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Jennie Jacques @jenniejacques1.bsky.social · 1d

Thank you 🙏 @georgemonbiot.bsky.social

Here’s an interview with George and @davetuller1.bsky.social to learn more…!

m.youtube.com/watch?v=SpLM...

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George Monbiot @georgemonbiot.bsky.social · 1d

This new book by @cartoonkate.bsky.social is a breath-takingly beautiful thing: I'd go so far as to say a work of genius.

It's my privilege to be interviewing her about it at the East Gate Bookshop, Totnes on 23rd October. Please join us if you can:
www.totnespulse.co.uk/product/tick...

Ticket: Patchwork: A Graphic Biography of Jane Austen

Kate Evans is a writer, cartoonist, illustrator and studied English literature at the University of Sussex in Brighton. From 1995 to 1998 Evans dedicated herself to environmental activism, providing c...

www.totnespulse.co.uk

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Carole Bruce @cabruce.bsky.social · 2d

Thank you so much for continuing to support us ME people with such clear, strong and compassionate reporting. I have been bedridden for 32 years, my daughter for 39 years. We have had no treatment offered, simply left to rot in our beds. We spent a lot of money on ‘alternative’ approaches, no help

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Adam @abrokenbattery.bsky.social · 1d

Thanks, George 🙏

For anyone interested, I wrote a thread about how Wessely was wrong about Gulf War Illness, Camelford Poisonings & ill health following 9/11 being psychogenic.

He also used harassment as a distraction from criticism during a talk on GWI.

threadreaderapp.com/thread/15273...

Thread by @ABrokenBattery on Thread Reader App

@ABrokenBattery: 🧵Gulf War Syndrome & Simon Wessely "For 30 years they have been disowned, ignored and lied to by consecutive governments, with no positive answers to their questions about exposure to...

threadreaderapp.com

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George Monbiot @georgemonbiot.bsky.social · 2d

They desperately want to be able to work, to socialise, to experience all the other joys of life. But because the condition is so poorly understood, they have been repeatedly treated as if they were “malingerers” or “hysterics”. Which suits the government just fine.

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George Monbiot @georgemonbiot.bsky.social · 2d

In the firing line, as ever, are the UK’s hundreds of thousands of ME/CFS patients. As a practitioner once remarked, “the bastards don’t want to get better”. If there is one characteristic all the ME/CFS patients I’ve come across have in common, it is a desperation to get better.

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George Monbiot @georgemonbiot.bsky.social · 2d

Like the Tories, the Labour government is trying to drive down the number of people who qualify for disability benefits by insisting there has been an epidemic of “overdiagnosis”: a favourite theme of the BBC and the junktanks of Tufton Street. Never mind the science: what outcome do we want?

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George Monbiot @georgemonbiot.bsky.social · 2d

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome

Research could offer hope for ME patients – but some experts urge caution and say more studies needed

www.theguardian.com

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George Monbiot @georgemonbiot.bsky.social · 2d

Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...

Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour

Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...

www.benefitsandwork.co.uk

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sarah boothby @swastrosarah.bsky.social · Sep 6

The third NHS ME/cfs e-Learning module was published last week, shortly after #Justice4ME launched.
Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with?
learninghub.nhs.uk/Resource/712...

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sarah boothby @swastrosarah.bsky.social · Sep 7

@ashleydaltonmp.bsky.social
Please note

Katie As @katieas.bsky.social · Sep 7

Yes exactly. We all need access.

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Jennie Jacques @jenniejacques1.bsky.social · Aug 31

Let’s reached the 1st target 🎯 in the 1st weekend it’s been live?! 💪

💥 JUSTICE FOR ME 🤞

🌟 💫

shorturl.at/x1Vyx

I fully endorse this!

#meawareness

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Jennie Jacques @jenniejacques1.bsky.social · Aug 29

Please donate to Justice For ME if you can and/or help spread the word;

shorturl.at/x1Vyx

#meawareness #Justice4ME

@swastrosarah.bsky.social 💙💪

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sarah boothby @swastrosarah.bsky.social · Aug 29

I am proud to endorse this initiative, with thanks to the very many people made unwell by medical neglect of #ME who never give up, no matter how difficult it is to continue.
This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2

www.crowdjustice.com

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sarah boothby @swastrosarah.bsky.social · Aug 23

The inquest into how Maeve died from medical neglect of #ME/cfs in 2021 found in 2024 there are no Consultant doctors for ME anywhere in the UK. She became unable to wash her own hair; later unable to chew.
#MaeveInquest #PlanForME @ashleydaltonmp.bsky.social @rthonwesstreeting.bsky.social
2/2

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sarah boothby @swastrosarah.bsky.social · Aug 23

www.youtube.com/watch?v=heJM... As Dr Whitely says in this interview, if there is no job in the NHS, there is no medical training. Without medical training, misdiagnosis and risky mistreatments are how the NHS is transformed into a sick service. Outstanding work from @jenniejacques1.bsky.social
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Vikings Actress Jennie Jacques; Pelvic Venous Congestion Syndrome, Thoracic Outlet Syndrome and ME

YouTube video by The Monster In ME

www.youtube.com

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Jennie Jacques @jenniejacques1.bsky.social · Aug 22

New Video on jenniejacques1 YouTube The Monster In ME.

Watch here ⬇️

m.youtube.com/watch?v=heJM...

Sharing in case it helps anyone else struggling to ask the right questions about their own health 💙🦋

#pelvicvenouscongestionsyndrome #thoracicoutletsyndrome

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DecodeME @decodemestudy.bsky.social · Aug 8

Today is #SevereMEDay - a day to recognise and honour the people living with the most devastating forms of Myalgic Encephalomyelitis (ME).

We are deeply grateful to those with Severe ME who took part in the DecodeME study. Your contribution is vital.

Thank you to the thousands of people with Severe ME who have taken the time and energy to participate in DecodeME #SevereMEDay

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Jennie Jacques @jenniejacques1.bsky.social · Aug 6

Results 💥

@decodemestudy.bsky.social

www.decodeme.org.uk/initial-dna-...

Initial DecodeME DNA Results - DecodeME

06 August 2025 The DecodeME team is delighted to announce that the initial analysis of 15,579 DNA samples is complete, and we have important news to share. Main findings from our analysis Your genes ...

www.decodeme.org.uk

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Adam @abrokenbattery.bsky.social · Aug 6

Clip: Reporting Scotland previews tonight’s The Seven, where Prof Chris Ponting from Edinburgh University will discuss new findings from the DecodeME study into MECFS.

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DecodeME @decodemestudy.bsky.social · Aug 4

The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx).

We're letting you know the timing in advance so you can pace beforehand.

Thank you to our participants & supporters.

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Jennie Jacques @jenniejacques1.bsky.social · Jan 22

NEW video/interview with Dr Peter Rowe on Orthostatic Intolerance #meawareness #longcovid #pots #eds

WATCH here;

m.youtube.com/watch?v=qsJA...

Subscribe to YouTube Channel The Monster in ME - jenniejacques1 - more to come!

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Smile For ME @smileformeuk.bsky.social · Nov 30

November’s newsletter is now live on our website smileforme.org.uk/november2024

Includes this month’s share a story by @jenniejacques1.bsky.social. Thank you Jennie for sharing about your experience of ME and @bake4me.bsky.social as you launch The Wicked Christmas Bake Off in support of us 🩵

November 2024

Hello and welcome to November’s newsletter. Hope you have had the best month possible. Smiles 10 Smiles were sent to both ME sufferers and carers of all ages this month. All chosen and personalised…

smileforme.org.uk

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Smile For ME @smileformeuk.bsky.social · Jan 14

A big thank you to everyone who joined in and supported @bake4me.bsky.social’s The Wicked Christmas Bake Off by @jenniejacques1.bsky.social

Congratulations to the star bakers ⭐️🩵

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PolyBio Research Foundation @polybiorf.bsky.social · Nov 19

1/ Introducing PolyBio’s new interactive website module, where you can learn about our #LongCovid Research Consortium projects, technologies, and findings across international institutions:

polybio.org/consortium-p...

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