HD Advocate
@hdadvocate.bsky.social
Huntington’s Disease (HD) advocate trying to speed up research. The HD gene was discovered in 1993 and we still don’t have an effective treatment. It’s time to change that.
Reposted by HD Advocate
You have “good insurance” through your job?
Well your pediatrician’s office could fold and the [oncologist, neonatologist, critical care, pediatric surgeon, pulmonologist, infectious diseases, nephrologist, etc] that your child needs may not be there anymore when half their payment base collapses.
Well your pediatrician’s office could fold and the [oncologist, neonatologist, critical care, pediatric surgeon, pulmonologist, infectious diseases, nephrologist, etc] that your child needs may not be there anymore when half their payment base collapses.
March 2, 2025 at 8:03 PM
You have “good insurance” through your job?
Well your pediatrician’s office could fold and the [oncologist, neonatologist, critical care, pediatric surgeon, pulmonologist, infectious diseases, nephrologist, etc] that your child needs may not be there anymore when half their payment base collapses.
Well your pediatrician’s office could fold and the [oncologist, neonatologist, critical care, pediatric surgeon, pulmonologist, infectious diseases, nephrologist, etc] that your child needs may not be there anymore when half their payment base collapses.
Does that mean included in attending or speaking in sessions
March 1, 2025 at 2:11 AM
Does that mean included in attending or speaking in sessions
Yes I agree that there’s a certain way to solicit funding for research.
January 2, 2025 at 8:34 PM
Yes I agree that there’s a certain way to solicit funding for research.
Thanks for sharing. There’s a lot of research happening in HD (and ALS) but we need better outcome measurements so we can offer trials to participants earlier. This is especially for those who are pre-symptomatic.
January 2, 2025 at 8:33 PM
Thanks for sharing. There’s a lot of research happening in HD (and ALS) but we need better outcome measurements so we can offer trials to participants earlier. This is especially for those who are pre-symptomatic.