also wouldn't let me move there anyway. The feeling of helplessness and being trapped is...not fun.
July 14, 2024 at 4:15 PM