Mads
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blueforpwme.bsky.social
Mads
@blueforpwme.bsky.social
🇬🇧DxwM.E.1995-EBV&now LC ex-dancer,⛱️lifeguard,performer, working on writing my 1st novel to rep #pwME! I’m a dreamer,nature lover & surfer 🏄‍♂️🛹1-2 times a yr if I’m lucky. Many undiagnosed comorbidities! Ie.MCAS.OI/DYSAUTONOMIA.EDS. GASTRO.ADHD.CHIARI/SPINAL🦋
#CloudShrine Update:

Our first meeting went well, despite two attendees off sick.

I’m meeting in person towards the end of this month, visiting the space & to try out one of the mats, and to determine next steps.

Meanwhile marketing will be working on spreading the word across #SouthTyneside
November 7, 2025 at 9:20 AM
Reposted by Mads
An employer who doesn't know the absolute basics of how disability is defined in employment and discrimination law. Massive surprise... 🙄
November 6, 2025 at 6:07 PM
Sounds like they’re still focusing on the same model that hasn’t worked for many years for so many!

Isn’t it unintelligence that does the same thing thinking it will produce a different outcome?

Oh dear
Perhaps get a disabled person to report on what being disabled is, unless this person is?!?
a poster that says great minds discuss ideas average minds discuss events small minds discuss people cliphy
Alt: a poster that says great minds discuss ideas average minds discuss events small minds discuss people cliphy
media.tenor.com
November 7, 2025 at 8:59 AM
Sounds like they’re still focusing on the same model that hasn’t worked for many years for so many!

Isn’t it unintelligence that does the same thing thinking it will produce a different outcome?

Oh dear
Perhaps get a disabled person to report on what being disabled is, unless this person is?!?
a poster that says great minds discuss ideas average minds discuss events small minds discuss people cliphy
Alt: a poster that says great minds discuss ideas average minds discuss events small minds discuss people cliphy
media.tenor.com
November 7, 2025 at 8:57 AM
… and obviously @davetuller1.bsky.social @sunsopeningband.bsky.social which I’m sure you have on your radar already
November 3, 2025 at 7:41 AM
Sure you have the links to Valerie Eliot Smith and also @rfh1955.bsky.social sites… maybe some countering CBT/GET amongst all the information? Not sure if it will be helpful for you as non specific and a lot of evidence to look at but thought I’d add my contribution here in case 💙
November 3, 2025 at 7:38 AM
Oh yes I recall that name. It’s so sad how we remember the names of these beautiful souls yet many of us have never had the honour of meeting them in real life. It’s all such a muddle isn’t it and so wrong. All souls will be remembered for their courage in the face of uneccessary&unfair adversity 💙
November 1, 2025 at 6:33 PM
November 1, 2025 at 6:28 PM
I’ll be sharing any promotional material in due course, depending on the outcome of Mondays meeting
Thank you,
Madeleine ☁️
November 1, 2025 at 6:24 PM
It’s likely that for me to be able to run a session that it would only happen once a month and be limited for spaces. I’m thinking 8 people per 2 hour session so I could always rotate a list as some may only be able to attend once every few months for example.

I’d love it if you could support me 💙
November 1, 2025 at 6:23 PM
I’ll feedback after my meeting on Monday

Thank you for reading

Please SHARE or to groups local to the North East coastal regions

#pwME / #LongCovid
November 1, 2025 at 6:21 PM
November 1, 2025 at 6:19 PM
If you know anyone that this might benefit in the Sunderland area, please let them know about this as there’ll be a period of time to collate interest & for marketing the sessions. It will only go ahead if enough people can make it, so if you’re isolated there’s a chance to meet others, if you can 💙
November 1, 2025 at 6:18 PM
I’m hoping to trial this in the Sunderland area at a beautiful location, away from any hustle & bustle by the coast. A landscape that offers some nourishment in itself. Whether you can attend just to lie down & immerse or can move a bit; the aim is to connect & rest, moving a little if you’re able 💙
November 1, 2025 at 6:16 PM
I’ve not seen this one before and I haven’t seen them all, but this means that Maeve Boothby O’Neill definitely wasn’t the first where the coroner put M.E. as cause of death. The historical narrative is unending in its proof time and time again about this disease and the tradgedies surrounding it 💙
November 1, 2025 at 6:03 PM
He looks like a lovely 🐈‍⬛ ❤️ close calls are stressful. Hope he’s ok now
November 1, 2025 at 5:57 PM