Carole Bruce
banner
cabruce.bsky.social
Carole Bruce
@cabruce.bsky.social
Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Pinned
#ME is a violent, turbulent condition. Words like brain fog, tiredness, aching, mood disturbance, interrupted sleep patterns, do not begin to describe the turmoil of #MECFS bodies. It’s like being attacked by a malevolent being, often for decades and without help or understanding.
Reposted by Carole Bruce
I wish I didn’t have to share this. But the BBC has decided to censor my first Reith Lecture.

They deleted the line in which I describe Donald Trump as “the most openly corrupt president in American history.” /1
November 25, 2025 at 9:26 AM
Huge congratulations @catherinehale.bsky.social such an important and useful article on ELC especially for #ME and #LongCovid patients.
So excited to share our new article on energy limiting conditions (ELC) and energy impairment in @ijdsj.bsky.social with Anna Ruddock and Ana Be. Open access www.scienceopen.com/hosted-docum...
It discusses the emancipatory research process that gave rise to these terms >>
November 24, 2025 at 9:51 AM
Hansard for the Westminster Hall debate yesterday on #ME
hansard.parliament.uk/commons/2025...
Myalgic Encephalomyelitis - Hansard - UK Parliament
Hansard record of the item : 'Myalgic Encephalomyelitis' on Wednesday 19 November 2025.
hansard.parliament.uk
November 20, 2025 at 12:59 PM
Just digesting the Westminster Hall debate:
Government support for people with myalgic encephalomyelitis #ME #pwME
Many, many thanks to @tessamunt (Wells and Mendip Hills, Liberal Democrat) for setting up the debate.
Tears here, hearing our stories spelled out.
Thoughts?
November 19, 2025 at 5:35 PM
Reposted by Carole Bruce
📺 Westminster Hall Debate on ME today at 16:30

#ThereForMP @tessamunt.bsky.social will be leading the debate today focused on government support for #PwME

You can tune in here 👇

www.parliamentlive.tv/Event/Index/...
Parliamentlive.tv
Westminster Hall
www.parliamentlive.tv
November 19, 2025 at 3:27 PM
Reposted by Carole Bruce
I had a great conversation with the wonderful @zackpolanski.bsky.social on his podcast. Do please listen in. I don't think you'll have heard anything quite like it. And there's a LOT more here than the title suggests. podcasts.apple.com/gb/podcast/h...
How Labour Negate Progressive Ideas Through ‘Divide and Rule’ | George Monbiot | Zack Polanski
Podcast Episode · Bold Politics with Zack Polanski · 19/11/2025 · 40m
podcasts.apple.com
November 19, 2025 at 10:14 AM
Reposted by Carole Bruce
Have been thinking about “immigration has been tearing this country apart.” Surely I’m not the only person to think that it isn’t true, but inflamed rhetoric about immigration by politicians is what is tearing this country apart and so statements like that only makes it worse.
November 18, 2025 at 6:37 AM
Just to say how much I love and appreciate every one of the #ME brigade that post on here. Some can only watch and that’s ok, some have valuable information and that’s ok, some are scared and that’s ok, all of us understand and care and dare to hope for better days to come. 💙
November 17, 2025 at 12:34 PM
Reposted by Carole Bruce
Labour MP Simon Opher - "We should stop the boats because it's dangerous, and we should stop the scapegoating of immigrants because it's wrong and cruel.

"Measures that create bureaucracy and insecurity do not offer clarity or strengthen control – they cost money, waste time and weaken the system."
November 17, 2025 at 11:20 AM
Reposted by Carole Bruce
"If you're not careful, the newspapers will have you hating the people who are being oppressed and loving the people who are doing the oppressing." Malcolm X.
www.theguardian.com/commentisfre...
Dark forces are preventing us fighting the climate crisis – by taking knowledge hostage | George Monbiot
The fundamental problem is this: that most of the means of communication are owned or influenced by the very rich, says Guardian columnist George Monbiot
www.theguardian.com
November 16, 2025 at 10:41 AM
Reposted by Carole Bruce
Climate breakdown is driven by a storm of lies. This lying is systemic, funded and coordinated, and operates across almost all media, old and new.
This week's column argues that we cannot fight the climate crisis without also fighting the epistemic crisis.
www.theguardian.com/commentisfre...
Dark forces are preventing us fighting the climate crisis – by taking knowledge hostage | George Monbiot
The fundamental problem is this: that most of the means of communication are owned or influenced by the very rich, says Guardian columnist George Monbiot
www.theguardian.com
November 14, 2025 at 6:47 AM
Reposted by Carole Bruce
"Zealously Pro Palestinian party"

Genocide is bad actually.
November 11, 2025 at 8:28 AM
Reposted by Carole Bruce
Let's stop subsidising destruction.

This Govenrment need to stop standing on the side of polluters and instead tackle the cost of living crisis.

Some of my thoughts on COP 30 👇🏼

bestforbritain.substack.com/p/cop30-must...
COP30 must confront the climate and cost of living crises together
By Zack Polanski
bestforbritain.substack.com
November 10, 2025 at 10:17 AM
Reposted by Carole Bruce
This was a diagram illustrating a piece I wrote in @prospectmagazine.co.uk in January 2024. Some faces have since changed but you get the general gist …
November 10, 2025 at 10:44 AM
Reposted by Carole Bruce
What you’re witnessing is a populist assault on the BBC.

This is not an institutional scandal in any meaningful sense of the word. It is an attack on public service broadcasting.

iandunt.substack.com/p/extra-edit...
November 10, 2025 at 10:52 AM
Wise words in these turbulent times. Wise words for any time.
Rainer Maria Rilka. Austrian 1875-1926.
November 10, 2025 at 10:28 AM
Reposted by Carole Bruce
After a number of requests I’ve made all of the TV clips on my YouTube channel public. They’re now searchable on and will appear on my homepage and in the videos tab.

youtube.com/@brokenbattery
Broken Battery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
youtube.com
November 6, 2025 at 7:28 PM
Reposted by Carole Bruce
1. The approach of mainstream Democrats is summed up in this astonishing February advice from the Democratic strategist James Carville:
“Roll over and play dead. Allow the Republicans to crumble beneath their own weight and make the American people miss us.”
www.nytimes.com/2025/02/25/o...
🧵
Opinion | James Carville: It’s Time for a Daring Political Maneuver, Democrats
www.nytimes.com
November 6, 2025 at 7:12 AM
💔
November 6, 2025 at 2:01 PM
Reposted by Carole Bruce
📢 Exciting news!

Today, we are proud to launch the Overlapping Illness Alliance, a coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions.
November 4, 2025 at 1:01 PM
Reposted by Carole Bruce
The Big Survey is now live!

It has been such a privilege to get to work on this with such a wonderful, inspiring team at @actionforme.bsky.social, including our brilliant Patient and Public Involvement Group, made up of people with lived experience of ME and Long Covid.
Our 2025 Big Survey is now open! 🎉

For more information, our FAQs, and to take part, head to our web page: www.actionforme.org.uk/research-campaigns/our-research-work/big-survey/

Thank you for supporting our research💙

🤝in collaboration with
@durhamimh.bsky.social @kacheston.bsky.social
October 13, 2025 at 10:30 AM
Reposted by Carole Bruce
We've just launched the first large, site-less (home, direct to participant) randomized trial for treatment of #LongCovid, testing tirzepatide (a GLP-1 drug) vs placebo. Please help spread the word
www.scripps.edu/news-and-eve...
Scripps Research scientists launch new digital clinical trial to test repurposed drug for long COVID symptom relief
www.scripps.edu
October 31, 2025 at 5:07 PM
The fact that they belittle @zackpolanski.bsky.social and the Green Party surge just shows, I’m afraid, how out of touch mainstream politicians and media are with the longing for radical change and honesty that so many of us of all ages feel.
Labour grandee Harriet Harman has compared Zack Polanski to Nigel Farage, sparking a sarcastic reaction from the Green leader
Zack Polanski reacts as Labour grandee compares him to Nigel Farage
www.thenational.scot
October 29, 2025 at 12:23 PM
Reposted by Carole Bruce
The Spectator and others have chosen (deliberately I suspect) to interpret this article as a desire to stop a future Reform UK government from legislating. My purpose is to stop *any* government crushing our fundamental rights. It’s just more urgent now. 🧵 www.theguardian.com/commentisfre...
We must act now: without a written constitution, Reform UK will have carte blanche to toxify our nation | Goerge Monbiot
It means breaking with hundreds of years of tradition, but it can’t wait. As hard-right figures spread division and laud autocrats, a fail-safe is vital, says Guardian columnist George Monbiot
www.theguardian.com
October 28, 2025 at 8:21 AM