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Reposted by Eleanor

Arm-Wap #VoteLeaveLies #Rejoin #FBPE #NAFO @arm-wap.bsky.social · 1h

They’ve got to be f***ing kidding!
#OFWAT
#CMA #CompetitionAndMarketsAuthority
#RipOffBritain

Water bills to rise further for millions after appeal
www.bbc.com/news/article...

Water bills to rise further for millions after appeal

Five water companies win permission for higher bills as they seek more investment to fix outdated infrastructure.

www.bbc.com

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Eleanor @eleanoralbaugh.bsky.social · 1h

Good luck with both events.

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Eleanor @eleanoralbaugh.bsky.social · 1h

I have managed one kingfisher sighting and have yet to see an osprey. Good luck with both.

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Eleanor @eleanoralbaugh.bsky.social · 1h

Thinking of you all.

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Eleanor @eleanoralbaugh.bsky.social · 1h

Morning A-W and all. Late again with a reaction to the covid jab that didn’t allow me to sleep on R side, not pleasant. But all done for the season now.
My help is ill so no baking today but OH has a long WE so hopeful can add Bakewell tarts to the stash.
Have a good day with help when you need it.

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Reposted by Eleanor

Polly Atkin @pollyrowena.bsky.social · 18h

The most ridiculous irony is that if you actually want more disabled and chronically ill people in work we need MORE quicker better diagnosis --> more targeted support and treatment for people's actual conditions, not CBT or pyscho-social therapy as a generalised sticking plaster on symptoms.

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Reposted by Eleanor

Polly Atkin @pollyrowena.bsky.social · 18h

This #overdiagnosis discourse is dangerous and will be deadly to many - not just those with ME who have been at the mercy of quacks like Wesseley and O'Sullivan for years -
but everyone who the govt wishes to remove support from and has to find a way to claim are not actually disabled to do so.

George Monbiot @georgemonbiot.bsky.social · 1d

Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...

Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour

Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...

www.benefitsandwork.co.uk

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Reposted by Eleanor

Polly Atkin @pollyrowena.bsky.social · 17h

And the last thing likely to help any disabled people stay in work? Creating a toxic debate around diagnoses which enables employers to refuse accommodations even more than they already do. The govt should be helping employers to accommodate disabled workers, not trying to claim we're imaginary.

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Reposted by Eleanor

Polly Atkin @pollyrowena.bsky.social · 17h

And what will happen to all the disabled people who can't work - and those who could work in theory but can't under these ableist conditions - what happens to them when the Overdiagnosis Bureau takes away the trickle of support they get to live. You know. I know. They know.

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Reposted by Eleanor

Polly Atkin @pollyrowena.bsky.social · 18h

We need preventative medicine back - which includes making covid boosters available freely to ANYONE who wants one - which means masking in healthcare at the very least, which means a focus on clean air in schools, hospitals, workplaces. You can't limit long covid without limiting covid infections.

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Reposted by Eleanor

Barbara Sutton @barbscov.bsky.social · 15h

This ☝️ I'm CEV and a carer but I can't get a Covid jab 🙄

Polly Atkin @pollyrowena.bsky.social · 18h

We need preventative medicine back - which includes making covid boosters available freely to ANYONE who wants one - which means masking in healthcare at the very least, which means a focus on clean air in schools, hospitals, workplaces. You can't limit long covid without limiting covid infections.

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Reposted by Eleanor

Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 15h

Qs from Hayley Douglas on behalf of CVF:

The analysis estimated that 88 children died from Covid. 90% had an underlying chronic condition.

"If they had an 'underlying chronic condition' could you confirm that those 90% would have been classed as Clinically Vulnerable?"

5/

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Reposted by Eleanor

Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 19h

We will see resurgences of other viruses and conditions that will happen.

"We now have a vaccine for RSV"

"keeping vaccination rates high is very important across board for all conditions going into a pandemic."

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Eleanor @eleanoralbaugh.bsky.social · 16h

When a job depends on a certain outcome they will never find in favour of the opposing viewpoint.

Eleanor @eleanoralbaugh.bsky.social · 16h

I had never heard of the Royal Collages opposing NICE guidelines until the #ME debacle. And Cochrane’s part in advocating for exercise as a treatment.
For some medical bodies no amount of evidence is enough unless the topic was covered favourably and in detail as a medical student.

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Reposted by Eleanor

Karen de Lange @karendelange.co.uk · 22h

I have ME/CFS and I'm autistic. There are no NHS supports for either, and I'm stuck being too disabled to live the life I want to, and not disabled enough to qualify for any benefits. This government's approach to both conditions makes me furious.

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Reposted by Eleanor

Carys Is An Anagram of ‘Scary’ @caryscreatesthings.bsky.social · 22h

I have ME and I walk with a stick. Yesterday, I was heading home & I was exhausted. I was right outside my building when a woman came out of the shop next door so I moved to let her pass. Instead of saying thank you, she said “another scrounger getting PIP off the government“. I don’t even get PIP

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Reposted by Eleanor

Dr Eleanor Roberts @elbelbumble.bsky.social · 1d

Thanks so much, Eleanor here from ME Research UK, full of sighs and teeth gnashing, 5 years waiting for the UCH ME service to be restored so I can get a basic OT appointment, which it never will because it got swamped by Long Covid patients who've equally been gaslit. I just want to get better.

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chiller @thechiller.bsky.social · 22h

What we actually need is people presenting with symptoms to be believed. First and foremost.

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chiller @thechiller.bsky.social · 22h

As someone with #severeMECFS I dread the arrival of these tests, because all it will achieve is a whole bunch of people who have the same symptoms as me being told THEY definitely don't have #mecfs, & being gaslit in the same way mecfs folks are gaslit now.

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Reposted by Eleanor

Carole Bruce @cabruce.bsky.social · 20h

Thank you so much for continuing to support us ME people with such clear, strong and compassionate reporting. I have been bedridden for 32 years, my daughter for 39 years. We have had no treatment offered, simply left to rot in our beds. We spent a lot of money on ‘alternative’ approaches, no help

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Reposted by Eleanor

Long Covid Advocacy @longcovidadvoc.com · 19h

Thank you George for your advocacy 🙏

Wessely is wheeled out ad infinitum by governments to save them money.

In 1989 he was a founder member of 'The Campaign Against Health Fraud' that opposed unnecessary treatments for 'non-existent diseases'.

It's devastating to see neurodiverse people targeted

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Reposted by Eleanor

George Monbiot @georgemonbiot.bsky.social · 1d

On the one hand, medical science is beginning to get a handle on the very complex physiological basis of this disease. On the other hand, we can expect the greatest medical scandal (so far) of the 21st Century – the mass mistreatment and neglect of ME/CFS sufferers – to continue.

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Reposted by Eleanor

George Monbiot @georgemonbiot.bsky.social · 1d

This commission points to where the government is heading. If the problem is “overdiagnosis” – which appears to be its foregone conclusion – then large numbers of people with horrendous conditions will be put through an even more punishing regime of tests and obstacles to qualify for benefits.

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Reposted by Eleanor

George Monbiot @georgemonbiot.bsky.social · 1d

To rub salt into their wounds, these patients have watched as the man many see as their tormentor-in-chief has been garlanded with honours, including a knighthood. His latest appointment is yet another blow.

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