International Kidney Cancer Coalition
@ikccorg.bsky.social
International Kidney Cancer Coalition (IKCC) is the only global collaboration of patient groups working to reduce the burden of kidney cancer.
https://ikcc.org/
https://ikcc.org/
We’re a proud partner in the DISCERN project, which aims to discover the causes of three poorly understood cancers in Europe including kidney cancer. This European project aims to combine health data from almost 900,000 people across Europe, drawn from 16 long-term population studies.
February 4, 2026 at 5:47 PM
We’re a proud partner in the DISCERN project, which aims to discover the causes of three poorly understood cancers in Europe including kidney cancer. This European project aims to combine health data from almost 900,000 people across Europe, drawn from 16 long-term population studies.
🎗️ World Cancer Day | Building Trustworthy AI Together (1/7)
February 4, 2026 at 3:31 PM
🎗️ World Cancer Day | Building Trustworthy AI Together (1/7)
As a member of the Union for International Cancer Control, we are proud to stand with the global cancer community on #WorldCancerDay — and every day. #UnitedByUnique @uiccofficial.bsky.social
February 4, 2026 at 11:50 AM
As a member of the Union for International Cancer Control, we are proud to stand with the global cancer community on #WorldCancerDay — and every day. #UnitedByUnique @uiccofficial.bsky.social
Wednesday is #WorldCancerDay. When local efforts are coupled with a global approach, we can have the greatest impact. Join us in our vision to reduce the global burden of #KidneyCancer. @uiccofficial.bsky.social
February 2, 2026 at 2:39 PM
Wednesday is #WorldCancerDay. When local efforts are coupled with a global approach, we can have the greatest impact. Join us in our vision to reduce the global burden of #KidneyCancer. @uiccofficial.bsky.social
#WorldCancerDay is next week and the theme for 2025-2027 is #UnitedByUnique.
As a member of the Union for International Cancer Control, we're proud to support the day. @uiccofficial.bsky.social
As a member of the Union for International Cancer Control, we're proud to support the day. @uiccofficial.bsky.social
January 27, 2026 at 2:40 PM
#WorldCancerDay is next week and the theme for 2025-2027 is #UnitedByUnique.
As a member of the Union for International Cancer Control, we're proud to support the day. @uiccofficial.bsky.social
As a member of the Union for International Cancer Control, we're proud to support the day. @uiccofficial.bsky.social
Clinical trials look at new ways to prevent, detect, or treat disease to advance kidney cancer care. Participating in a clinical trial can be a way to access a new or otherwise unavailable treatment. (1/2)
January 6, 2026 at 12:45 PM
Clinical trials look at new ways to prevent, detect, or treat disease to advance kidney cancer care. Participating in a clinical trial can be a way to access a new or otherwise unavailable treatment. (1/2)
Happy Holidays from all of us at IKCC! Please note that we will be closed from 22 December until 5 January.
December 18, 2025 at 12:21 PM
Happy Holidays from all of us at IKCC! Please note that we will be closed from 22 December until 5 January.
2025 was a busy year for IKCC, with World Kidney Cancer Day, the Global Kidney Cancer Summit in Madrid, the Global Patient Survey Highlights Report and much more. Read Olivier Exertier’s reflections in this LinkedIn article: www.linkedin.com/pulse/end-ye... #KidneyCancer
December 15, 2025 at 4:04 PM
2025 was a busy year for IKCC, with World Kidney Cancer Day, the Global Kidney Cancer Summit in Madrid, the Global Patient Survey Highlights Report and much more. Read Olivier Exertier’s reflections in this LinkedIn article: www.linkedin.com/pulse/end-ye... #KidneyCancer
When asked about barriers to treatment, 55% of Global Patient Survey respondents said they experienced a barrier that affected their treatment. The most common barriers cited were cost of treatment (23%) and waiting times for treatment (22%). (1/3)
December 10, 2025 at 12:34 PM
When asked about barriers to treatment, 55% of Global Patient Survey respondents said they experienced a barrier that affected their treatment. The most common barriers cited were cost of treatment (23%) and waiting times for treatment (22%). (1/3)
The IKCC team is fully mobilised for #ESMOAsia25 in Singapore. Dr Munisamy Murallitharan shared the results from the IKCC global patient survey on “knowledge gaps and disparities in kidney cancer across Asia”, during a session chaired by Ravindran Kanesvaran. (1/3)
December 7, 2025 at 12:36 PM
The IKCC team is fully mobilised for #ESMOAsia25 in Singapore. Dr Munisamy Murallitharan shared the results from the IKCC global patient survey on “knowledge gaps and disparities in kidney cancer across Asia”, during a session chaired by Ravindran Kanesvaran. (1/3)
Today in Singapore, IKCC was honoured to join the APAC Oncology Summit on Genitourinary Cancer, focusing on “Bridging the Molecular Testing Gap to Drive Better Outcomes”. Congratulations to Prof Ravindran Kanesvaran, member of the IKCC Medical Advisory Board, for organising such a high-level event.
December 4, 2025 at 4:13 PM
Today in Singapore, IKCC was honoured to join the APAC Oncology Summit on Genitourinary Cancer, focusing on “Bridging the Molecular Testing Gap to Drive Better Outcomes”. Congratulations to Prof Ravindran Kanesvaran, member of the IKCC Medical Advisory Board, for organising such a high-level event.
On Tuesday, IKCC visited the National Cancer Centre Singapore with Prof Ravindran Kanesvaran and Kwang Cheak Tan, CEO of the Singapore Cancer Society. (1/2)
December 2, 2025 at 2:50 PM
On Tuesday, IKCC visited the National Cancer Centre Singapore with Prof Ravindran Kanesvaran and Kwang Cheak Tan, CEO of the Singapore Cancer Society. (1/2)
On Tuesday, IKCC met in Melbourne with Telix to discuss priorities and collaborations related to #KidneyCancer in 2026. Thank you to Simone Leyden for welcoming us at their headquarters.
November 26, 2025 at 2:25 PM
On Tuesday, IKCC met in Melbourne with Telix to discuss priorities and collaborations related to #KidneyCancer in 2026. Thank you to Simone Leyden for welcoming us at their headquarters.
Claudia Ungarelli, IKCC’s Vice-Chair, is attending the European Cancer Summit 2025 this week in Brussels. This year’s theme, "Cancer in a Changing Global Landscape: Challenges and Commitments,” underscores the importance of strong collaboration and aligned action. (1/2)
November 20, 2025 at 6:22 PM
Claudia Ungarelli, IKCC’s Vice-Chair, is attending the European Cancer Summit 2025 this week in Brussels. This year’s theme, "Cancer in a Changing Global Landscape: Challenges and Commitments,” underscores the importance of strong collaboration and aligned action. (1/2)
At the World Cancer Leader's Summit in Melbourne, IKCC is honoured to endorse the World Cancer Declaration 2025–2035. (1/3)
November 20, 2025 at 2:31 PM
At the World Cancer Leader's Summit in Melbourne, IKCC is honoured to endorse the World Cancer Declaration 2025–2035. (1/3)
This week at the World Cancer Leaders’ Summit in Melbourne, IKCC is represented by Olivier Exertier, Anne Wilson, and Carmen Vallejo Auste, with Vandana Gupta from the V Care Foundation also in attendance. (1/2)
November 19, 2025 at 4:20 PM
This week at the World Cancer Leaders’ Summit in Melbourne, IKCC is represented by Olivier Exertier, Anne Wilson, and Carmen Vallejo Auste, with Vandana Gupta from the V Care Foundation also in attendance. (1/2)
The start of November marked several leadership changes in the IKCC Board of Directors. (1/10)
November 18, 2025 at 3:52 PM
The start of November marked several leadership changes in the IKCC Board of Directors. (1/10)
Congratulations to Dr Michael Jewett, our Past Chair, on receiving the Nicholas J. Vogelzang Humanitarian Award at #IKCSNA25! This award was named after the late co-founder of the Kidney Cancer Association, and we were honoured to be at the event where he received this prestigious recognition. (1/2)
November 17, 2025 at 7:55 PM
Congratulations to Dr Michael Jewett, our Past Chair, on receiving the Nicholas J. Vogelzang Humanitarian Award at #IKCSNA25! This award was named after the late co-founder of the Kidney Cancer Association, and we were honoured to be at the event where he received this prestigious recognition. (1/2)
It's great to be at #IKCSNA25 in Denver. We've met with many leaders, including Gretchen Vaughan, President & CEO of the Kidney Cancer Association, and presented a poster on the IKCC Global Patient Survey.
(Photos: Dr Eric Jonasch, Dr Michael Jewett and Gretchen Vaughan)
#KidneyCancer
(Photos: Dr Eric Jonasch, Dr Michael Jewett and Gretchen Vaughan)
#KidneyCancer
November 15, 2025 at 8:53 PM
It's great to be at #IKCSNA25 in Denver. We've met with many leaders, including Gretchen Vaughan, President & CEO of the Kidney Cancer Association, and presented a poster on the IKCC Global Patient Survey.
(Photos: Dr Eric Jonasch, Dr Michael Jewett and Gretchen Vaughan)
#KidneyCancer
(Photos: Dr Eric Jonasch, Dr Michael Jewett and Gretchen Vaughan)
#KidneyCancer
We are excited to once again collaborate with @theaacr.bsky.social to support the AACR Scholar-in-Training Award. This award is focused on supporting early-career researchers from around the world to attend the AACR Annual Meeting and participate in this premier clinical event. (1/3)
November 13, 2025 at 4:18 PM
We are excited to once again collaborate with @theaacr.bsky.social to support the AACR Scholar-in-Training Award. This award is focused on supporting early-career researchers from around the world to attend the AACR Annual Meeting and participate in this premier clinical event. (1/3)
We are looking forward to attending the European Cancer Summit 2025. The Coalition will be represented by Claudia Ungarelli, the new Vice-Chair of IKCC, at the annual event of the European Cancer Organisation. #EuropeanCancerSummit
November 13, 2025 at 3:59 PM
We are looking forward to attending the European Cancer Summit 2025. The Coalition will be represented by Claudia Ungarelli, the new Vice-Chair of IKCC, at the annual event of the European Cancer Organisation. #EuropeanCancerSummit
Join us in recognising Malnutrition Awareness Week. We’re looking forward to learning about this important issue during a webinar on Thursday, which includes Karin Kastrati from Nierenkrebs-Netzwerk Deutschland (IKCC Partner Organization): european-nutrition.org/landing-page... #MAW2025
November 11, 2025 at 6:08 PM
Join us in recognising Malnutrition Awareness Week. We’re looking forward to learning about this important issue during a webinar on Thursday, which includes Karin Kastrati from Nierenkrebs-Netzwerk Deutschland (IKCC Partner Organization): european-nutrition.org/landing-page... #MAW2025
We are looking forward to the World Cancer Leaders' Summit 2025 next week in Melbourne. Olivier Exertier, Anne Wilson and Carmen Vallejo Auste will represent IKCC at this event organised by UICC.
November 11, 2025 at 5:42 PM
We are looking forward to the World Cancer Leaders' Summit 2025 next week in Melbourne. Olivier Exertier, Anne Wilson and Carmen Vallejo Auste will represent IKCC at this event organised by UICC.
It’s been a busy month for us at IKCC! Read all the latest in our newsletter: mailchi.mp/ikcc/newslet... #KidneyCancer
November 11, 2025 at 2:27 PM
It’s been a busy month for us at IKCC! Read all the latest in our newsletter: mailchi.mp/ikcc/newslet... #KidneyCancer