Carole Bruce
@cabruce.bsky.social
Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Does anyone know what is happening with #justice4ME ? I remember donating as did many other #pwME but haven’t heard since. It might be useful in the case of Savannah. #ME
January 24, 2026 at 5:47 PM
Does anyone know what is happening with #justice4ME ? I remember donating as did many other #pwME but haven’t heard since. It might be useful in the case of Savannah. #ME
This seems to be irrefutable evidence just how invested Wessley is in not wanting the truth to come out and the whole #ME world to move forward. He was at the forefront of the Royal Colleges withdrawing support for the new NICE guidelines I believe.
January 19, 2026 at 9:43 AM
This seems to be irrefutable evidence just how invested Wessley is in not wanting the truth to come out and the whole #ME world to move forward. He was at the forefront of the Royal Colleges withdrawing support for the new NICE guidelines I believe.
So very true. Key word is ‘warning’. They are using it as a blueprint at the moment.
January 11, 2026 at 1:12 PM
So very true. Key word is ‘warning’. They are using it as a blueprint at the moment.
‘Beautiful Woman Catching A Foolish Man’
From a copy of Der Welsche Gast by Thomasin von Zerclaere 1256 AD.
Could be useful today! Huge nets!
From a copy of Der Welsche Gast by Thomasin von Zerclaere 1256 AD.
Could be useful today! Huge nets!
January 8, 2026 at 11:27 AM
‘Beautiful Woman Catching A Foolish Man’
From a copy of Der Welsche Gast by Thomasin von Zerclaere 1256 AD.
Could be useful today! Huge nets!
From a copy of Der Welsche Gast by Thomasin von Zerclaere 1256 AD.
Could be useful today! Huge nets!
It’s Twelfth Night. A time for festivities marking the end of the 12 days of Christmas, the transition from midwinter to new year: parties, rituals, and wassailing to waken the trees.
Perhaps there could also be festivities to awaken people with #ME from this hellish illness?
Perhaps there could also be festivities to awaken people with #ME from this hellish illness?
January 5, 2026 at 1:07 PM
It’s Twelfth Night. A time for festivities marking the end of the 12 days of Christmas, the transition from midwinter to new year: parties, rituals, and wassailing to waken the trees.
Perhaps there could also be festivities to awaken people with #ME from this hellish illness?
Perhaps there could also be festivities to awaken people with #ME from this hellish illness?
I know that too many people are wishing that things were different, especially now on Christmas Day, but I hope you find even a tiny moment of peace and love today and much more in the future ❤️
December 25, 2025 at 10:36 AM
I know that too many people are wishing that things were different, especially now on Christmas Day, but I hope you find even a tiny moment of peace and love today and much more in the future ❤️
#ME people. Do ask your MP to attend this if at all possible.
@simonforstroud.bsky.social any chance you might be free?
@simonforstroud.bsky.social any chance you might be free?
December 5, 2025 at 9:34 AM
#ME people. Do ask your MP to attend this if at all possible.
@simonforstroud.bsky.social any chance you might be free?
@simonforstroud.bsky.social any chance you might be free?
Wise words in these turbulent times. Wise words for any time.
Rainer Maria Rilka. Austrian 1875-1926.
Rainer Maria Rilka. Austrian 1875-1926.
November 10, 2025 at 10:28 AM
Wise words in these turbulent times. Wise words for any time.
Rainer Maria Rilka. Austrian 1875-1926.
Rainer Maria Rilka. Austrian 1875-1926.
This is the loveliest book. Cloth bound with words and drawings that are so healing. An antidote to so much of the horror of the world. 💛
@robgmacfarlane.bsky.social
@robgmacfarlane.bsky.social
October 25, 2025 at 9:20 AM
This is the loveliest book. Cloth bound with words and drawings that are so healing. An antidote to so much of the horror of the world. 💛
@robgmacfarlane.bsky.social
@robgmacfarlane.bsky.social
#ME Installation in front of the Ministry of Research, Berlin.
Body bags depicting the unseen, imprisoned lives in the tiniest, darkest spaces in which ME patients live their half lives.
Also a memorial for those that have died from this appallingly neglected illness.
Body bags depicting the unseen, imprisoned lives in the tiniest, darkest spaces in which ME patients live their half lives.
Also a memorial for those that have died from this appallingly neglected illness.
October 16, 2025 at 10:49 AM
#ME Installation in front of the Ministry of Research, Berlin.
Body bags depicting the unseen, imprisoned lives in the tiniest, darkest spaces in which ME patients live their half lives.
Also a memorial for those that have died from this appallingly neglected illness.
Body bags depicting the unseen, imprisoned lives in the tiniest, darkest spaces in which ME patients live their half lives.
Also a memorial for those that have died from this appallingly neglected illness.
@simonforstroud.bsky.social I and a lot of fellow sufferers from severe #ME bedbound etc, would be so grateful if you could find the time to attend this APPGME and add your first hand knowledge and expertise to this urgent situation.
September 3, 2025 at 7:41 AM
@simonforstroud.bsky.social I and a lot of fellow sufferers from severe #ME bedbound etc, would be so grateful if you could find the time to attend this APPGME and add your first hand knowledge and expertise to this urgent situation.
Printed tee shirts, totes etc all profits to Medical Aid for Palestinians, The Hands Up Project & 4 Gazan writers.
Poems by @ZaffarKunial & others
rwag.teemill.com
Poems by @ZaffarKunial & others
rwag.teemill.com
August 29, 2025 at 11:59 AM
Printed tee shirts, totes etc all profits to Medical Aid for Palestinians, The Hands Up Project & 4 Gazan writers.
Poems by @ZaffarKunial & others
rwag.teemill.com
Poems by @ZaffarKunial & others
rwag.teemill.com
If you’re a newly qualified #GP take some time to study everything you can about #ME (ME/CFS) including new research from @DecodeMEstudy There are very few ME aware Drs in the UK and no consultants at all. It’s a yawning gap that needs filling for over 400,000 patients plus many #LongCovid patients
August 12, 2025 at 8:59 AM
If you’re a newly qualified #GP take some time to study everything you can about #ME (ME/CFS) including new research from @DecodeMEstudy There are very few ME aware Drs in the UK and no consultants at all. It’s a yawning gap that needs filling for over 400,000 patients plus many #LongCovid patients
Alice Oswald, pacifist, mother, poet was arrested today for supporting Palestine Action.
Such courage, as our politicians hide indoors under their meaningless soundbites.
Such courage, as our politicians hide indoors under their meaningless soundbites.
August 10, 2025 at 9:06 AM
Alice Oswald, pacifist, mother, poet was arrested today for supporting Palestine Action.
Such courage, as our politicians hide indoors under their meaningless soundbites.
Such courage, as our politicians hide indoors under their meaningless soundbites.
This is a terrorist?
What a shameful day.
A few hundred MPs voted that this would be a good idea.
It wasn’t in the government’s manifesto that they would blindly support Israel whatever they do regardless of human rights or common humanity.
This is the end of Labour.
What a shameful day.
A few hundred MPs voted that this would be a good idea.
It wasn’t in the government’s manifesto that they would blindly support Israel whatever they do regardless of human rights or common humanity.
This is the end of Labour.
August 10, 2025 at 6:55 AM
This is a terrorist?
What a shameful day.
A few hundred MPs voted that this would be a good idea.
It wasn’t in the government’s manifesto that they would blindly support Israel whatever they do regardless of human rights or common humanity.
This is the end of Labour.
What a shameful day.
A few hundred MPs voted that this would be a good idea.
It wasn’t in the government’s manifesto that they would blindly support Israel whatever they do regardless of human rights or common humanity.
This is the end of Labour.
This has been my lived reality for 32 years in this one room. Severe #ME. No treatment because there has been no serious research funding. The psych/behavioural lobby make sure of this despite ample proof of physiological damage. How many more generations will live in dark rooms alone and ignored?
August 8, 2025 at 6:05 AM
This has been my lived reality for 32 years in this one room. Severe #ME. No treatment because there has been no serious research funding. The psych/behavioural lobby make sure of this despite ample proof of physiological damage. How many more generations will live in dark rooms alone and ignored?
From Sarah Boothby, Maeve’s mother “please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.”
@swiftsandswallows.bsky.social has been arrested.
#ME
@swiftsandswallows.bsky.social has been arrested.
#ME
July 31, 2025 at 9:55 AM
From Sarah Boothby, Maeve’s mother “please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.”
@swiftsandswallows.bsky.social has been arrested.
#ME
@swiftsandswallows.bsky.social has been arrested.
#ME
More from @Bridget_OShea, who died last week, on Substack in 2023. I wish, so much, that those who hamper real research and education about #ME would acknowledge that they are responsible for an ever growing list of deaths from the illness.
July 21, 2025 at 6:27 AM
More from @Bridget_OShea, who died last week, on Substack in 2023. I wish, so much, that those who hamper real research and education about #ME would acknowledge that they are responsible for an ever growing list of deaths from the illness.
Being an #ME patient of all levels of severity is like screaming under water until we drown and still we are not recognised. There are millions of us screaming at huge detriment to our slivers of health. No response…ever.
July 20, 2025 at 9:52 AM
Being an #ME patient of all levels of severity is like screaming under water until we drown and still we are not recognised. There are millions of us screaming at huge detriment to our slivers of health. No response…ever.
This arrived today. Poems by Palestinians.
A publishing initiative by Alice Oswald, Robert Macfarlane, Zaffar Kunial and Max Porter. (My favourite poets and writers)
A poem by 17 year old Saleh in Gaza.
A publishing initiative by Alice Oswald, Robert Macfarlane, Zaffar Kunial and Max Porter. (My favourite poets and writers)
A poem by 17 year old Saleh in Gaza.
July 16, 2025 at 11:00 AM
This arrived today. Poems by Palestinians.
A publishing initiative by Alice Oswald, Robert Macfarlane, Zaffar Kunial and Max Porter. (My favourite poets and writers)
A poem by 17 year old Saleh in Gaza.
A publishing initiative by Alice Oswald, Robert Macfarlane, Zaffar Kunial and Max Porter. (My favourite poets and writers)
A poem by 17 year old Saleh in Gaza.
