I don’t think people could fathom living how people with my disease live. I haven’t seen the sky in 3 months. I only see it when I get wheeled out for appointments on a stretcher which is every 3-4 months. I have eaten the same 6 foods for almost 3 yrs now. EVERYTHING I do is in bed. This is MECFS.
February 9, 2025 at 2:48 AM
I don’t think people could fathom living how people with my disease live. I haven’t seen the sky in 3 months. I only see it when I get wheeled out for appointments on a stretcher which is every 3-4 months. I have eaten the same 6 foods for almost 3 yrs now. EVERYTHING I do is in bed. This is MECFS.
People really need hear & understand. It’s not ‘lingering symptoms’ it’s a catastrophic cascade of events lasting months & years that can and does kill people. #LongCovidKills
October 7, 2023 at 6:50 PM
People really need hear & understand. It’s not ‘lingering symptoms’ it’s a catastrophic cascade of events lasting months & years that can and does kill people. #LongCovidKills
I've decided to open my code-distribution project to folks in the disability community as well as the chronically ill community. Please help spread the word! And I continue to be grateful for donated codes. forms.gle/ohDAHronsA2t...
October 7, 2023 at 4:26 PM
I've decided to open my code-distribution project to folks in the disability community as well as the chronically ill community. Please help spread the word! And I continue to be grateful for donated codes. forms.gle/ohDAHronsA2t...