Binita Kane
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
Pinned
Binita Kane
@binitakane.bsky.social
· May 14
A massive thank you to ActionForME and @longcovidsupport.bsky.social for inviting me to speak at today’s joint #LongCOVID and #ME All Party Parliament Group meeting, alongside Profs @daltmann.bsky.social @cgatist.bsky.social and David Strain.
Reposted by Binita Kane
Reminder!
Happening today at 8pm GMT.
It will be recorded if you cannot join the live session.
@binitakane.bsky.social
Happening today at 8pm GMT.
It will be recorded if you cannot join the live session.
@binitakane.bsky.social
1/ Episode 28: Long COVID Clinic Fireside Chat Series
⭐ Navigating the health-info minefield
📅 Wed 21 Jan
⏰ 20:00 UK time
🎥 YouTube Live
🔗 youtube.com/live/W3fKUyl...
#LongCOVID #MECFS
⭐ Navigating the health-info minefield
📅 Wed 21 Jan
⏰ 20:00 UK time
🎥 YouTube Live
🔗 youtube.com/live/W3fKUyl...
#LongCOVID #MECFS
January 21, 2026 at 9:35 AM
Reminder!
Happening today at 8pm GMT.
It will be recorded if you cannot join the live session.
@binitakane.bsky.social
Happening today at 8pm GMT.
It will be recorded if you cannot join the live session.
@binitakane.bsky.social
Reposted by Binita Kane
This from @nickbenton.bsky.social brings back memories of reading books in 10 min daily chunks when my ME symptoms were worse.
It’s brilliant seeing Nick starting his own blog after writing a guest piece for @thereforme.bsky.social last year. A recommended read!
open.substack.com/pub/theperso...
It’s brilliant seeing Nick starting his own blog after writing a guest piece for @thereforme.bsky.social last year. A recommended read!
open.substack.com/pub/theperso...
When the page went quiet
Reflections on reading before and after ME
open.substack.com
January 15, 2026 at 9:32 AM
This from @nickbenton.bsky.social brings back memories of reading books in 10 min daily chunks when my ME symptoms were worse.
It’s brilliant seeing Nick starting his own blog after writing a guest piece for @thereforme.bsky.social last year. A recommended read!
open.substack.com/pub/theperso...
It’s brilliant seeing Nick starting his own blog after writing a guest piece for @thereforme.bsky.social last year. A recommended read!
open.substack.com/pub/theperso...
Reposted by Binita Kane
It was not a super flu year and why I think government and NHS messaging was wrong and counterproductive - my latest post
christinapagel.substack.com/p/it-was-not...
christinapagel.substack.com/p/it-was-not...
It was not a super flu year
Update on flu and covid in England
christinapagel.substack.com
January 8, 2026 at 6:12 PM
It was not a super flu year and why I think government and NHS messaging was wrong and counterproductive - my latest post
christinapagel.substack.com/p/it-was-not...
christinapagel.substack.com/p/it-was-not...
Reposted by Binita Kane
Today James turns 39 🎈
It’s a hard day for us both, but also a time to think about how, despite the challenges, I’m so lucky to have had this wonderful man in my life for the past 12 years.
In lieu of gifts we’ve been raising money for Edinburgh University’s ME research 👨🔬
It’s a hard day for us both, but also a time to think about how, despite the challenges, I’m so lucky to have had this wonderful man in my life for the past 12 years.
In lieu of gifts we’ve been raising money for Edinburgh University’s ME research 👨🔬
December 26, 2025 at 10:05 AM
Today James turns 39 🎈
It’s a hard day for us both, but also a time to think about how, despite the challenges, I’m so lucky to have had this wonderful man in my life for the past 12 years.
In lieu of gifts we’ve been raising money for Edinburgh University’s ME research 👨🔬
It’s a hard day for us both, but also a time to think about how, despite the challenges, I’m so lucky to have had this wonderful man in my life for the past 12 years.
In lieu of gifts we’ve been raising money for Edinburgh University’s ME research 👨🔬
Reposted by Binita Kane
Hi! I've started a free Substack - The Personal ME - about myalgic encephalomyelitis (ME).
My first post is about my cognitive dysfunction - what it feels like and why explaining it can be maddening:
thepersonalme.substack.com/p/the-day-my...
If you enjoy it, please subscribe!
My first post is about my cognitive dysfunction - what it feels like and why explaining it can be maddening:
thepersonalme.substack.com/p/the-day-my...
If you enjoy it, please subscribe!
The day my brain shut down: my experience of ME cognitive dysfunction
Exploring the nebulous symptoms I've had for five years
thepersonalme.substack.com
December 20, 2025 at 11:09 AM
Hi! I've started a free Substack - The Personal ME - about myalgic encephalomyelitis (ME).
My first post is about my cognitive dysfunction - what it feels like and why explaining it can be maddening:
thepersonalme.substack.com/p/the-day-my...
If you enjoy it, please subscribe!
My first post is about my cognitive dysfunction - what it feels like and why explaining it can be maddening:
thepersonalme.substack.com/p/the-day-my...
If you enjoy it, please subscribe!
Reposted by Binita Kane
FLU is in the AIR
🇬🇧 schools
" We haven't done anything different. ...wash hands" 🤔
What lessons need learning from the pandemic?
Give every child
Every teacher
Family
Healthcare Workers
#CleanAirIndoors
#Ventilation
#AirFiltration
Wear a respirator
youtu.be/WxEssOeEsVk?...
🇬🇧 schools
" We haven't done anything different. ...wash hands" 🤔
What lessons need learning from the pandemic?
Give every child
Every teacher
Family
Healthcare Workers
#CleanAirIndoors
#Ventilation
#AirFiltration
Wear a respirator
youtu.be/WxEssOeEsVk?...
December 12, 2025 at 11:38 AM
FLU is in the AIR
🇬🇧 schools
" We haven't done anything different. ...wash hands" 🤔
What lessons need learning from the pandemic?
Give every child
Every teacher
Family
Healthcare Workers
#CleanAirIndoors
#Ventilation
#AirFiltration
Wear a respirator
youtu.be/WxEssOeEsVk?...
🇬🇧 schools
" We haven't done anything different. ...wash hands" 🤔
What lessons need learning from the pandemic?
Give every child
Every teacher
Family
Healthcare Workers
#CleanAirIndoors
#Ventilation
#AirFiltration
Wear a respirator
youtu.be/WxEssOeEsVk?...
Reposted by Binita Kane
BREAKING - @meassociation.org.uk awards £1.1million - its largest-ever research grant - to Prof @daltmann.bsky.social, Imperial College London, for landmark 3-year study to find shared pathways between #me/cfs and #LongCovid | 10 December 2025:
www.imperial.ac.uk/news/article...
www.imperial.ac.uk/news/article...
£1.1m awarded to investigate links between ME/CFS and Long Covid
A new landmark study funded by The ME Association will help scientists to uncover shared pathways between ME/CFS and Long Covid.
www.imperial.ac.uk
December 10, 2025 at 10:51 PM
BREAKING - @meassociation.org.uk awards £1.1million - its largest-ever research grant - to Prof @daltmann.bsky.social, Imperial College London, for landmark 3-year study to find shared pathways between #me/cfs and #LongCovid | 10 December 2025:
www.imperial.ac.uk/news/article...
www.imperial.ac.uk/news/article...
Reposted by Binita Kane
Brilliant article by Rebecca Thomas (the Independent): tinyurl.com/yksjxj5b
and Victoria Macdonald (Channel 4 News): tinyurl.com/3dn8mwx5
They've covered the 'formalin scandal' brilliantly.
#1/21
@channel4news.bsky.social
@the-independent.com
@vsmacdonald.bsky.social
@rebeccasmt.bsky.social
and Victoria Macdonald (Channel 4 News): tinyurl.com/3dn8mwx5
They've covered the 'formalin scandal' brilliantly.
#1/21
@channel4news.bsky.social
@the-independent.com
@vsmacdonald.bsky.social
@rebeccasmt.bsky.social
December 7, 2025 at 9:31 PM
Brilliant article by Rebecca Thomas (the Independent): tinyurl.com/yksjxj5b
and Victoria Macdonald (Channel 4 News): tinyurl.com/3dn8mwx5
They've covered the 'formalin scandal' brilliantly.
#1/21
@channel4news.bsky.social
@the-independent.com
@vsmacdonald.bsky.social
@rebeccasmt.bsky.social
and Victoria Macdonald (Channel 4 News): tinyurl.com/3dn8mwx5
They've covered the 'formalin scandal' brilliantly.
#1/21
@channel4news.bsky.social
@the-independent.com
@vsmacdonald.bsky.social
@rebeccasmt.bsky.social
Reposted by Binita Kane
The final main thing @binitakane.bsky.social and I discussed in our YouTube chat 👇 was appetite. We were running out of time so we whizzed through a couple of points, but in this latest blog, I provide some more info:
Appetite: lc-sc.co.uk/bodily-syste... 🧵
Appetite: lc-sc.co.uk/bodily-syste... 🧵
December 3, 2025 at 7:27 PM
The final main thing @binitakane.bsky.social and I discussed in our YouTube chat 👇 was appetite. We were running out of time so we whizzed through a couple of points, but in this latest blog, I provide some more info:
Appetite: lc-sc.co.uk/bodily-syste... 🧵
Appetite: lc-sc.co.uk/bodily-syste... 🧵
Reposted by Binita Kane
theredtreeandme.substack.com/p/red-leaves... Huge thanks to all the ME/CFS scientists & clinicians from around the world for the messages of hope given to #TheRedTreeandME for people with ME @chestercathedral.bsky.social @cgatist.bsky.social
Red Leaves and Messages of Hope @ Chester Cathedral
By Jo and Nick Greer
theredtreeandme.substack.com
November 27, 2025 at 11:35 PM
theredtreeandme.substack.com/p/red-leaves... Huge thanks to all the ME/CFS scientists & clinicians from around the world for the messages of hope given to #TheRedTreeandME for people with ME @chestercathedral.bsky.social @cgatist.bsky.social
Reposted by Binita Kane
“My NHS colleagues and I weren’t willing to let the bodies pile high in their thousands. Johnson no longer mentions them at all.”
Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com
observer.co.uk/news/...
Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com
observer.co.uk/news/...
November 23, 2025 at 9:40 AM
“My NHS colleagues and I weren’t willing to let the bodies pile high in their thousands. Johnson no longer mentions them at all.”
Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com
observer.co.uk/news/...
Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com
observer.co.uk/news/...
Reposted by Binita Kane
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
November 21, 2025 at 12:28 PM
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
Reposted by Binita Kane
Tessa Munt MP warns that two preventable death reports in just over a year highlight the dangers facing people with severe #MECFS. She spoke to @BinitaKane.bsky.social, who described a 25yr old student and multiple missed opportunities to stop her decline. This is not an isolated case.
November 20, 2025 at 4:49 PM
Tessa Munt MP warns that two preventable death reports in just over a year highlight the dangers facing people with severe #MECFS. She spoke to @BinitaKane.bsky.social, who described a 25yr old student and multiple missed opportunities to stop her decline. This is not an isolated case.
Reposted by Binita Kane
What Martin said. Independent SAGE were not cranks, not extremists, not over-reacting. #covidinquiry
1/ How does the COVID Inquiry's Module 2 report align with what we said in @independentsage.bsky.social at the time? A 🧵on Transparency, Early & Decisive Action, Scientific Advice, Integration of Social & Economic Harms, Communication and Behavioural Science, Governance, Data and Preparedness
November 20, 2025 at 5:24 PM
What Martin said. Independent SAGE were not cranks, not extremists, not over-reacting. #covidinquiry
Reposted by Binita Kane
1/ How does the COVID Inquiry's Module 2 report align with what we said in @independentsage.bsky.social at the time? A 🧵on Transparency, Early & Decisive Action, Scientific Advice, Integration of Social & Economic Harms, Communication and Behavioural Science, Governance, Data and Preparedness
November 20, 2025 at 4:43 PM
1/ How does the COVID Inquiry's Module 2 report align with what we said in @independentsage.bsky.social at the time? A 🧵on Transparency, Early & Decisive Action, Scientific Advice, Integration of Social & Economic Harms, Communication and Behavioural Science, Governance, Data and Preparedness
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Westminster Hall Debate on Support for People with ME/CFS - November 2025
YouTube video by Broken Battery
youtu.be
November 19, 2025 at 8:35 PM
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Reposted by Binita Kane
The third topic @binitakane.bsky.social and I discussed was episodes of low blood sugar patients often report, even though their home testing shows normal blood sugar, broken down more in this blog (as promised!):
Blood sugar regulation: lc-sc.co.uk/bodily-syste...
Blood sugar regulation: lc-sc.co.uk/bodily-syste...
November 17, 2025 at 8:54 PM
The third topic @binitakane.bsky.social and I discussed was episodes of low blood sugar patients often report, even though their home testing shows normal blood sugar, broken down more in this blog (as promised!):
Blood sugar regulation: lc-sc.co.uk/bodily-syste...
Blood sugar regulation: lc-sc.co.uk/bodily-syste...
Reposted by Binita Kane
Here’s what you won’t hear from some commentators on social media: in the year to October, London recorded 10,000 fewer violent crimes leading to injury than it did in the twelve months before I was elected.
More on the progress we’re making ⬇️ www.mirror.co.uk/news/politic...
More on the progress we’re making ⬇️ www.mirror.co.uk/news/politic...
'London is world's best city - people claiming it's lawless hate its success'
'The fact that London has again been crowned greatest city in the world disproves everything our critics claim, and they can’t stand it', the London Mayor Sadiq Khan writes
www.mirror.co.uk
November 16, 2025 at 1:17 PM
Here’s what you won’t hear from some commentators on social media: in the year to October, London recorded 10,000 fewer violent crimes leading to injury than it did in the twelve months before I was elected.
More on the progress we’re making ⬇️ www.mirror.co.uk/news/politic...
More on the progress we’re making ⬇️ www.mirror.co.uk/news/politic...
Reposted by Binita Kane
The 2nd thing @binitakane.bsky.social & I discussed was thirst. We barely scratched the surface of this fascinating appetite, explained more in this blog:
lc-sc.co.uk/bodily-syste...
Including:
Blood volume
Prostaglandins
Acetylcholine
Mast cells
Dopamine
Glutamate & other neurotransmitters 🧵
lc-sc.co.uk/bodily-syste...
Including:
Blood volume
Prostaglandins
Acetylcholine
Mast cells
Dopamine
Glutamate & other neurotransmitters 🧵
November 13, 2025 at 9:01 PM
The 2nd thing @binitakane.bsky.social & I discussed was thirst. We barely scratched the surface of this fascinating appetite, explained more in this blog:
lc-sc.co.uk/bodily-syste...
Including:
Blood volume
Prostaglandins
Acetylcholine
Mast cells
Dopamine
Glutamate & other neurotransmitters 🧵
lc-sc.co.uk/bodily-syste...
Including:
Blood volume
Prostaglandins
Acetylcholine
Mast cells
Dopamine
Glutamate & other neurotransmitters 🧵
Reposted by Binita Kane
🚨 NEXT WEDNESDAY 19 NOVEMBER
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
November 13, 2025 at 9:48 AM
🚨 NEXT WEDNESDAY 19 NOVEMBER
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
Thank you Harriett! This is so helpful ⬇️
Latest blog: I promised I'd write some blogs to break down our discussion (www.youtube.com/live/Ar0X_N3...) & go over things we didnt get through. The first thing we discussed was body water & hydration issues esp in POTS:
Body water regulation
lc-sc.co.uk/bodily-syste...
@binitakane.bsky.social
Body water regulation
lc-sc.co.uk/bodily-syste...
@binitakane.bsky.social
November 12, 2025 at 1:57 PM
Thank you Harriett! This is so helpful ⬇️
Reposted by Binita Kane
USA Photo of the year
November 7, 2025 at 3:45 PM
USA Photo of the year
Reposted by Binita Kane
Happy World Ventil8 Day @profstevegriffin.bsky.social
@sunny-rae1.bsky.social @binitakane.bsky.social
✅ #CleanAirEverywhere
✅ #MakeHopeNormalAgain
@sunny-rae1.bsky.social @binitakane.bsky.social
✅ #CleanAirEverywhere
✅ #MakeHopeNormalAgain
November 8, 2025 at 2:59 PM
Happy World Ventil8 Day @profstevegriffin.bsky.social
@sunny-rae1.bsky.social @binitakane.bsky.social
✅ #CleanAirEverywhere
✅ #MakeHopeNormalAgain
@sunny-rae1.bsky.social @binitakane.bsky.social
✅ #CleanAirEverywhere
✅ #MakeHopeNormalAgain
Reposted by Binita Kane
Exulansis -the moment you simply give up trying to explain the in‑between.
📖 This article gives voice to the silent struggle of families living with #LongCovid, where recognition, care and empathy often fail them.
www.longcovidadvoc.com/post/exulans...
📖 This article gives voice to the silent struggle of families living with #LongCovid, where recognition, care and empathy often fail them.
www.longcovidadvoc.com/post/exulans...
Exulansis - The Gulf of Understanding
An Ongoing Battle for Adequate Treatment and Care: The Impact of Long Covid on Families' by Marianne Lynch.
www.longcovidadvoc.com
November 8, 2025 at 3:41 PM
Exulansis -the moment you simply give up trying to explain the in‑between.
📖 This article gives voice to the silent struggle of families living with #LongCovid, where recognition, care and empathy often fail them.
www.longcovidadvoc.com/post/exulans...
📖 This article gives voice to the silent struggle of families living with #LongCovid, where recognition, care and empathy often fail them.
www.longcovidadvoc.com/post/exulans...
Reposted by Binita Kane
When I was first elected, evidence showed it would take 193 years to bring London's air pollution within legal limits.
Due to our policies, we've done it in 9.
In Brazil this week, we showed that cities are giving the world reason to hope when it comes to tackling the climate emergency.
Due to our policies, we've done it in 9.
In Brazil this week, we showed that cities are giving the world reason to hope when it comes to tackling the climate emergency.
November 8, 2025 at 9:09 AM
When I was first elected, evidence showed it would take 193 years to bring London's air pollution within legal limits.
Due to our policies, we've done it in 9.
In Brazil this week, we showed that cities are giving the world reason to hope when it comes to tackling the climate emergency.
Due to our policies, we've done it in 9.
In Brazil this week, we showed that cities are giving the world reason to hope when it comes to tackling the climate emergency.