Elisabeth Klaar | Oak Tree Studio
LightNews LightNews
banner
lammasleaves.bsky.social
Elisabeth Klaar | Oak Tree Studio
@lammasleaves.bsky.social
59 followers 210 following 3 posts
Marketing support and WordPress websites for small businesses and organisations, sole traders, authors and more...

www.oaktreestudio.co.uk
Posts Replies Media Videos
Reposted by Elisabeth Klaar | Oak Tree Studio
abrokenbattery.bsky.social
‘If you’re disabled, you’re not ill.’
Sir Charlie Mayfield (author of the Keep Britain Working review)

This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics.

I’m disabled because I’m chronically ill with #MECFS.
November 6, 2025 at 9:35 AM
Reposted by Elisabeth Klaar | Oak Tree Studio
exceedhergrasp1.bsky.social
At the #ICanCME2025 conference today!

Sabrina Poirier & Maeghan Taverner's intros blew me away.

~Acknowledging labor from people with lived experience
~Setting out expectations
~Moment of silence for those we've lost

This is what a conference designed by people with lived experience looks like 🧪
November 4, 2025 at 6:23 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
abrokenbattery.bsky.social
Dr Clare Gerada has been appointed a crossbench peer in the House of Lords and is now a baroness — I’ve put together a short thread about her involvement in #MECFS.

twitter-thread.com/t/1981309222...
🧵Dr Clare Gerada has been appointed a crossbench peer in the House of Lords and is now a Baroness. She is married to psychiatrist Sir Simon Wessely, the main architect of the now-discredited psycholog...
🧵Dr Clare Gerada has been appointed a crossbench peer in the House of Lords and is now a Baroness. She is married to psychiatrist Sir Simon Wessely, the main architect of the now-discredited psycholog...
twitter-thread.com
October 23, 2025 at 10:43 AM
Reposted by Elisabeth Klaar | Oak Tree Studio
buonsenso.bsky.social
“We Can’t Do This Alone”: A Doctor’s Plea for Support in Caring for Long COVID and ME/CFS Patients

danilobuonsenso.substack.com/p/we-cant-do...
“We Can’t Do This Alone”: A Doctor’s Plea for Support in Caring for Long COVID and ME/CFS Patients
As a pediatrician and infectious disease specialist, my days are full.
danilobuonsenso.substack.com
October 19, 2025 at 1:50 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
tomkindlon.bsky.social
October International Research and Advocacy Roundup

emerge.org.au/news/october...

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid
October International Research and Advocacy Roundup Our International Roundup provides a brief snapshot of some of the ME/CFS and long COVID research funding, clinical care and advocacy actions around the world. In the last few months topics include; UK National Institute for Health and Care Research (NIHR) is seeking applications for research to accelerate the treatment and management of long COVID and ME/CFS. The grant of up to £200,000 will fund the development of a Phase 2 platform trial that can test multiple repurposed medications. The Netherlands Organisation for Health Research and Development (ZonMw) has funded 7 new ME/CFS research projects in the second round of its funding grants. A requirement for the funding is that the projects involve collaboration and are focussed on biomedical aspects of the condition. The World ME Alliance has published a very brief guide: Supporting People with Severe and Very Severe ME/CFS: A Resource Guide for Clinicians. The guide was developed in partnership with the Severe ME Advocacy group and is available in both English and French. #MEAction published a gallery of art produced by people living with severe ME/CFS for Severe ME Day. The Severe ME Artists Project included over 100 submissions in a wide range of mediums, including painting, digital art, video, and writing. FULL OCTOBER INTERNATIONAL ROUNDUP
October 18, 2025 at 3:29 AM
Reposted by Elisabeth Klaar | Oak Tree Studio
swastrosarah.bsky.social
This was submitted February 2024! www.nature.com/articles/s41...
Altered effort and deconditioning are not valid explanations of myalgic encephalomyelitis/chronic fatigue syndrome
Nature Communications - Altered effort and deconditioning are not valid explanations of myalgic encephalomyelitis/chronic fatigue syndrome
www.nature.com
October 18, 2025 at 7:08 AM
Reposted by Elisabeth Klaar | Oak Tree Studio
tomkindlon.bsky.social
Just dealing with an ME enquiry: a lot of people understandably want to know what they can do to help improve their health. But people also need to try to avoid making themselves worse. Pretty obvious for long-term patients, but can be an awkward topic to bring up.

#MEcfs #PwME #CFS
October 9, 2025 at 2:00 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
jenniejacques1.bsky.social
Thank you 🙏 @georgemonbiot.bsky.social

Here’s an interview with George and @davetuller1.bsky.social to learn more…!

m.youtube.com/watch?v=SpLM...
October 9, 2025 at 11:45 AM
Reposted by Elisabeth Klaar | Oak Tree Studio
tomkindlon.bsky.social
From the September 2025 Chronic Living @chronicliving123.bsky.social Therapy newsletter

Open Letter to the British Association of Counselling & Psychotherapy (BACP) magazine by @lammasleaves.bsky.social et al

chroniclivingtherapy.com/open-letter-...

#MyalgicEncephalomyelitis #MEcfs #CFS #PwME
Open Letter to the BACP magazine Therapy Today is the flagship members' publication of the British Association of Counselling and Psychotherapy. Getting a long, in depth article in there is a big deal and reaches a lot of therapists. The September issue included a long article about chronic illness, and much of it was good. The section on ME/CFS was, however, really disappointing. It platformed outdated and unscientific 'mind body' solutions, 'trauma' as an underlying cause, etc. A group of therapists and others came together with Chronic Living Therapy and wrote an Open Letter to the Editor. We've not yet had an acknowledgement, but it's published on our website. You can read it and drop me a line to be added if you wish to sign: Open Letter to the Editor, Therapy Today
October 3, 2025 at 8:19 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
thesicktimes.org
It can feel lonely navigating the #LongCOVID crisis. We report on this common, life-changing disease that affects over 400 million people worldwide.

Sign up for our newsletter and join others who want fact-based news without COVID-19 denial, minimizing, or gaslighting. thesicktimes.org/newsletter/
A purple background reads, “The Sick Times newsletter. Reporting on the Long COVID crisis. Long COVID research updates. COVID-19 trends. Personal essays from disabled writers. Health and science expert Q&As. thesicktimes.org/newsletter.” At the top is an illustration of a Caladrius delivering some mail. On the right is a black and white photo of a woman browsing the internet on her laptop.
September 27, 2025 at 4:17 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
rgleadow.bsky.social
Sounds promising. (So long as they don’t go the graded exercise /psychology route)
europeanmealliance.bsky.social European ME Alliance @europeanmealliance.bsky.social · Sep 21
Switzerland is putting in place one of Europe’s first national strategies specifically dedicated to improving care and research for ME/CFS and Long Covid
www.europeanmealliance.org/news-Q32025-...
#mecfs #Longcovid #EuropeanMEalliance
Banner with Swiss flag and red background
September 27, 2025 at 8:32 AM
Reposted by Elisabeth Klaar | Oak Tree Studio
meownersclub.bsky.social
20 people were injured at Heathrow airport on Monday+the Usual Suspects suggested the event may have been a Mass Hysteria/Mass Psychogenic Event as people caught ‘THE IDEA OF ILLNESS’ from each other

People with #ME #LC will be familiar with this nonsense

The REAL cause turned out to be CS gas 🤦‍♀️
The image is a graphic depiction of an airport terminal clouded in a pink gas with people coughing. The title says - ‘If it looks like CS gas... and smells like CS gas...’ The caption says ‘...it must be Mass Hysteria!’ At the bottom Wise Cat us saying “As science expands you'd think that educated people would know better than to fill any gaps in their knowledge with psychobabble!’ The cartoon maker is #FanningTheFlames
September 15, 2025 at 9:46 AM
Reposted by Elisabeth Klaar | Oak Tree Studio
tomkindlon.bsky.social
Useful new blog post by @lammasleaves.bsky.social :
"Picturing M.E."

oaktreestudio.co.uk/2025/09/04/p...

Includes photos and images "that realistically portray M.E. (includes links to collections/albums of examples)"

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
This blog post looks at how the medical condition M.E. is portrayed in photographs and illustrations that accompany newspaper, magazine and website articles about it. There are suggestions for how to find realistic images, and links to curated collections of images that may be useful. We also share some tips for photographers wishing to contribute relevant images to popular online photo libraries. Finally we take a quick look at resources for visualising data, in the context of M.E. This post contains the following sections (click to jump down the page to the section you are interested in): Issues with inaccurate images of M.E. in the media Reality of life with M.E. What alternatives are available to journalists, picture editors, bloggers and charities? Pictures that realistically portray M.E. (includes links to collections/albums of examples) Licensing info for Unsplash and Istockphoto Adding images to Unsplash and Istockphoto – links/info about how to contribute your own images Image request list! The start of a wish list of images I’d like to see more of… Adding the right words to your image when adding it to image libraries Using graphics / visualising data about M.E. – featuring CrunchME Issues with images of M.E. in the media
September 8, 2025 at 1:42 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
tomkindlon.bsky.social
New resource:

"A collection of photos that could reasonably be used to illustrate articles about M.E. ( #MyalgicEncephalomyelitis), sometimes known as MECFS, & (outdated term) #ChronicFatigueSyndrome" from @lammasleaves.bsky.social

unsplash.com/collections/...

#MEcfs #CFS #PwME
M.E., ME/CFS photos A collection of photos that could reasonably be used to illustrate articles about M.E. (Myalgic Encephalomyelitis), sometimes known as MECFS, and (outdated term) Chronic Fatigue Syndrome. Please connect if you'd like to suggest images for inclusion. Go to EMK KME's profile EMK KME 93 images
September 5, 2025 at 12:34 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
swastrosarah.bsky.social
*cut first for
Please @bsky.app could you give us an edit button? I hate my typos
August 29, 2025 at 8:35 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
swastrosarah.bsky.social
I understand gaps will be filled and corrections made in due course to allow #pwME to avoid #PEM by living at a less breakneck speed than legal deadlines permit. This is the type of reasonable adjustment needed to include patients & family carers in any activity for intended for their benefit.
2/2
August 29, 2025 at 6:05 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
swastrosarah.bsky.social
I am proud to endorse this initiative, with thanks to the very many people made unwell by medical neglect of #ME who never give up, no matter how difficult it is to continue.
This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2
www.crowdjustice.com
August 29, 2025 at 6:05 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
baszkom.bsky.social
On behalf of all MECFS sufferers - here and gone - thank you to whoever is taking this action.

Donate if you can 💙🕊️
swastrosarah.bsky.social sarah boothby @swastrosarah.bsky.social · Aug 29
I am proud to endorse this initiative, with thanks to the very many people made unwell by medical neglect of #ME who never give up, no matter how difficult it is to continue.
This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2
www.crowdjustice.com
August 29, 2025 at 7:05 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
julierehmeyer.bsky.social
Almost two years ago, our beloved, brilliant #bethmazur ended her life while visiting me. The grief has softened with time, but the impact has reshaped me. I've written about it here: jrehmeyer.substack.com/p/holding-wh...
Holding What Has No Meaning
Almost two years ago, on the winter solstice, I was given the most terrible honor of my life: My dear friend Beth Mazur chose to end her life while visiting me.
jrehmeyer.substack.com
August 17, 2025 at 4:40 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
chromatowski.bsky.social
This is why pwME get so upset when newcomers to the field don’t engage existing experts. We have lost so, so much time, and critical information, to people who refuse to build on existing knowledge.
allisonwgood.bsky.social Allison Good @allisonwgood.bsky.social · Aug 17
They’ve literally been reinventing the wheel for no reason
August 17, 2025 at 7:44 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
erictopol.bsky.social
Covid accelerates vascular aging
An 18-country, 38-center study of ~2,000 participants
—Effect predominantly in women, adding 5 years of aging
—Seen with non-hospitalized and mild-moderate Covid
—Reversible in some at 1-year; vaccination link to protection
apps.crossref.org/pendingpub/p...
August 17, 2025 at 11:09 PM
Reposted by Elisabeth Klaar | Oak Tree Studio
decodemestudy.bsky.social
“I am proud that this study was run differently, with lived experience at its heart. Proud that our community stepped up en masse to participate, and proud that we are at the forefront of scientific research into this debilitating illness.” - Sian Leary, DecodeME PPI
Photo of Sian Leary, from DecodeME patient and public involvement, next to the quote: "Having been on the Patient and Public Involvement Steering Group for the past 5 years, I want to celebrate this moment, but also to acknowledge the intense suffering pwME continue to endure. This study gives each of us validation that too often has been missing from healthcare professionals and close ones. We are a significant step closer to identifying the causes of ME, and to finding treatments."
August 18, 2025 at 10:41 AM
Reposted by Elisabeth Klaar | Oak Tree Studio
decodemestudy.bsky.social
Today is #SevereMEDay - a day to recognise and honour the people living with the most devastating forms of Myalgic Encephalomyelitis (ME).

We are deeply grateful to those with Severe ME who took part in the DecodeME study. Your contribution is vital.
Thank you to the thousands of people with Severe ME who have taken the time and energy to participate in DecodeME #SevereMEDay
August 8, 2025 at 11:18 AM
Reposted by Elisabeth Klaar | Oak Tree Studio
andrewgiffordphoto.bsky.social
As shite as it is having ME/CFS in the UK and knowing our NHS is still actively harming our severely ill community members, it's helpful to hold a little hope and appreciation for the good people advancing ME/LC science and research.

www.youtube.com/watch?v=UFJP...

Thanks Linda T and all at OMF!
#18 Leading research, delivering hope: The Open Medicine Foundation’s mission with Linda Tannenbaum
YouTube video by Make Visible Podcast
www.youtube.com
July 31, 2025 at 10:48 AM