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fabledfelts.bsky.social
Rune 🔮
@fabledfelts.bsky.social
• 38 🇦🇺🔞 • Needle Felt Artist • Commissions
https://fabledfelts.carrd.co/ - ✉️, DM, Discord
• Animals / Fandom | pfp mcmadmissile
• Cure F.O.P ♿️ IFOPA.org ❌ 🥄 for Alt Text
hiatus, if anybody's watching.
October 1, 2025 at 11:37 AM
Literally.

— New ♿️ isn't fixed, it's worse.
— Old ♿️ 's software disabled in the process.
— New ♿️ back to workshop, getting reassembling again

Cool beans. /src
October 1, 2025 at 2:31 AM
Thanks to the incredible generosity of our global FOP community, we’ve made tremendous progress toward our $500,000 goal

The good news? There’s still time. You can give through September 30 — every dollar fuels research, accelerates the next breakthrough, & honors 35 years of fundraising progress.
September 17, 2025 at 1:44 AM
From IFOPA.org

🎉Incredible news: Thanks to YOU, we’ve met the $50,000 match, turning your gifts into more than $100,000 for the FOP community! 🙌

With Day of Giving today, every gift funds research that brings us closer to more treatments, and, one day, a cure ❤️

#FOP #Disability #Disabled #Charity
September 16, 2025 at 8:22 AM
New glasses today 🎉
September 15, 2025 at 11:15 AM
4 games that were my favorite game during various points in my life

Altered my brain chemistry.
September 7, 2025 at 9:09 AM
Optometrist appointment this morning — new multifocals ordered! Visions a little worse, nothing serious.
September 5, 2025 at 8:46 AM
38.
September 4, 2025 at 8:51 AM
Thanks! I sculpt needlefelt animal sculptures — real, fictional, fandom. I'm physically disabled and bedridden with FOP.
September 4, 2025 at 3:56 AM
If you see this, quote post your cat art 🐈🐈🐈🐈
August 29, 2025 at 8:03 AM
The original cost for the new drug treatment is $650k a year. Under PBS, it's reduced to $30, $7 for concession holders.

The Aussie government (unlike UK) actually giving a shit about us is phenomenal. The news dropped this morning is priceless.

Folk need to not shun rare disease. We DO matter.
August 23, 2025 at 2:38 PM
'25 FOP Australia Conference opened with the milestone announcement for Fibrodysplasia Ossificans Progressiva in 🇦🇺 by the Minister for Health, Hon Mark Butler MP.

1st September, Palovarotene will become the first treatment on the PBS!

This will enable subsidised 💰 supply to eligible 🇦🇺 patients!
August 23, 2025 at 9:09 AM
💚 Saturday, Aug 23, #FOP dad Adam takes on Movement to a Cure in honor of his son Weston.

He’s completing a 70.3-mile modified Ironman along the NC coast—while carrying a 35lb ruck sack 🎒

Let’s cheer him on as he swims 🏊🏻 1.2mi, bikes 🚴🏻‍♂️ 56mi & ruck-runs 🏃🏻‍♂️ 13.1mi for FOP research!

Con.👇🏻

#Disabled
August 22, 2025 at 10:43 PM
💚 In 1979, Jud’s family started a golf tournament after his FOP diagnosis — raising hundreds of thousands throughout the years for research.

⛳ From one family’s determination came momentum. Today, community fundraisers still fuel progress + hope.

#Disabled #Disability #charity #RareDisease
August 18, 2025 at 8:15 AM
judge me on (some of) my favourite wild animals
August 16, 2025 at 3:00 AM
💊 Clinical trials turn science into potential treatments for FOP.

With IFOPA’s support:
✅ 8 trials launched
✅ 3 completed
✅ 5 active
✅ 1 treatment approved

“Clinical trials are a bold step into the future […] Together, we will get there. That is our hope.” — Dr. Fred Kaplan

#Disability #Medicine
August 15, 2025 at 11:52 PM
Weeks later, I get a response.

Something something manufacturer delay replying something willing to offer walkthrough reassembling it something.

Not convinced it'll go fine. They broke my current chair years ago. Still no explanation.

They're only repair tech, not engineers.
August 15, 2025 at 11:24 AM
August 14, 2025 at 11:48 PM
🌟 Meet Bernadette, our 2025 In Pursuit of a Cure Campaign Ambassador! 🌟

“Being an ambassador means giving back and showing others they’re not alone," said Bernadette, who lives with FOP.

Join us to advance critical FOP research! 🧬

www.ifopa.org/curefop

#Disability #DisabledFur #DisabilitySky
August 14, 2025 at 8:05 AM
August 11, 2025 at 4:33 AM
Welcome! I'm an Aussie-based disabled needlefelt artist; bedridden with limited use of my fingers, I have FOP. I advocate as a Rare Artist ♿️; I appreciate your support!

⬖ Animal artdolls — wool & exotic fibres
⬖ Real & Imagined | Fandom & Original
⬖ Personal & Commissions
⬖ DMs/Messages welcomed ✨
August 11, 2025 at 4:27 AM
It isn't a good look, doubling down defending a disability's 'warning' as anything but what you actually implied.

I have FOP, I think my opinion matters more. I have yet to find someone who'd 'Don't google photos because it looks painful'

Con.
August 10, 2025 at 11:42 PM
share 4 years of your #Art #ArtSky

2022 - 2023 - 2024 - 2025
August 8, 2025 at 11:02 PM
2021, Bengal Tiger faux taxidermy mount.

Royal Darwin Show 2022, Third Place winner

▫️Italian wool
▫️Corriedale core
▫️Armature
▫️Plastic nose
▫️Glass eyes
▫️Sterling silver whiskers
▫️Taxidermy resin jawset

#NeedleFelt #FabledFeltsArt #ArtSky #FurryArt
August 4, 2025 at 10:28 AM
🧪 35 years of funding FOP research.

The 2025 #InPursuitOfACure campaign launches today—a celebration of what the FOP community has built & a call to keep going 💙

📅 Join us September 16 for the Day of Giving
🎯 Goal: $500,000 for research
🎥 Watch:👇🏻

#Disabled #Fibrodysplasia #RareDisease #Disability
August 3, 2025 at 8:09 AM