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d4itdr.bsky.social @d4itdr.bsky.social · 5d

Check out our session tomorrow morning titled “Indigenous Data Sovereignty is very DEMURE, very MINDFUL! Saturday 8:30 am in room 205 A

conference.aises.org/agenda

#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #AISES

Agenda | 2025 AISES National Conference

conference.aises.org

d4itdr.bsky.social @d4itdr.bsky.social · 12d

Them: You look so happy!

Us: Thanks! We're upholding Indigenous Data Sovereignty!

#DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty

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d4itdr.bsky.social @d4itdr.bsky.social · 19d

Ever wonder what IDSov and related topics could look like as a music album?

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Reposted

Krystal Tsosie @kstsosie.bsky.social · 19d

When Indigenous peoples build our own #Tribal #data repositories, we self-direct #health #research & create #education resources to train next-gen of #Indigenous science

From PhD student, Karina Hernandez-Hernandez (P’urhépecha) it is “hope-giving” news.asu.edu/20250917-sci...
@d4itdr.bsky.social

Professor creates 'a safe harbor' for Indigenous data | ASU News

Among Indigenous populations in the U.S., there is a history of personal data being used without consent. Now, a new digital repository hopes to change both who benefits from biomedical data and who g...

news.asu.edu

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d4itdr.bsky.social @d4itdr.bsky.social · 26d

We also consulted with Tribal partners to discuss how Tribes can leverage sovereignty to get their data, an ongoing conversation we are always happy to engage in. (2/2)

#DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty

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d4itdr.bsky.social @d4itdr.bsky.social · 26d

Two weeks ago the D4I team visited the unceded territories of the Coast Salish peoples in the Pacific Northwest Coast. Here our team discussed data sovereignty with the Urban Indian Health Institute director, Abigail Echo Hawk. (1/2)

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d4itdr.bsky.social @d4itdr.bsky.social · 28d

We uphold Indigenous Data Sovereignty in our repository work youtu.be/twp6lABlTM8?...

#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty

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d4itdr.bsky.social @d4itdr.bsky.social · Sep 8

#DataSovereignty #Indigenous #IDSov #Tribal #Conference #ASHG2025 #ASHG

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d4itdr.bsky.social @d4itdr.bsky.social · Sep 8

If you are attending the ASHG Annual Meeting in Boston this year, and you would like to hear about advances in Indigenous digital sovereignty and Tribal Nation-led health research, please sign up for our limited seating engagement on Friday, Oct 17th. Lunch provided: tinyurl.com/5aj9544f

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d4itdr.bsky.social @d4itdr.bsky.social · Sep 3

Have you ever thought about what Tribal derived data is and the big questions surrounding its use? youtu.be/twp6lABlTM8?...

#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty #Research

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 29

Do you have any questions or thoughts about our work? Feel free to contact us at [email protected]

#DataSovereignty #Indigenous #IDSov #Tribal #Data

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 22

#DataSovereignty #Indigenous #IDSov #Tribal #Data #CDE #definitions (3/3)

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 22

CDEs provide a way to standardize collected data, ensuring the type & format of data are consistent across projects/sites/studies/trials. This approach minimizes variability between studies. Reusing this data helps future studies & reduce research costs. Learn more at cde.nlm.nih.gov/home (2/3)

NIH Common Data Elements (CDE) Repository

Repository of Common Data Elements (CDE) and Protocol Forms. Search CDEs. Search Protocol Forms.

cde.nlm.nih.gov

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 22

What is a Common Data Element (CDE)? And why do we care about them?

CDEs are a type of health data standard that is commonly used and reused both in clinical and research settings. (1/3)

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 15

Come check out our website! d4itdr.org/were-in-our-...

We’re in our IDSov Era: Explore Our New Video Resources on Indigenous Data Sovereignty | D4I Tribal Data Repository

d4itdr.org

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 13

Are you an educator? Want to teach about data sovereignty? Look no further, we have an educational video series explaining several topics of Indigenous Data Sovereignty! youtube.com/@d4itdr?feat...

#EducationVideos #DataSovereignty #NativeEducators #Indigenous #IDSov

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 1

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty #Contracts (2/2)

d4itdr.bsky.social @d4itdr.bsky.social · Aug 1

This video provides an intro to data transfer, ownership, and use agreements (DTOUA) as one way to form mutually respectful collaborations with Tribal Nations that recognizes their legal authority, autonomy, and sovereignty to self-direct research partnerships with Tribal citizens in research (1/2)

D4I Tribal Data Repository - Research Contracts and Partnerships with Tribal Nations

YouTube video by D4I TDR

youtu.be

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d4itdr.bsky.social @d4itdr.bsky.social · Jul 31

Dynamic consent can promote Tribal sovereignty, this video provides an overview of different informed consent types. youtu.be/_4j8kKh4Zjc?...

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty #Consent

D4I Tribal Data Repository - Informed, Broad, and Dynamic Consent in Indigenous Based Research

YouTube video by D4I TDR

youtu.be

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d4itdr.bsky.social @d4itdr.bsky.social · Jul 30

When looking for data management solutions, Tribes can consider different models. In this video, D4I provides summaries of decentralized, federated, and centralized data systems. youtu.be/RNvNqoAXSGo?...

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty

D4I Tribal Data Repository - How Data Sharing Systems Work

YouTube video by D4I TDR

youtu.be

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d4itdr.bsky.social @d4itdr.bsky.social · Jul 29

We explain what a tribal data repository is in our first video. Several members of D4I TDR share the importance of this project. youtu.be/twp6lABlTM8?...

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty

D4I Tribal Data Repository - Protecting Tribal Data & Why It Matters

YouTube video by D4I TDR

youtu.be

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d4itdr.bsky.social @d4itdr.bsky.social · Jul 28

#Datasovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty #educationalcontent #Tribaldata

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d4itdr.bsky.social @d4itdr.bsky.social · Jul 28

We are excited to release our collaborative efforts with Complex Stories to share with you about what it is we do at D4I and what kinds of topics we tackle in our Tribal Data Repository project. Let us know what you think of the four videos! www.youtube.com/@D4ITDR

This link will take you to a page that’s not on LinkedIn

lnkd.in

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d4itdr.bsky.social @d4itdr.bsky.social · Jul 25

Come back Monday for the links to our Educational video series (4 videos!) where we answer those burning questions from this week!

#Datasovereignty #Indigenous #IDSov #Data #videoseries

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d4itdr.bsky.social @d4itdr.bsky.social · Jul 24

What do contracts look like between researchers and Tribal Nations/communities? Hint: we’ll have the answer posted next week in a new short educational video

#Datasovereignty #Indigenous #IDSov #Data #communityengagedresearch

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