International Kidney Cancer Coalition
banner
ikccorg.bsky.social
International Kidney Cancer Coalition
@ikccorg.bsky.social
International Kidney Cancer Coalition (IKCC) is the only global collaboration of patient groups working to reduce the burden of kidney cancer.
https://ikcc.org/
We’re a proud partner in the DISCERN project, which aims to discover the causes of three poorly understood cancers in Europe including kidney cancer. This European project aims to combine health data from almost 900,000 people across Europe, drawn from 16 long-term population studies.
February 4, 2026 at 5:47 PM
We’re honoured to be a partner in the CARE1 Pragmatic Clinical Trial, a project funded by the European Union. (1/2)
February 4, 2026 at 4:51 PM
🎗️ World Cancer Day | Building Trustworthy AI Together (1/7)
February 4, 2026 at 3:31 PM
Reposted by International Kidney Cancer Coalition
World Cancer Day theme this year is United by Unique.
We know this through the people we have helped, supported and made friends with along the way.
Please follow the link to read their individual stories.

actionkidneycancer.org/help-support...
#UnitedByUnique #StrongerTogether
February 4, 2026 at 12:54 PM
As a member of the Union for International Cancer Control, we are proud to stand with the global cancer community on #WorldCancerDay — and every day. #UnitedByUnique @uiccofficial.bsky.social
February 4, 2026 at 11:50 AM
For #WorldCancerDay, share your story as part of the Upside Down Challenge. www.youtube.com/watch?v=M3Kv... #UnitedByUnique @uiccofficial.bsky.social
Take part in the Upside Down Challenge - World Cancer Day 2026.
YouTube video by World Cancer Day
www.youtube.com
February 3, 2026 at 12:25 PM
Wednesday is #WorldCancerDay. When local efforts are coupled with a global approach, we can have the greatest impact. Join us in our vision to reduce the global burden of #KidneyCancer. @uiccofficial.bsky.social
February 2, 2026 at 2:39 PM
Join KidneyCAN for this webinar on 3 February. @kidneycan.bsky.social
#KidneyCancer research continues to evolve, with new insights shaping patient care every year. Our upcoming Town Hall will explore key research advances from 2025 and emerging science for 2026.

🗓️Feb 3, 4:30–5:30 pm ET

Register: https://bit.ly/LookingBackLookingForward2026

#AcceleratingCures
January 28, 2026 at 3:41 PM
#WorldCancerDay is next week and the theme for 2025-2027 is #UnitedByUnique.

As a member of the Union for International Cancer Control, we're proud to support the day. @uiccofficial.bsky.social
January 27, 2026 at 2:40 PM
Reposted by International Kidney Cancer Coalition
PCE has launched a new physical activity and pancreatic cancer video series created for people living with pancreatic cancer. 🏌‍♀️ 🚴‍♂️ 

📽️ Video 1 kicks off the series by answering a simple but important question: What is physical activity?

Learn more: https://shorturl.at/6Pm7L
January 7, 2026 at 12:03 PM
Clinical trials look at new ways to prevent, detect, or treat disease to advance kidney cancer care. Participating in a clinical trial can be a way to access a new or otherwise unavailable treatment. (1/2)
January 6, 2026 at 12:45 PM
Reposted by International Kidney Cancer Coalition
A new approach to diagnosing #kidneycancer, called the Cambridge kidney One-Stop Mass Investigation Clinic, was trialled at Addenbrooke’s Hospital in Cambridge halving the time from biopsy to treatment decision.

Read more about the trial here:
actionkidneycancer.org/cambridge-ki...
Cambridge kidney One-Stop Mass Investigation Clinic (CkOSMIC) - Action Kidney Cancer
A new approach to diagnosing kidney cancer, called the Cambridge kidney One-Stop Mass Investigation Clinic (CkOSMIC), was trialled at Addenbrooke’s Hospital in Cambridge.
actionkidneycancer.org
December 17, 2025 at 12:01 PM
Happy Holidays from all of us at IKCC! Please note that we will be closed from 22 December until 5 January.
December 18, 2025 at 12:21 PM
It’s officially six months until World Kidney Cancer Day 2026! Stay tuned for more details and plans for 18 June 2026. #WKCD2026
December 18, 2025 at 12:10 PM
2025 was a busy year for IKCC, with World Kidney Cancer Day, the Global Kidney Cancer Summit in Madrid, the Global Patient Survey Highlights Report and much more. Read Olivier Exertier’s reflections in this LinkedIn article: www.linkedin.com/pulse/end-ye... #KidneyCancer
December 15, 2025 at 4:04 PM
When asked about barriers to treatment, 55% of Global Patient Survey respondents said they experienced a barrier that affected their treatment. The most common barriers cited were cost of treatment (23%) and waiting times for treatment (22%). (1/3)
December 10, 2025 at 12:34 PM
The IKCC team is fully mobilised for #ESMOAsia25 in Singapore. Dr Munisamy Murallitharan shared the results from the IKCC global patient survey on “knowledge gaps and disparities in kidney cancer across Asia”, during a session chaired by Ravindran Kanesvaran. (1/3)
December 7, 2025 at 12:36 PM
Today in Singapore, IKCC was honoured to join the APAC Oncology Summit on Genitourinary Cancer, focusing on “Bridging the Molecular Testing Gap to Drive Better Outcomes”. Congratulations to Prof Ravindran Kanesvaran, member of the IKCC Medical Advisory Board, for organising such a high-level event.
December 4, 2025 at 4:13 PM
We are looking forward to #ESMOAsia25 this week in Singapore. Eric Jonasch, Anne Wilson and Olivier Exertier will represent IKCC at this event with oncology experts from across the Asia-Pacific region.
👉 Excited for #ESMOAsia25 this December in Singapore?
Learn from world-class experts on cancer therapeutics, biomarkers & multidisciplinary care. Be part of shaping oncology’s future in the Asia-Pacific region! 5 – 7 December, Singapore.

⏰ Register now! #esmomeetings

🔗 buff.ly/2teazJd
December 3, 2025 at 4:10 PM
On Tuesday, IKCC visited the National Cancer Centre Singapore with Prof Ravindran Kanesvaran and Kwang Cheak Tan, CEO of the Singapore Cancer Society. (1/2)
December 2, 2025 at 2:50 PM
On Tuesday, IKCC met in Melbourne with Telix to discuss priorities and collaborations related to #KidneyCancer in 2026. Thank you to Simone Leyden for welcoming us at their headquarters.
November 26, 2025 at 2:25 PM
Claudia Ungarelli, IKCC’s Vice-Chair, is attending the European Cancer Summit 2025 this week in Brussels. This year’s theme, "Cancer in a Changing Global Landscape: Challenges and Commitments,” underscores the importance of strong collaboration and aligned action. (1/2)
November 20, 2025 at 6:22 PM
At the World Cancer Leader's Summit in Melbourne, IKCC is honoured to endorse the World Cancer Declaration 2025–2035. (1/3)
November 20, 2025 at 2:31 PM
This week at the World Cancer Leaders’ Summit in Melbourne, IKCC is represented by Olivier Exertier, Anne Wilson, and Carmen Vallejo Auste, with Vandana Gupta from the V Care Foundation also in attendance. (1/2)
November 19, 2025 at 4:20 PM
The start of November marked several leadership changes in the IKCC Board of Directors. (1/10)
November 18, 2025 at 3:52 PM