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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · 1d

YESSSS, my knowledge of Lonely Island lyrics had intrigued/scared(?) my husband lol

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · 1d

Thank you @exceedhergrasp1.bsky.social !!

a man in a blue shirt and tie is pointing at a woman and saying " too legit to quit " .

Alt: a man in a blue shirt and tie is pointing at a woman and saying " too legit to quit " .

media.tenor.com

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · 1d

And thank you also to everyone in the community who took the time to send thank you messages!! Wow!! We received the eCard and are so overwhelmed (in the best way) by your support and are so so grateful. 🥹 @meactnet.bsky.social

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · 1d

@exceedhergrasp1.bsky.social, Ravi Ganesh, and Jen Bell and Brayden Yellman from @batemanhornecenter.bsky.social have all been guides and inspiration for me since the start of my journey in ME/CFS care. I could not think of a better experience to have with my first textbook chapter. Thank you all 💙

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · 1d

Truly honored to have lead the inaugural chapter on #MECFS management in the @elsevierconnect.bsky.social textbook Scientific Basis of Fatigue, "Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A New Narrative." The greatest honor of all was co-authoring with my role models--

Dr. Stephanie Grach, a Caucasian woman with brown eyes and (currently) shoulder-length brown hair, holding a textbook open to the mentioned chapter's first page. Wearing a blue suit jacket, red/blue shirt, and blue KN95 mask, against a purple-gray background.

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Reposted by Stephanie Grach M.D. M.S.

#MEAction Network @meactnet.bsky.social · 7d

Stellar new work from @grachstephanie.bsky.social, @exceedhergrasp1.bsky.social, @batemanhornecenter.bsky.social's Bell and Yellman & @raviganeshmd.bsky.social in the Elsevier text 'The Scientific Basis of Fatigue'! The book has chapters on #MECFS, COVID, Parkinson’s, stroke, and multiple sclerosis.

Text-based graphic with one photo. Text: New publication. Managing myalgic encephalomyelitis/chronic fatigue syndrome: a new narrative. a chapter in a new Elsevier textbook written by coauthors from #MEAction, Mayo Clinic Rochester and the Bateman-Horne Center. “I was honored to co-author this chapter with colleagues from Mayo Clinic and the Bateman-Horne Center to give clinicians and researchers the tools they need to better recognize, study and treat ME/CFS.”
Jaime Seltzer,
Scientific Director, #MEAction
Photo: Jaime Seltzer (white woman with long, dark hair) wearing glasses and cream blazer and red top slightly smiling.

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Reposted by Stephanie Grach M.D. M.S.

It's ME(Jaime) @exceedhergrasp1.bsky.social · Jul 8

The first paper that uses the Pacing Narrative Study data is now published!

@grachstephanie.bsky.social is building a case for vocal differences to detect #PEM. She found many discussed such issues during a crash.

Find the paper here: 🧪

www.mdpi.com/2077-0383/14...

#MECFS

www.mdpi.com

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Jun 20

So funny, Jay and I were chatting with each other right as you posted this! 😁

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · May 10

"This mindset shift not only benefits patients with post-infectious conditions but strengthens our ability to manage other complex, poorly understood illnesses across medicine." - beautiful statement by Dr. Zeest Khan (2/2)

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · May 10

"Navigating uncertainty is not about waiting for perfect data—it is about using the best available knowledge, engaging in structured clinical reasoning, and remaining open to new insights..." (1/2)

Bateman Horne Center @batemanhornecenter.bsky.social · May 9

The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF

Graphic with a stethoscope and a doctor’s arm, displaying the text 'CLINICAL CARE GUIDE Managing ME/CFS, Long COVID, & IACCs.' The Bateman Horne Center and MERC logos are at the bottom, with a background of a deep blue gradient.

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 6

Thank you! No placebo control group for this one (would have needed more funding for the first round) but the biomarkers (blinded) will be informative in the full report. I believe PolyBio is doing a placebo-controlled for LC but I don't know which labs they'll use.

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 5

I don't have the exact numbers (will be seeing with the manuscript draft soon), but my understanding has been that adverse effects have been uncommon, with the notable one being mouth sores, consistent with other studies at this dose. Pts could stop and reintroduce at a lower dose if so.

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 4

in the overall interpretation even in this non-placebo controlled group, to be discussed in the upcoming manuscript.

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 4

I'll leave it to the study leads to share overall plans, but note that this is just aggregate data of one area assessed (patient-reported outcomes, which was what was available at the time of conference abstract submission) and so use of biomarkers and subtyping in the more full data will be helpful

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 4

Sorry all*

Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 4

We're excited too! 🙌

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 4

Great question! This will be addressed in the greater analysis in the manuscript, interesting what we may be finding in respect to infection history. :)

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 4

Thank you so much! Definitely looking forward to the full results coming out.

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 4

Thanks for the question - app participants for this study received rapamycin and were aware.

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 4

Thank you for the kind words 💙🙏

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 4

Thank you so much!

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 4

❤️

Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 4

Thank you! It was exciting to present 😁 I was limited to presenting the kind of data available at time of submission (December) so it'll be great to have the full data out in the future.

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 4

And this was with everyone combined! Paper will get to into subsets :) Thanks for sharing!

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Stephanie Grach M.D. M.S. @grachstephanie.bsky.social · Apr 3

Thank you!