A huge thanks to the patients with severe ME who gave me permission to share their stories with @tessamunt.bsky.social and @joplatt.bsky.social this morning. Listen from around 8mins for section on severe ME.
And of course thanks to @karenhargraveuk.bsky.social for making the meeting happen 🙏🏽

It was either at a Gibson Inquiry meeting or an APPG nearly twenty years ago that I attended where an MP was asked why (then) Canadian guidelines weren't being adopted in the UK.

The answer was 'because they're not British'.

I heard a lot of this debate w tears of relief, but I’M SO SICK & TIRED of this polite term ’the stigma’

The BPSM was a pervasive horror show that KILLED some people, and continues to threaten us all

We’ve lived through psychiatric persecution - weasel words are not enough.
#ClassActionLawsuitNow

I haven’t set up the DMs yet here on Blue Sky

Reading between the #UKCovidInquiry lines, is Whitty saying that although *he* thinks Long Covid is a problem, "scientific consensus" does not, so he is not allowed to offer his "personal view" to the public?

Or has he changed his mind since he wrote that "short note"?

🤔🤔🤔

This came and went. No sign of anyone engaging with it or what happened. I saw the programme but have lost track and no energy to pursue. They assured me by email that severe patient voices and carers were included. Let’s hope so.

There are no words for the pain of this.

Thanks, I’m not sure if I have or not, but I’ll have a look later!

That makes sense. Thanks.

www.disabilitynewsservice.com/alarm-over-g...

The man leading that mental health review with SW was apparently connected to the police involvement in mental health crisis which triggered the successful #stopSIM campaign. That the GOV chose these people is shocking.

Thanks George. It’s mind blowing to have this illness and find ourselves swept up into this kind of stuff. Hard not to feel so powerless. Thanks for shining a light on it, and us.