Bo Bigelow
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bobigelow.bsky.social
Bo Bigelow
@bobigelow.bsky.social
usp7.org. Rare-disease guy. PopOut founder. Portland, Maine.
On my latest ep of the pod: why are IEP meetings so hard? And what happened for the first time at our last one for Tess? Click to listen. www.portlandrootsmedia.com/strongerpodc...
SED 540: A New Kind of IEP — Portland Roots Media
Today I'm gonna tell you about Tess's most recent IEP meeting and something we talked about for the first time in her education.
www.portlandrootsmedia.com
May 21, 2025 at 11:18 AM
After months of work, PopOut is finally live in the App Store.

If you're in Southern Maine and you’ve ever wanted more connection in your life (or know someone who does), I’d love for you to check it out. Thanks! #maine
apps.apple.com/us/app/popou...
‎PopOut - Build Community
‎PopOut lets men plan or join casual hangouts to spark face-to-face connection. Want to see your friends more often—or make new ones? PopOut helps you find or create low-key hangouts—like a walk, a d...
apps.apple.com
May 11, 2025 at 4:57 PM
On my most recent podcast episode: talking a bit more about hoops and what it means to Tess.

www.portlandrootsmedia.com/strongerpodc...
SED 533: Zero Turnovers — Portland Roots Media
Today we're talking a bit more about basketball and what it means to Tess.
www.portlandrootsmedia.com
April 8, 2025 at 7:56 PM
More patients found! Not one but TWO groundbreaking scientific projects underway! In this ep I'll be giving you an update on some of the thrilling developments of our foundation in our quest for a cure for Tess and the other patients.
www.portlandrootsmedia.com/strongerpodc...
SED 531: This Will Be Our Year — Portland Roots Media
Today I'll be giving you an update on some of the thrilling developments of our foundation in our quest for a cure for Tess and the other patients.
www.portlandrootsmedia.com
March 25, 2025 at 11:43 PM
Men in Greater Portland, ME: Ditch the swiping—meet up in real life. Join our beta test for casual hangouts. Sign up in 1 minute here: forms.gle/xWY9a5wnX2G7... #maine
February 6, 2025 at 1:42 PM
Next popout is TOMORROW Friday 1/10 in the Forest City! Click here to get full details: bit.ly/popoutsocial
#maine #maineevents
January 9, 2025 at 5:08 PM
Men of Portland, Maine: our launch of PopOut is only a few weeks away! Are you signed up to get notified of pre-launch popouts? There's a pretty excellent one this coming Friday 1/10. Don't miss out--click here to get details: www.popoutapp.com #maine #portlandme #maineevents
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www.popoutapp.com
January 8, 2025 at 4:26 PM
What happens when a medical professional dismisses your concerns about your child’s health? How do you move forward when you're made to feel like you're imagining things? Click to listen to my latest ep of the pod. www.portlandrootsmedia.com/strongerpodc...
#cvi #corticalvisualimpairment
Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2 — Portland Roots Media
What happens when a medical professional dismisses your concerns about your child’s health? How do you move forward when you're made to feel like you're imagining things?
www.portlandrootsmedia.com
January 8, 2025 at 4:22 PM
Have you ever woken up in the middle of the night to a situation so surprising, it leaves you both laughing and shaking with relief? Click now to listen to the latest episode of my podcast. #pica #hyperphagia www.portlandrootsmedia.com/strongerpodc...
Unlocked: Tess’s Midnight Adventure and the Lessons It Taught Us — Portland Roots Media
Have you ever woken up in the middle of the night to a situation so surprising, it leaves you both laughing and shaking with relief?
www.portlandrootsmedia.com
December 31, 2024 at 8:55 PM
Meta's customer service has me stuck in a never-ending loop, and honestly, it’s almost impressive. Their logo being the infinity symbol feels a little too on the nose at this point.
December 25, 2024 at 4:40 PM
This is an article by Michael Ashcroft that I reread every 5-7 days. It's about expanding our awareness, realizing that we actually have a choice in our response to events. It's a 5-10m read. I highly recommend reading and bookmarking it. @michaelashcroft.com
every.to/expanding-aw...
How to Make Unfixated Choices
Exploring the space between stimulus and response
every.to
December 5, 2024 at 12:24 PM
Are the holidays leaving you feeling drained instead of joyful? Click here to listen to my latest ep of the pod:
www.portlandrootsmedia.com/strongerpodc...
Filling Your Bucket: Stress-Free Holidays for Rare Disease Families — Portland Roots Media
Are the holidays leaving you feeling drained instead of joyful?
www.portlandrootsmedia.com
December 5, 2024 at 12:22 PM
Maybe you work from home and don't have an office. Or you *do* work in an office and don't want to go to your party.
Whatever the case may be, come out and celebrate with the rest of the Portland (PWM) office.

To get notified of other events happening this week, start here: bit.ly/4elIPlE
December 2, 2024 at 6:18 PM
I hope someday we can understand what Tess senses about the world around her. New ep of the pod. Click to listen: www.portlandrootsmedia.com/strongerpodc...
March 12, 2024 at 10:44 PM
If you're like me, you're bombarded these days with articles all about the importance of regularly getting good sleep. My wife and I would do this if we could. But instead, we have children. Click to listen. #HaoFountainSyndrome
www.portlandrootsmedia.com/strongerpodc...
February 27, 2024 at 7:10 PM
Come spend a day on a snowy peak here in Maine. Come watch our Tess as she puts on her ski coat and hits the slopes once again. Click to listen to the latest episode of my podcast. #usp7 #RareDisease #Maine #HaoFountainSyndrome
www.portlandrootsmedia.com/strongerpodc...
#473: The Trails Are Yours — Portland Roots Media
Come spend a day on a snowy peak here in Maine. Come watch our Tess as she puts on her ski coat and hits the slopes once again.
www.portlandrootsmedia.com
February 11, 2024 at 10:11 PM
We're basketball fanatics in our house. And when I say we, I'm including Tess. Click to listen to my podcast. #raredisease #USP7
www.portlandrootsmedia.com/strongerpodc...
February 8, 2024 at 8:46 PM