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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project
@c02.sfb1472.uni-siegen.de
17 followers 10 following 22 posts
Exploring how patient-generated data re/shape doctor-patient relationships. Investigating the impact of wearable, app & platform data on medical authority, patient agency & professional knowledge. https://tinyurl.com/c02sfb1472
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Mar 25
Wearables, apps & platforms generate more & more body data, shaping how medical knowledge is produced & applied. In our project, 'Digital Body Knowledge. Fault Lines of Problematic Popularity in Health Care', we explore how these developments impact interactions between patients & doctors. [1/3]
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Sep 8
Harry Collins & Robert Evans argue in "The Third Wave of Science Studies" (2002) that dissolving boundaries between experts & publics risks an unlimited "problem of extension." Their solution: distinguishing interactive from contributory expertise.

doi.org/10.1177/0306...

#layexpertise
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
doi.org
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Sep 5
“May the Sheep Safely Graze?” (1998) by Brian Wynne probes the expert-lay divide, showing how local knowledges – like farmers’ insights on soil & sheep – are sidelined. He reframes science as cultural practice that stabilises authority, not universal truth.

doi.org/10.4135/9781...

#layexpertise
Sage Academic Books - Risk, Environment and Modernity: Towards a New Ecology
<p>This wide-ranging and accessible contribution to the study of risk, ecology and environment helps us to understand the politics of ecology and the place of s
doi.org
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Sep 3
In "The Meaning and Significance of Lay Expertise" (2023), Steven Epstein revisits the concept's development, addressing critiques & outlining key dimensions, highlighting lay expertise as a hybrid, collective fusion of experiential & formal knowledge.

doi.org/10.1093/oxfo...

#layexpertise
The Oxford Handbook of Expertise and Democratic Politics
Abstract. This volume brings together investigations from social scientists, philosophers, and legal scholars into the political dimensions of expertise. I
doi.org
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Sep 1
Steven Epstein shows in “The Construction of Lay Expertise” (1995) how AIDS activists in the 1980s strategically engaged with experts. A crucial factor was their appropriation of biomedical knowledge to gain credibility, reform trials & reshape biomedicine.

doi.org/10.1177/0162...

#layexpertise
The Construction of Lay Expertise: AIDS Activism and the Forging of Credibility in the Reform of Clinical Trials - Steven Epstein, 1995
In an unusual instance of lay participation in biomedical research, U.S. AIDS treatment activists have constituted themselves as credible participants in the pr...
doi.org
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Aug 29
In “On the Multiplicity of Lay Expertise” (2023), Madeleine Akrich & Vololona Rabeharisoa show how patient associations practise evidence-based activism, articulating experiential & credentialed knowledge into expertise that reshapes health politics.

doi.org/10.1093/oxfo...

#layexpertise
The Oxford Handbook of Expertise and Democratic Politics
Abstract. This volume brings together investigations from social scientists, philosophers, and legal scholars into the political dimensions of expertise. I
doi.org
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Aug 27
“Most People with Long COVID Are Their Own Doctors” by @sazanajayadeva.bsky.social & @dalupton.bsky.social (2025) shows vividly how self-help and self-tracking turn patients into experts for themselves while problematising medical authority.

journals.sagepub.com/doi/10.1177/...

#layexpertise
‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice - Sazana Jayadeva, Deborah Lupton, 2025
This article focuses on the struggles of people with Long COVID to obtain diagnoses and treatment in the face of medical dismissal and ignorance. Drawing on int...
journals.sagepub.com
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Aug 25
After introducing this research project via our past publications, we now start an ongoing thread on a key concept in our work: lay expertise. In the weeks ahead, we’ll present classics and brand-new texts we consider central and relevant – and welcome your comments and suggestions! #layexpertise
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Jul 1
Spending this very hot day while listening to very cool talks at the symposium "Therapeutic Encounters with Chatbots: The Social and Ethical Implications of Artificial Therapeutic Agents" (www.college-uaruhr.de/news-events/...), organised by @benjaminmarent.bsky.social and Sebastian Merkel. #sts
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Jun 10
Last stop on our journey through the archive: In 2021, we explored how "the popular" has changed - from cultural distinction to measurable attention. The German version of the article we posted some weeks ago is available here (Open Access): doi.org/10.2478/kwg-2021-0027

#SFB1472
FELIX MEINER VERLAG: Was bei vielen Beachtung findet: Zu den Transformationen des Populären
doi.org
c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Jun 3
How have digital tools shaped medicine - from early expert systems to mobile tech? In Digitalisierung und Gesundheit, the anthology we introduced last week, we explore decades of change from a sociotechnical perspective (in German): www.nomos-elibrary.de/10.5771/9783...

#sfb1472 #digitalhealth
www.nomos-elibrary.de
c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · May 27
Back to 2022 in our project introduction: What does digitalisation mean for healthcare? The volume "Digitalisierung und Gesundheit" (Digitalisation and Health, in German) explores AI, diagnostics, and care across disciplines: www.nomos-shop.de/de/p/digital...

#sfb1472 #digitalhealth
Digitalisierung und Gesundheit
www.nomos-shop.de
c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · May 20
Moving further back in our project intro, this week we're sharing a report on the 2022 annual conference of Collaborative Research Centre 1472 "Transformations of the Popular", titled "Participation as Challenge".

Full text (in German): doi.org/10.28937/978...

#sfb1472
FELIX MEINER VERLAG: Partizipation als Herausforderung
doi.org
c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · May 13
Looking back at our research, this week’s spotlight is on misophonia, a diagnosis shaped online, where laypeople and experts co-create medical meaning. We illustrate how communities fight for recognition and define illness. Full text (in German): doi.org/10.1007/s412...

#sfb1472 #digitalhealth
»Making Up Misophonic People« - Zeitschrift für Literaturwissenschaft und Linguistik
Those affected by misophonia describe it as one of the first full-fledged diagnoses of the internet age. People who feel an insurmountable hatred of specific sounds gather in forums and on platforms. ...
doi.org
c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Apr 29
New week, new post in our intro series: What does it mean to be popular today? This article traces how popularity shifted from cultural distinction to measurable attention – via charts, clicks & likes. Read more: www.mdpi.com/2076-0752/12...
#SFB1472 #OpenAccess
www.mdpi.com
c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Apr 22
Next up in our intro series: How do laypeople and experts interact in shifting institutions like medicine, politics, and religion? This 2023 special issue maps the terrain of knowledge, power & participation. Full text (in German): doi.org/10.1007/s41244-023-00314-1

#SFB1472 #OpenAccess
Expert*innen-Lai*innen-Kommunikation im institutionellen Wandel – Beispiele aus Medizin, Kommunalpolitik und Kirche - Zeitschrift für Literaturwissenschaft und Linguistik
Zeitschrift für Literaturwissenschaft und Linguistik -
doi.org
c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Apr 16
Auch wir haben einen Beitrag zur neuen Ausgabe der POP beigesteuert: unsere Überlegungen zu Konvergenzen zwischen Lifestyle-Wearables und zertifizierten Medizinprodukten am Beispiel der Apple Watch, welche im Rahmen des @sfb1472.uni-siegen.de entstanden sind.
sfb1472.uni-siegen.de
Transformationen des Populären @sfb1472.uni-siegen.de · Apr 8
Die neue Ausgabe der »Pop«-Zeitschrift ist erschienen!

– etwa zu Geld, Prompts, Modezyklus, KI-Krieg, Donald Trump, Dark Romance, geschrieben von u.a. Annekathrin Kohout, Kaspar Maase, Lars Koch, Jörg Scheller und Maren Lickhardt.

pop-zeitschrift.de/2025/04/08/h...
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Apr 8
On we go with our project intro and another throwback: In 2023, we explored how wearables like Fitbits generate “grey data” – private, yet popular health info. What makes it popular, what makes it tricky? Full text (in German): doi.org/10.14361/pop...
BEACHTUNG UND BEWERTUNG POPULÄRER KÖRPERDATEN
Article BEACHTUNG UND BEWERTUNG POPULÄRER KÖRPERDATEN was published on April 1, 2023 in the journal POP. Kultur und Kritik (volume 12, issue 1).
doi.org
c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Apr 1
Continuing our journey backwards with our penultimate publication: This article explores how doctors respond to patient-generated health data from consumer devices. When do they reject, tolerate or integrate such data? Read more: doi.org/10.1111/1467...
Patient‐Generated Data as Interventions in Doctor‐Patient Relationships? Negotiating (Un)Invited Participation in Medical Consultations
Health data generated by apps and devices are increasingly popular and expected to affect various aspects of doctor-patient relationships. No longer confined to medically authorised and certified hea....
doi.org
c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Mar 28
Hello Bluesky! Our research project has already been running for 4 years, but since we're new on this platform, we’d like to introduce ourselves. Over the coming weeks, we’ll share our findings—starting with our latest publication and working backward. Check it out: doi.org/10.1080/1369...
Old data in new media? Problematic popularity of digital health data and consumer devices
Digital health data and devices have become increasingly popular in contemporary consumer cultures. This resonates with research on the expansion of health data ecosystems and the rise of consumeri...
doi.org
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Mar 25
Our project is part of the Collaborative Research Centre (SFB) 1472 „Transformations of the Popular“, funded by the German Research Foundation (DFG). #DigitalHealth #eHealth #mHealth #MedicalAuthority #PatientGeneratedData [3/3]
c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Mar 25
We explore opportunities & conflicts arising when patients generate & present their own biomedical data. How do digitalisation & the popularisation of wearables & patient-generated data challenge medical authority? Do they create new ways of legitimising professional expertise? [2/3]
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project @c02.sfb1472.uni-siegen.de · Mar 25
Wearables, apps & platforms generate more & more body data, shaping how medical knowledge is produced & applied. In our project, 'Digital Body Knowledge. Fault Lines of Problematic Popularity in Health Care', we explore how these developments impact interactions between patients & doctors. [1/3]
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