Katie As
@katieas.bsky.social
🏳️🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷
Reposted by Katie As
@paulaknight.bsky.social is completely bed bound. Slowly, she creates digital images that she sells as cards, stickers, clothing & phone cases on her Redbubble shop. Take a look & support a disabled artist this winter.
#Christmasgifts #disability #art #me/cfs #chronicillness #mecfs #digitalart
#Christmasgifts #disability #art #me/cfs #chronicillness #mecfs #digitalart
November 22, 2025 at 12:43 PM
@paulaknight.bsky.social is completely bed bound. Slowly, she creates digital images that she sells as cards, stickers, clothing & phone cases on her Redbubble shop. Take a look & support a disabled artist this winter.
#Christmasgifts #disability #art #me/cfs #chronicillness #mecfs #digitalart
#Christmasgifts #disability #art #me/cfs #chronicillness #mecfs #digitalart
Reposted by Katie As
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
November 21, 2025 at 12:28 PM
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
Reposted by Katie As
Reposted by Katie As
🚨Reminder🚨
Westminster Hall debate on
Government support for people with ME
is TODAY (19 Nov) at 4.30pm
Westminster Hall debate on
Government support for people with ME
is TODAY (19 Nov) at 4.30pm
Delighted that I’ve secured a debate in Parliament on ‘Government support for ME’ next Wednesday 19 November. This provides a valuable opportunity for MPs to share views - the first in years. I hope that many MPs will join me. Do encourage yours! #pwME
November 19, 2025 at 2:27 PM
🚨Reminder🚨
Westminster Hall debate on
Government support for people with ME
is TODAY (19 Nov) at 4.30pm
Westminster Hall debate on
Government support for people with ME
is TODAY (19 Nov) at 4.30pm
Reposted by Katie As
A huge thanks to the patients with severe ME who gave me permission to share their stories with @tessamunt.bsky.social and @joplatt.bsky.social this morning. Listen from around 8mins for section on severe ME.
And of course thanks to @karenhargraveuk.bsky.social for making the meeting happen 🙏🏽
And of course thanks to @karenhargraveuk.bsky.social for making the meeting happen 🙏🏽
November 19, 2025 at 8:35 PM
A huge thanks to the patients with severe ME who gave me permission to share their stories with @tessamunt.bsky.social and @joplatt.bsky.social this morning. Listen from around 8mins for section on severe ME.
And of course thanks to @karenhargraveuk.bsky.social for making the meeting happen 🙏🏽
And of course thanks to @karenhargraveuk.bsky.social for making the meeting happen 🙏🏽
Reposted by Katie As
I was working on this cartoon over the weekend, and then ths BACME group doc popped into my feed today with their implied ‘Exercise is Medicine’ model. Dear oh dear.
#ME #POTS #PEM #MCAS #LongCovid
bacme.info/wp-content/u...
#ME #POTS #PEM #MCAS #LongCovid
bacme.info/wp-content/u...
November 17, 2025 at 9:18 AM
I was working on this cartoon over the weekend, and then ths BACME group doc popped into my feed today with their implied ‘Exercise is Medicine’ model. Dear oh dear.
#ME #POTS #PEM #MCAS #LongCovid
bacme.info/wp-content/u...
#ME #POTS #PEM #MCAS #LongCovid
bacme.info/wp-content/u...
Reposted by Katie As
It was either at a Gibson Inquiry meeting or an APPG nearly twenty years ago that I attended where an MP was asked why (then) Canadian guidelines weren't being adopted in the UK.
The answer was 'because they're not British'.
The answer was 'because they're not British'.
November 19, 2025 at 11:02 AM
It was either at a Gibson Inquiry meeting or an APPG nearly twenty years ago that I attended where an MP was asked why (then) Canadian guidelines weren't being adopted in the UK.
The answer was 'because they're not British'.
The answer was 'because they're not British'.
Reposted by Katie As
#pwME Glad I attended the debate in person yesterday. None of the speakers captured the reality of DHSC/NHS 'care' for anyone with #ME in England @tessamunt.bsky.social.
Getting the FDP into shape is the latest version of DIY for ME & #LongCovid ie deliberate hot air from the Minister.
Justice4ME.uk
Getting the FDP into shape is the latest version of DIY for ME & #LongCovid ie deliberate hot air from the Minister.
Justice4ME.uk
Justice4ME.uk
November 20, 2025 at 8:21 AM
#pwME Glad I attended the debate in person yesterday. None of the speakers captured the reality of DHSC/NHS 'care' for anyone with #ME in England @tessamunt.bsky.social.
Getting the FDP into shape is the latest version of DIY for ME & #LongCovid ie deliberate hot air from the Minister.
Justice4ME.uk
Getting the FDP into shape is the latest version of DIY for ME & #LongCovid ie deliberate hot air from the Minister.
Justice4ME.uk
Reposted by Katie As
I heard a lot of this debate w tears of relief, but I’M SO SICK & TIRED of this polite term ’the stigma’
The BPSM was a pervasive horror show that KILLED some people, and continues to threaten us all
We’ve lived through psychiatric persecution - weasel words are not enough.
#ClassActionLawsuitNow
The BPSM was a pervasive horror show that KILLED some people, and continues to threaten us all
We’ve lived through psychiatric persecution - weasel words are not enough.
#ClassActionLawsuitNow
November 20, 2025 at 2:16 PM
I heard a lot of this debate w tears of relief, but I’M SO SICK & TIRED of this polite term ’the stigma’
The BPSM was a pervasive horror show that KILLED some people, and continues to threaten us all
We’ve lived through psychiatric persecution - weasel words are not enough.
#ClassActionLawsuitNow
The BPSM was a pervasive horror show that KILLED some people, and continues to threaten us all
We’ve lived through psychiatric persecution - weasel words are not enough.
#ClassActionLawsuitNow
Reposted by Katie As
New 'Resist' design available on Redbubble.
Resist with the tenacity of bindweed!
Available on most merch including wall art, stickers and t-shirts.
Sale on at the moment!
www.redbubble.com/i/t-shirt/Re...
#DisabledArtist #GiftIdeas #Illustration #Resist #Wildflowers
Resist with the tenacity of bindweed!
Available on most merch including wall art, stickers and t-shirts.
Sale on at the moment!
www.redbubble.com/i/t-shirt/Re...
#DisabledArtist #GiftIdeas #Illustration #Resist #Wildflowers
November 3, 2025 at 2:45 PM
New 'Resist' design available on Redbubble.
Resist with the tenacity of bindweed!
Available on most merch including wall art, stickers and t-shirts.
Sale on at the moment!
www.redbubble.com/i/t-shirt/Re...
#DisabledArtist #GiftIdeas #Illustration #Resist #Wildflowers
Resist with the tenacity of bindweed!
Available on most merch including wall art, stickers and t-shirts.
Sale on at the moment!
www.redbubble.com/i/t-shirt/Re...
#DisabledArtist #GiftIdeas #Illustration #Resist #Wildflowers
I've made a brief summary of the content of restricted (nhs/academic email holders) 3rd module "Managing Severe ME/ CFS" e-learning. It's rough and ready, I did it for a friend who needed the info to be confident to ask her CHC provider to do it. DM me on X or FB, or comment if it would be useful.
November 1, 2025 at 5:23 PM
I've made a brief summary of the content of restricted (nhs/academic email holders) 3rd module "Managing Severe ME/ CFS" e-learning. It's rough and ready, I did it for a friend who needed the info to be confident to ask her CHC provider to do it. DM me on X or FB, or comment if it would be useful.
Reposted by Katie As
DWP’s plans ‘in tatters’ as McFadden scraps white paper on further disability cuts
#DWP
@gmcdp.bsky.social @inclusionlondon.bsky.social @disrightsuk.bsky.social @dis-ppl-protest.bsky.social
www.disabilitynewsservice.com/dwps-plans-i...
#DWP
@gmcdp.bsky.social @inclusionlondon.bsky.social @disrightsuk.bsky.social @dis-ppl-protest.bsky.social
www.disabilitynewsservice.com/dwps-plans-i...
DWP’s plans ‘in tatters’ as McFadden scraps white paper on further disability cuts
Ministers have dumped plans for a major white paper containing a swathe of further cuts and reforms to disability benefits, following months of activism by disabled people and allies that forced th…
www.disabilitynewsservice.com
October 30, 2025 at 5:50 PM
DWP’s plans ‘in tatters’ as McFadden scraps white paper on further disability cuts
#DWP
@gmcdp.bsky.social @inclusionlondon.bsky.social @disrightsuk.bsky.social @dis-ppl-protest.bsky.social
www.disabilitynewsservice.com/dwps-plans-i...
#DWP
@gmcdp.bsky.social @inclusionlondon.bsky.social @disrightsuk.bsky.social @dis-ppl-protest.bsky.social
www.disabilitynewsservice.com/dwps-plans-i...
Reposted by Katie As
How do we love what we can't save — a planet, or a body?
I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis
I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis
Two Systems in Collapse
What illness can teach us about responding to climate change
jrehmeyer.substack.com
October 30, 2025 at 3:47 PM
How do we love what we can't save — a planet, or a body?
I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis
I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis
Reposted by Katie As
Reading between the #UKCovidInquiry lines, is Whitty saying that although *he* thinks Long Covid is a problem, "scientific consensus" does not, so he is not allowed to offer his "personal view" to the public?
Or has he changed his mind since he wrote that "short note"?
🤔🤔🤔
Or has he changed his mind since he wrote that "short note"?
🤔🤔🤔
October 20, 2025 at 2:53 PM
Reading between the #UKCovidInquiry lines, is Whitty saying that although *he* thinks Long Covid is a problem, "scientific consensus" does not, so he is not allowed to offer his "personal view" to the public?
Or has he changed his mind since he wrote that "short note"?
🤔🤔🤔
Or has he changed his mind since he wrote that "short note"?
🤔🤔🤔
To pwME- has anyone made a summary of the key good points made in the severe e-learning module? I have a copy of it, just don’t want to duplicate work already done. Thanks.
October 24, 2025 at 8:46 PM
To pwME- has anyone made a summary of the key good points made in the severe e-learning module? I have a copy of it, just don’t want to duplicate work already done. Thanks.
Reposted by Katie As
UK: "Over 14,000 people in England & Wales died with COVID after catching the virus in hospital"
Published: 6 Mar 2023
FOI data from the NHS (Mar 2020 – Aug 2022) shows:
14,047 patients died after catching COVID inside hospitals in England & Wales — and 69,337 more were infected after admission.
Published: 6 Mar 2023
FOI data from the NHS (Mar 2020 – Aug 2022) shows:
14,047 patients died after catching COVID inside hospitals in England & Wales — and 69,337 more were infected after admission.
October 15, 2025 at 12:09 AM
UK: "Over 14,000 people in England & Wales died with COVID after catching the virus in hospital"
Published: 6 Mar 2023
FOI data from the NHS (Mar 2020 – Aug 2022) shows:
14,047 patients died after catching COVID inside hospitals in England & Wales — and 69,337 more were infected after admission.
Published: 6 Mar 2023
FOI data from the NHS (Mar 2020 – Aug 2022) shows:
14,047 patients died after catching COVID inside hospitals in England & Wales — and 69,337 more were infected after admission.
Reposted by Katie As
1/
This data covers the period March 2020 – August 2022. In 2025, #NosocomialInfections of #COVID should not still be a concern for patients. But, shamefully, they still are -
This data covers the period March 2020 – August 2022. In 2025, #NosocomialInfections of #COVID should not still be a concern for patients. But, shamefully, they still are -
UK: "Over 14,000 people in England & Wales died with COVID after catching the virus in hospital"
Published: 6 Mar 2023
FOI data from the NHS (Mar 2020 – Aug 2022) shows:
14,047 patients died after catching COVID inside hospitals in England & Wales — and 69,337 more were infected after admission.
Published: 6 Mar 2023
FOI data from the NHS (Mar 2020 – Aug 2022) shows:
14,047 patients died after catching COVID inside hospitals in England & Wales — and 69,337 more were infected after admission.
October 16, 2025 at 12:52 PM
1/
This data covers the period March 2020 – August 2022. In 2025, #NosocomialInfections of #COVID should not still be a concern for patients. But, shamefully, they still are -
This data covers the period March 2020 – August 2022. In 2025, #NosocomialInfections of #COVID should not still be a concern for patients. But, shamefully, they still are -
I still want to know this. @georgemonbiot.bsky.social or does anyone else know? I feel like it would be useful to know.
George, have you seen anything about why the SMC was set up? Was it literally as a front to “disappear” ME, or was that just happy timing in a wider set of (presumably financial) interests?
October 15, 2025 at 10:51 AM
I still want to know this. @georgemonbiot.bsky.social or does anyone else know? I feel like it would be useful to know.
Reposted by Katie As
Dr Nigel Speight writes that ME families are still encountering charges of FII (Fabricated and Induced Illness) formerly called Munchhausen Syndrome by Proxy. In the UK he believes the current paediatric guidelines regarding FII need to be changed.
tinyurl.com/44c4zykd
tinyurl.com/44c4zykd
Current problems facing ME families in the UK
The commonest recurring problems ME families are encountering in the UK at present stem from current paediatric guidelines regarding FII. (Fabricated and Induced Illness) This was formerly called M…
tinyurl.com
October 15, 2025 at 10:20 AM
Dr Nigel Speight writes that ME families are still encountering charges of FII (Fabricated and Induced Illness) formerly called Munchhausen Syndrome by Proxy. In the UK he believes the current paediatric guidelines regarding FII need to be changed.
tinyurl.com/44c4zykd
tinyurl.com/44c4zykd
Reposted by Katie As
#neisvoid #me/cfs #longcovid folks, can anyone point to research on exercise post covid? I know 'six weeks rest' is the anecdotal suggestion, but are there any actual papers on this?
October 15, 2025 at 9:43 AM
#neisvoid #me/cfs #longcovid folks, can anyone point to research on exercise post covid? I know 'six weeks rest' is the anecdotal suggestion, but are there any actual papers on this?
Reposted by Katie As
Reposted by Katie As
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
October 8, 2025 at 6:09 AM
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Reposted by Katie As
A few days out from #UNGA80, I wanted to reflect on the session we took part in and the media responses since. Mount Sinai was one of the 150 organizations that signed the global pledge to advocate for healthy indoor air. The event itself featured four panels of speakers who
1/
1/
September 27, 2025 at 11:30 AM
A few days out from #UNGA80, I wanted to reflect on the session we took part in and the media responses since. Mount Sinai was one of the 150 organizations that signed the global pledge to advocate for healthy indoor air. The event itself featured four panels of speakers who
1/
1/
Reposted by Katie As
We are pleased to confirm that @sammiemc.bsky.social Founder & CEO, LCK, will give evidence to the UK COVID Inquiry on the morning of Wednesday 1st October.
covid19.public-inquiry.uk/hearings/chi...
covid19.public-inquiry.uk/hearings/chi...
Children and Young People (Module 8) - Public Hearings - UK Covid-19 Inquiry
The independent public inquiry to examine the Covid-19 pandemic in the UK
covid19.public-inquiry.uk
September 25, 2025 at 6:50 PM
We are pleased to confirm that @sammiemc.bsky.social Founder & CEO, LCK, will give evidence to the UK COVID Inquiry on the morning of Wednesday 1st October.
covid19.public-inquiry.uk/hearings/chi...
covid19.public-inquiry.uk/hearings/chi...
Reposted by Katie As
A legal challenge to force the UK government to fund specialist health services for ME/CFS has 20 hours to go. This seems like a good thing to support, for those who can afford to.
www.crowdjustice.com/case/justice...
www.crowdjustice.com/case/justice...
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
www.crowdjustice.com
September 27, 2025 at 9:19 PM
A legal challenge to force the UK government to fund specialist health services for ME/CFS has 20 hours to go. This seems like a good thing to support, for those who can afford to.
www.crowdjustice.com/case/justice...
www.crowdjustice.com/case/justice...