Jennie Jacques
@jenniejacques1.bsky.social
Help BOOST to achieve the goal
💥💙🩵 please 🙏
DONATE if you can &/or help spread the word! 👇⬇️
shorturl.at/x1Vyx
JUSTICE FOR M.E.
🔥 💪
#vikings let’s raid IGNORANCE & protect families from permanent disability or death from neglect of ME!
Great CHANGE is on the horizon!
💥💙🩵 please 🙏
DONATE if you can &/or help spread the word! 👇⬇️
shorturl.at/x1Vyx
JUSTICE FOR M.E.
🔥 💪
#vikings let’s raid IGNORANCE & protect families from permanent disability or death from neglect of ME!
Great CHANGE is on the horizon!
October 15, 2025 at 5:13 PM
Help BOOST to achieve the goal
💥💙🩵 please 🙏
DONATE if you can &/or help spread the word! 👇⬇️
shorturl.at/x1Vyx
JUSTICE FOR M.E.
🔥 💪
#vikings let’s raid IGNORANCE & protect families from permanent disability or death from neglect of ME!
Great CHANGE is on the horizon!
💥💙🩵 please 🙏
DONATE if you can &/or help spread the word! 👇⬇️
shorturl.at/x1Vyx
JUSTICE FOR M.E.
🔥 💪
#vikings let’s raid IGNORANCE & protect families from permanent disability or death from neglect of ME!
Great CHANGE is on the horizon!
Thank you 🙏 @georgemonbiot.bsky.social
Here’s an interview with George and @davetuller1.bsky.social to learn more…!
m.youtube.com/watch?v=SpLM...
Here’s an interview with George and @davetuller1.bsky.social to learn more…!
m.youtube.com/watch?v=SpLM...
October 9, 2025 at 11:45 AM
Thank you 🙏 @georgemonbiot.bsky.social
Here’s an interview with George and @davetuller1.bsky.social to learn more…!
m.youtube.com/watch?v=SpLM...
Here’s an interview with George and @davetuller1.bsky.social to learn more…!
m.youtube.com/watch?v=SpLM...
Reposted by Jennie Jacques
This new book by @cartoonkate.bsky.social is a breath-takingly beautiful thing: I'd go so far as to say a work of genius.
It's my privilege to be interviewing her about it at the East Gate Bookshop, Totnes on 23rd October. Please join us if you can:
www.totnespulse.co.uk/product/tick...
It's my privilege to be interviewing her about it at the East Gate Bookshop, Totnes on 23rd October. Please join us if you can:
www.totnespulse.co.uk/product/tick...
Ticket: Patchwork: A Graphic Biography of Jane Austen
Kate Evans is a writer, cartoonist, illustrator and studied English literature at the University of Sussex in Brighton. From 1995 to 1998 Evans dedicated herself to environmental activism, providing c...
www.totnespulse.co.uk
October 9, 2025 at 5:27 AM
This new book by @cartoonkate.bsky.social is a breath-takingly beautiful thing: I'd go so far as to say a work of genius.
It's my privilege to be interviewing her about it at the East Gate Bookshop, Totnes on 23rd October. Please join us if you can:
www.totnespulse.co.uk/product/tick...
It's my privilege to be interviewing her about it at the East Gate Bookshop, Totnes on 23rd October. Please join us if you can:
www.totnespulse.co.uk/product/tick...
Reposted by Jennie Jacques
Thank you so much for continuing to support us ME people with such clear, strong and compassionate reporting. I have been bedridden for 32 years, my daughter for 39 years. We have had no treatment offered, simply left to rot in our beds. We spent a lot of money on ‘alternative’ approaches, no help
October 8, 2025 at 11:23 AM
Thank you so much for continuing to support us ME people with such clear, strong and compassionate reporting. I have been bedridden for 32 years, my daughter for 39 years. We have had no treatment offered, simply left to rot in our beds. We spent a lot of money on ‘alternative’ approaches, no help
Reposted by Jennie Jacques
Thanks, George 🙏
For anyone interested, I wrote a thread about how Wessely was wrong about Gulf War Illness, Camelford Poisonings & ill health following 9/11 being psychogenic.
He also used harassment as a distraction from criticism during a talk on GWI.
threadreaderapp.com/thread/15273...
For anyone interested, I wrote a thread about how Wessely was wrong about Gulf War Illness, Camelford Poisonings & ill health following 9/11 being psychogenic.
He also used harassment as a distraction from criticism during a talk on GWI.
threadreaderapp.com/thread/15273...
Thread by @ABrokenBattery on Thread Reader App
@ABrokenBattery: 🧵Gulf War Syndrome & Simon Wessely "For 30 years they have been disowned, ignored and lied to by consecutive governments, with no positive answers to their questions about exposure to...
threadreaderapp.com
October 9, 2025 at 6:30 AM
Thanks, George 🙏
For anyone interested, I wrote a thread about how Wessely was wrong about Gulf War Illness, Camelford Poisonings & ill health following 9/11 being psychogenic.
He also used harassment as a distraction from criticism during a talk on GWI.
threadreaderapp.com/thread/15273...
For anyone interested, I wrote a thread about how Wessely was wrong about Gulf War Illness, Camelford Poisonings & ill health following 9/11 being psychogenic.
He also used harassment as a distraction from criticism during a talk on GWI.
threadreaderapp.com/thread/15273...
Reposted by Jennie Jacques
They desperately want to be able to work, to socialise, to experience all the other joys of life. But because the condition is so poorly understood, they have been repeatedly treated as if they were “malingerers” or “hysterics”. Which suits the government just fine.
October 8, 2025 at 6:11 AM
They desperately want to be able to work, to socialise, to experience all the other joys of life. But because the condition is so poorly understood, they have been repeatedly treated as if they were “malingerers” or “hysterics”. Which suits the government just fine.
Reposted by Jennie Jacques
In the firing line, as ever, are the UK’s hundreds of thousands of ME/CFS patients. As a practitioner once remarked, “the bastards don’t want to get better”. If there is one characteristic all the ME/CFS patients I’ve come across have in common, it is a desperation to get better.
October 8, 2025 at 6:10 AM
In the firing line, as ever, are the UK’s hundreds of thousands of ME/CFS patients. As a practitioner once remarked, “the bastards don’t want to get better”. If there is one characteristic all the ME/CFS patients I’ve come across have in common, it is a desperation to get better.
Reposted by Jennie Jacques
Like the Tories, the Labour government is trying to drive down the number of people who qualify for disability benefits by insisting there has been an epidemic of “overdiagnosis”: a favourite theme of the BBC and the junktanks of Tufton Street. Never mind the science: what outcome do we want?
October 8, 2025 at 6:10 AM
Like the Tories, the Labour government is trying to drive down the number of people who qualify for disability benefits by insisting there has been an epidemic of “overdiagnosis”: a favourite theme of the BBC and the junktanks of Tufton Street. Never mind the science: what outcome do we want?
Reposted by Jennie Jacques
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
October 8, 2025 at 6:09 AM
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Reposted by Jennie Jacques
Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...
Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour
Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...
www.benefitsandwork.co.uk
October 8, 2025 at 6:09 AM
Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...
Reposted by Jennie Jacques
The third NHS ME/cfs e-Learning module was published last week, shortly after #Justice4ME launched.
Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with?
learninghub.nhs.uk/Resource/712...
Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with?
learninghub.nhs.uk/Resource/712...
September 6, 2025 at 8:45 PM
The third NHS ME/cfs e-Learning module was published last week, shortly after #Justice4ME launched.
Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with?
learninghub.nhs.uk/Resource/712...
Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with?
learninghub.nhs.uk/Resource/712...
Reposted by Jennie Jacques
@ashleydaltonmp.bsky.social
Please note
Please note
Yes exactly. We all need access.
September 7, 2025 at 1:03 PM
@ashleydaltonmp.bsky.social
Please note
Please note
Let’s reached the 1st target 🎯 in the 1st weekend it’s been live?! 💪
💥 JUSTICE FOR ME 🤞
🌟 💫
shorturl.at/x1Vyx
I fully endorse this!
#meawareness
💥 JUSTICE FOR ME 🤞
🌟 💫
shorturl.at/x1Vyx
I fully endorse this!
#meawareness
August 31, 2025 at 6:21 PM
Let’s reached the 1st target 🎯 in the 1st weekend it’s been live?! 💪
💥 JUSTICE FOR ME 🤞
🌟 💫
shorturl.at/x1Vyx
I fully endorse this!
#meawareness
💥 JUSTICE FOR ME 🤞
🌟 💫
shorturl.at/x1Vyx
I fully endorse this!
#meawareness
Please donate to Justice For ME if you can and/or help spread the word;
shorturl.at/x1Vyx
#meawareness #Justice4ME
@swastrosarah.bsky.social 💙💪
shorturl.at/x1Vyx
#meawareness #Justice4ME
@swastrosarah.bsky.social 💙💪
August 29, 2025 at 8:16 PM
Please donate to Justice For ME if you can and/or help spread the word;
shorturl.at/x1Vyx
#meawareness #Justice4ME
@swastrosarah.bsky.social 💙💪
shorturl.at/x1Vyx
#meawareness #Justice4ME
@swastrosarah.bsky.social 💙💪
Reposted by Jennie Jacques
I am proud to endorse this initiative, with thanks to the very many people made unwell by medical neglect of #ME who never give up, no matter how difficult it is to continue.
This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2
This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2
www.crowdjustice.com
August 29, 2025 at 6:05 PM
I am proud to endorse this initiative, with thanks to the very many people made unwell by medical neglect of #ME who never give up, no matter how difficult it is to continue.
This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2
This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2
Reposted by Jennie Jacques
The inquest into how Maeve died from medical neglect of #ME/cfs in 2021 found in 2024 there are no Consultant doctors for ME anywhere in the UK. She became unable to wash her own hair; later unable to chew.
#MaeveInquest #PlanForME @ashleydaltonmp.bsky.social @rthonwesstreeting.bsky.social
2/2
#MaeveInquest #PlanForME @ashleydaltonmp.bsky.social @rthonwesstreeting.bsky.social
2/2
August 23, 2025 at 3:16 AM
The inquest into how Maeve died from medical neglect of #ME/cfs in 2021 found in 2024 there are no Consultant doctors for ME anywhere in the UK. She became unable to wash her own hair; later unable to chew.
#MaeveInquest #PlanForME @ashleydaltonmp.bsky.social @rthonwesstreeting.bsky.social
2/2
#MaeveInquest #PlanForME @ashleydaltonmp.bsky.social @rthonwesstreeting.bsky.social
2/2
Reposted by Jennie Jacques
www.youtube.com/watch?v=heJM... As Dr Whitely says in this interview, if there is no job in the NHS, there is no medical training. Without medical training, misdiagnosis and risky mistreatments are how the NHS is transformed into a sick service. Outstanding work from @jenniejacques1.bsky.social
1/2
1/2
Vikings Actress Jennie Jacques; Pelvic Venous Congestion Syndrome, Thoracic Outlet Syndrome and ME
YouTube video by The Monster In ME
www.youtube.com
August 23, 2025 at 3:16 AM
www.youtube.com/watch?v=heJM... As Dr Whitely says in this interview, if there is no job in the NHS, there is no medical training. Without medical training, misdiagnosis and risky mistreatments are how the NHS is transformed into a sick service. Outstanding work from @jenniejacques1.bsky.social
1/2
1/2
New Video on jenniejacques1 YouTube The Monster In ME.
Watch here ⬇️
m.youtube.com/watch?v=heJM...
Sharing in case it helps anyone else struggling to ask the right questions about their own health 💙🦋
#pelvicvenouscongestionsyndrome #thoracicoutletsyndrome
Watch here ⬇️
m.youtube.com/watch?v=heJM...
Sharing in case it helps anyone else struggling to ask the right questions about their own health 💙🦋
#pelvicvenouscongestionsyndrome #thoracicoutletsyndrome
August 22, 2025 at 5:42 PM
New Video on jenniejacques1 YouTube The Monster In ME.
Watch here ⬇️
m.youtube.com/watch?v=heJM...
Sharing in case it helps anyone else struggling to ask the right questions about their own health 💙🦋
#pelvicvenouscongestionsyndrome #thoracicoutletsyndrome
Watch here ⬇️
m.youtube.com/watch?v=heJM...
Sharing in case it helps anyone else struggling to ask the right questions about their own health 💙🦋
#pelvicvenouscongestionsyndrome #thoracicoutletsyndrome
Reposted by Jennie Jacques
Today is #SevereMEDay - a day to recognise and honour the people living with the most devastating forms of Myalgic Encephalomyelitis (ME).
We are deeply grateful to those with Severe ME who took part in the DecodeME study. Your contribution is vital.
We are deeply grateful to those with Severe ME who took part in the DecodeME study. Your contribution is vital.
August 8, 2025 at 11:18 AM
Today is #SevereMEDay - a day to recognise and honour the people living with the most devastating forms of Myalgic Encephalomyelitis (ME).
We are deeply grateful to those with Severe ME who took part in the DecodeME study. Your contribution is vital.
We are deeply grateful to those with Severe ME who took part in the DecodeME study. Your contribution is vital.
Reposted by Jennie Jacques
Clip: Reporting Scotland previews tonight’s The Seven, where Prof Chris Ponting from Edinburgh University will discuss new findings from the DecodeME study into MECFS.
August 6, 2025 at 5:52 PM
Clip: Reporting Scotland previews tonight’s The Seven, where Prof Chris Ponting from Edinburgh University will discuss new findings from the DecodeME study into MECFS.
Reposted by Jennie Jacques
The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx).
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
August 4, 2025 at 5:23 PM
The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx).
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
NEW video/interview with Dr Peter Rowe on Orthostatic Intolerance #meawareness #longcovid #pots #eds
WATCH here;
m.youtube.com/watch?v=qsJA...
Subscribe to YouTube Channel The Monster in ME - jenniejacques1 - more to come!
WATCH here;
m.youtube.com/watch?v=qsJA...
Subscribe to YouTube Channel The Monster in ME - jenniejacques1 - more to come!
January 22, 2025 at 2:40 PM
NEW video/interview with Dr Peter Rowe on Orthostatic Intolerance #meawareness #longcovid #pots #eds
WATCH here;
m.youtube.com/watch?v=qsJA...
Subscribe to YouTube Channel The Monster in ME - jenniejacques1 - more to come!
WATCH here;
m.youtube.com/watch?v=qsJA...
Subscribe to YouTube Channel The Monster in ME - jenniejacques1 - more to come!
Reposted by Jennie Jacques
November’s newsletter is now live on our website smileforme.org.uk/november2024
Includes this month’s share a story by @jenniejacques1.bsky.social. Thank you Jennie for sharing about your experience of ME and @bake4me.bsky.social as you launch The Wicked Christmas Bake Off in support of us 🩵
Includes this month’s share a story by @jenniejacques1.bsky.social. Thank you Jennie for sharing about your experience of ME and @bake4me.bsky.social as you launch The Wicked Christmas Bake Off in support of us 🩵
November 2024
Hello and welcome to November’s newsletter. Hope you have had the best month possible. Smiles 10 Smiles were sent to both ME sufferers and carers of all ages this month. All chosen and personalised…
smileforme.org.uk
November 30, 2024 at 4:09 PM
November’s newsletter is now live on our website smileforme.org.uk/november2024
Includes this month’s share a story by @jenniejacques1.bsky.social. Thank you Jennie for sharing about your experience of ME and @bake4me.bsky.social as you launch The Wicked Christmas Bake Off in support of us 🩵
Includes this month’s share a story by @jenniejacques1.bsky.social. Thank you Jennie for sharing about your experience of ME and @bake4me.bsky.social as you launch The Wicked Christmas Bake Off in support of us 🩵
Reposted by Jennie Jacques
A big thank you to everyone who joined in and supported @bake4me.bsky.social’s The Wicked Christmas Bake Off by @jenniejacques1.bsky.social
Congratulations to the star bakers ⭐️🩵
Congratulations to the star bakers ⭐️🩵
January 14, 2025 at 4:00 PM
A big thank you to everyone who joined in and supported @bake4me.bsky.social’s The Wicked Christmas Bake Off by @jenniejacques1.bsky.social
Congratulations to the star bakers ⭐️🩵
Congratulations to the star bakers ⭐️🩵