Cystic Fibrosis Trust
@cysticfibrosis.org.uk
We're dedicated to uniting for a life unlimited for those living with cystic fibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
cysticfibrosis.org.uk
cysticfibrosis.org.uk
On International Day of Women and Girls in Science, we spoke to Bethinn, a CF researcher who also has CF, about her work, diagnosis, and the unique perspective she brings to her field. 🔬
➡️ https://ow.ly/s4Jy50YcJIy
➡️ https://ow.ly/s4Jy50YcJIy
February 11, 2026 at 2:40 PM
On International Day of Women and Girls in Science, we spoke to Bethinn, a CF researcher who also has CF, about her work, diagnosis, and the unique perspective she brings to her field. 🔬
➡️ https://ow.ly/s4Jy50YcJIy
➡️ https://ow.ly/s4Jy50YcJIy
Share your views on PIP! 🗣️
The UK Government is reviewing disability benefit Personal Independence Payment (PIP), and we need your input to advocate for the CF community.
Take part via the link below.
➡️ https://www.surveymonkey.com/r/SKW8KM6
The UK Government is reviewing disability benefit Personal Independence Payment (PIP), and we need your input to advocate for the CF community.
Take part via the link below.
➡️ https://www.surveymonkey.com/r/SKW8KM6
February 4, 2026 at 4:02 PM
Share your views on PIP! 🗣️
The UK Government is reviewing disability benefit Personal Independence Payment (PIP), and we need your input to advocate for the CF community.
Take part via the link below.
➡️ https://www.surveymonkey.com/r/SKW8KM6
The UK Government is reviewing disability benefit Personal Independence Payment (PIP), and we need your input to advocate for the CF community.
Take part via the link below.
➡️ https://www.surveymonkey.com/r/SKW8KM6
Is this a topic you’ve thought about?
If you had a roomful of researchers, what would you want to ask them about this topic?
Share your thoughts in the comments and we will report back to our research team.
3/4
If you had a roomful of researchers, what would you want to ask them about this topic?
Share your thoughts in the comments and we will report back to our research team.
3/4
February 4, 2026 at 12:32 PM
Is this a topic you’ve thought about?
If you had a roomful of researchers, what would you want to ask them about this topic?
Share your thoughts in the comments and we will report back to our research team.
3/4
If you had a roomful of researchers, what would you want to ask them about this topic?
Share your thoughts in the comments and we will report back to our research team.
3/4
Researchers want to find out the chances of people with CF developing diseases of older age. This includes understanding more about cardiovascular disease (CVD), commonly known as heart disease.
🟡 CVD is a group of conditions relating to the heart and to blood vessels.
1/4
🟡 CVD is a group of conditions relating to the heart and to blood vessels.
1/4
February 4, 2026 at 12:32 PM
Researchers want to find out the chances of people with CF developing diseases of older age. This includes understanding more about cardiovascular disease (CVD), commonly known as heart disease.
🟡 CVD is a group of conditions relating to the heart and to blood vessels.
1/4
🟡 CVD is a group of conditions relating to the heart and to blood vessels.
1/4
This week’s #ResearchWednesday is all about research to develop treatments for people with rare CF variants.
The HIT-CF programme did personalised screening in the lab, before testing the new treatments in the CHOICES clinical trial.
➡️ www.cysticfibrosis.org.uk/news/results...
The HIT-CF programme did personalised screening in the lab, before testing the new treatments in the CHOICES clinical trial.
➡️ www.cysticfibrosis.org.uk/news/results...
January 28, 2026 at 1:35 PM
This week’s #ResearchWednesday is all about research to develop treatments for people with rare CF variants.
The HIT-CF programme did personalised screening in the lab, before testing the new treatments in the CHOICES clinical trial.
➡️ www.cysticfibrosis.org.uk/news/results...
The HIT-CF programme did personalised screening in the lab, before testing the new treatments in the CHOICES clinical trial.
➡️ www.cysticfibrosis.org.uk/news/results...
Got questions about your research career? Join our Coffee and Careers webinar tomorrow, Jan 28, with Dr Guy Moss! 🔬
➡️ https://ow.ly/O7bq50Y4smr
➡️ https://ow.ly/O7bq50Y4smr
January 27, 2026 at 6:16 PM
Got questions about your research career? Join our Coffee and Careers webinar tomorrow, Jan 28, with Dr Guy Moss! 🔬
➡️ https://ow.ly/O7bq50Y4smr
➡️ https://ow.ly/O7bq50Y4smr
Did you know we have an online forum? 💬
Join the conversation and discover a whole community of people who understand the ups and downs of living with cystic fibrosis.
Whatever you're going through, we've got you. 💛
➡️ forum.cysticfibrosis.org.uk
Join the conversation and discover a whole community of people who understand the ups and downs of living with cystic fibrosis.
Whatever you're going through, we've got you. 💛
➡️ forum.cysticfibrosis.org.uk
January 22, 2026 at 1:12 PM
Did you know we have an online forum? 💬
Join the conversation and discover a whole community of people who understand the ups and downs of living with cystic fibrosis.
Whatever you're going through, we've got you. 💛
➡️ forum.cysticfibrosis.org.uk
Join the conversation and discover a whole community of people who understand the ups and downs of living with cystic fibrosis.
Whatever you're going through, we've got you. 💛
➡️ forum.cysticfibrosis.org.uk
It's #ResearchWednesday – and this week is all about supporting early career researchers (ECRs).
Last year at #UKCFC Dr Becky Dobra was a panellist at our workshop on tips for writing up research findings.
Click the link to read more about what we discussed.
➡️ https://ow.ly/pw0S50XXhsa
Last year at #UKCFC Dr Becky Dobra was a panellist at our workshop on tips for writing up research findings.
Click the link to read more about what we discussed.
➡️ https://ow.ly/pw0S50XXhsa
January 21, 2026 at 11:01 AM
It's #ResearchWednesday – and this week is all about supporting early career researchers (ECRs).
Last year at #UKCFC Dr Becky Dobra was a panellist at our workshop on tips for writing up research findings.
Click the link to read more about what we discussed.
➡️ https://ow.ly/pw0S50XXhsa
Last year at #UKCFC Dr Becky Dobra was a panellist at our workshop on tips for writing up research findings.
Click the link to read more about what we discussed.
➡️ https://ow.ly/pw0S50XXhsa
What do you think about your child’s CF care? Together with CF teams across the UK, we are looking at experiences of CF care in paediatric settings.
Take the survey today!
➡️ www.surveymonkey.co.uk/r/ParentCarer25
#cysticfibrosis #CFcare
Take the survey today!
➡️ www.surveymonkey.co.uk/r/ParentCarer25
#cysticfibrosis #CFcare
January 20, 2026 at 4:05 PM
What do you think about your child’s CF care? Together with CF teams across the UK, we are looking at experiences of CF care in paediatric settings.
Take the survey today!
➡️ www.surveymonkey.co.uk/r/ParentCarer25
#cysticfibrosis #CFcare
Take the survey today!
➡️ www.surveymonkey.co.uk/r/ParentCarer25
#cysticfibrosis #CFcare
The new season of our podcast, CForYourself, is here! 🎙️
Join Lucy as she chats with #TeamCF supporters Colleen, on raising over £70,000 as part of Team Ewan, and Jamie, who has CF, on his incredible endurance challenges.
➡️ https://ow.ly/Vbnr50XZzOv
Join Lucy as she chats with #TeamCF supporters Colleen, on raising over £70,000 as part of Team Ewan, and Jamie, who has CF, on his incredible endurance challenges.
➡️ https://ow.ly/Vbnr50XZzOv
January 19, 2026 at 4:02 PM
The new season of our podcast, CForYourself, is here! 🎙️
Join Lucy as she chats with #TeamCF supporters Colleen, on raising over £70,000 as part of Team Ewan, and Jamie, who has CF, on his incredible endurance challenges.
➡️ https://ow.ly/Vbnr50XZzOv
Join Lucy as she chats with #TeamCF supporters Colleen, on raising over £70,000 as part of Team Ewan, and Jamie, who has CF, on his incredible endurance challenges.
➡️ https://ow.ly/Vbnr50XZzOv
On Friday 16 January, Labour MP for Cambridge, Daniel Zeichner, visited Professor Martin Welch’s lab at the University of Cambridge to learn more about research improving treatment options for lung infections in people with cystic fibrosis.
Read more on our website now!
➡️ https://ow.ly/XMyp50XZz1Q
Read more on our website now!
➡️ https://ow.ly/XMyp50XZz1Q
January 19, 2026 at 11:16 AM
On Friday 16 January, Labour MP for Cambridge, Daniel Zeichner, visited Professor Martin Welch’s lab at the University of Cambridge to learn more about research improving treatment options for lung infections in people with cystic fibrosis.
Read more on our website now!
➡️ https://ow.ly/XMyp50XZz1Q
Read more on our website now!
➡️ https://ow.ly/XMyp50XZz1Q
Head to our Trials Tracker to find out more. (4/4)
➡️ cysticfibrosis.org.uk/trialstracker
#cysticfibrosis #cftrust #clinicaltrials #researchwednesday
➡️ cysticfibrosis.org.uk/trialstracker
#cysticfibrosis #cftrust #clinicaltrials #researchwednesday
January 14, 2026 at 12:01 PM
Head to our Trials Tracker to find out more. (4/4)
➡️ cysticfibrosis.org.uk/trialstracker
#cysticfibrosis #cftrust #clinicaltrials #researchwednesday
➡️ cysticfibrosis.org.uk/trialstracker
#cysticfibrosis #cftrust #clinicaltrials #researchwednesday
This includes five new studies looking at everything from diet and exercise programs for people with CF, to a new anti-inflammatory medicine, to understanding more about current treatments for infections. (3/4)
January 14, 2026 at 12:01 PM
This includes five new studies looking at everything from diet and exercise programs for people with CF, to a new anti-inflammatory medicine, to understanding more about current treatments for infections. (3/4)
You can find 17 studies on our Trials Tracker currently looking for people to take part, including several you can take part in from home. (2/4)
January 14, 2026 at 12:01 PM
You can find 17 studies on our Trials Tracker currently looking for people to take part, including several you can take part in from home. (2/4)
Could 2026 be the year you take part in a CF research study? (1/4)
➡️ cysticfibrosis.org.uk/trialstracker
➡️ cysticfibrosis.org.uk/trialstracker
January 14, 2026 at 12:01 PM
Could 2026 be the year you take part in a CF research study? (1/4)
➡️ cysticfibrosis.org.uk/trialstracker
➡️ cysticfibrosis.org.uk/trialstracker
Aaaand we're back! 👋🏻
Our helpline and social media has re-opened today, Friday 2 January, and are available to chat about any of your questions or queries.
If you have contacted us over the festive period we will get back to you as soon as possible.
Our helpline and social media has re-opened today, Friday 2 January, and are available to chat about any of your questions or queries.
If you have contacted us over the festive period we will get back to you as soon as possible.
January 2, 2026 at 10:00 AM
Aaaand we're back! 👋🏻
Our helpline and social media has re-opened today, Friday 2 January, and are available to chat about any of your questions or queries.
If you have contacted us over the festive period we will get back to you as soon as possible.
Our helpline and social media has re-opened today, Friday 2 January, and are available to chat about any of your questions or queries.
If you have contacted us over the festive period we will get back to you as soon as possible.
The helpline will close today, Tues 23 December, at 12pm, and reopen on Fri 2 January at 10am. If you get in touch with us between these dates, we'll get back to you as possible on our return.
We want to wish you a happy and safe festive break, and look forward to seeing you in the new year. ⭐
We want to wish you a happy and safe festive break, and look forward to seeing you in the new year. ⭐
December 23, 2025 at 9:00 AM
The helpline will close today, Tues 23 December, at 12pm, and reopen on Fri 2 January at 10am. If you get in touch with us between these dates, we'll get back to you as possible on our return.
We want to wish you a happy and safe festive break, and look forward to seeing you in the new year. ⭐
We want to wish you a happy and safe festive break, and look forward to seeing you in the new year. ⭐
After two Christmases spent in hospital with cystic fibrosis, Emma's wish for 2025 is simple – a day at home with her husband, cuddles with the cats, and enough roast potatoes to go round. 💛
Head to our website to read Emma's story.
❄️ https://ow.ly/IkEF50XKLZ3
Head to our website to read Emma's story.
❄️ https://ow.ly/IkEF50XKLZ3
December 18, 2025 at 8:00 AM
After two Christmases spent in hospital with cystic fibrosis, Emma's wish for 2025 is simple – a day at home with her husband, cuddles with the cats, and enough roast potatoes to go round. 💛
Head to our website to read Emma's story.
❄️ https://ow.ly/IkEF50XKLZ3
Head to our website to read Emma's story.
❄️ https://ow.ly/IkEF50XKLZ3
Early results from CF STORM, a clinical trial looking at new ways to reduce treatment burden for people with CF have now been released.
Dr Gwyneth Davies, co-Chief Investigator of the study, explains what we know so far.
➡️ https://ow.ly/bJmZ50XKj1L
Dr Gwyneth Davies, co-Chief Investigator of the study, explains what we know so far.
➡️ https://ow.ly/bJmZ50XKj1L
December 16, 2025 at 2:37 PM
Early results from CF STORM, a clinical trial looking at new ways to reduce treatment burden for people with CF have now been released.
Dr Gwyneth Davies, co-Chief Investigator of the study, explains what we know so far.
➡️ https://ow.ly/bJmZ50XKj1L
Dr Gwyneth Davies, co-Chief Investigator of the study, explains what we know so far.
➡️ https://ow.ly/bJmZ50XKj1L
Have you got your tickets yet? ❄️
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
November 27, 2025 at 1:47 PM
Have you got your tickets yet? ❄️
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
Today, Lilian Greenwood, Labour MP for Nottingham South, visited Dr Rian Griffiths at the University of Nottingham, to find out more about her work in infection detection for people with CF during world AMR awareness week. 🔬
Read more ➡️ https://ow.ly/lVQ250XvXoJ
Read more ➡️ https://ow.ly/lVQ250XvXoJ
November 21, 2025 at 6:15 PM
Today, Lilian Greenwood, Labour MP for Nottingham South, visited Dr Rian Griffiths at the University of Nottingham, to find out more about her work in infection detection for people with CF during world AMR awareness week. 🔬
Read more ➡️ https://ow.ly/lVQ250XvXoJ
Read more ➡️ https://ow.ly/lVQ250XvXoJ
This week is World Antimicrobial Resistance Awareness Week and this #ResearchWednesday we wanted to explain why preventing and tackling antimicrobial resistance is so important to people with #cysticfibrosis.
➡️ www.cysticfibrosis.org.uk/news/improvi...
➡️ www.cysticfibrosis.org.uk/news/improvi...
November 19, 2025 at 10:27 AM
This week is World Antimicrobial Resistance Awareness Week and this #ResearchWednesday we wanted to explain why preventing and tackling antimicrobial resistance is so important to people with #cysticfibrosis.
➡️ www.cysticfibrosis.org.uk/news/improvi...
➡️ www.cysticfibrosis.org.uk/news/improvi...
Have you got your tickets yet? ❄️
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
November 16, 2025 at 6:00 AM
Have you got your tickets yet? ❄️
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
Through the research we fund, we want to prevent #cysticfibrosis complications from developing and improve how they are treated and managed.
Visit our website to find out more #ResearchWednesdays
➡️ ow.ly/kNa950Xmn2V
Visit our website to find out more #ResearchWednesdays
➡️ ow.ly/kNa950Xmn2V
November 5, 2025 at 12:00 PM
Through the research we fund, we want to prevent #cysticfibrosis complications from developing and improve how they are treated and managed.
Visit our website to find out more #ResearchWednesdays
➡️ ow.ly/kNa950Xmn2V
Visit our website to find out more #ResearchWednesdays
➡️ ow.ly/kNa950Xmn2V
This week we’re shining a spotlight on some of the additional symptoms and complications of CF outside of the lungs, from gut symptoms and diabetes to fertility and bone health.
➡️ ow.ly/HW7g50XlCJQ
#cysticfibrosis #cftrust #notjustlungs
➡️ ow.ly/HW7g50XlCJQ
#cysticfibrosis #cftrust #notjustlungs
November 3, 2025 at 12:28 PM
This week we’re shining a spotlight on some of the additional symptoms and complications of CF outside of the lungs, from gut symptoms and diabetes to fertility and bone health.
➡️ ow.ly/HW7g50XlCJQ
#cysticfibrosis #cftrust #notjustlungs
➡️ ow.ly/HW7g50XlCJQ
#cysticfibrosis #cftrust #notjustlungs