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MS Sucks 🎗

@itreallydoes.com

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MS Sucks 🎗 @itreallydoes.com · 1d

www.youtube.com/watch?v=oxd3...

Dr. Beaber always does a great job translating the data for us medically challenged. Follow him if you already don't: @brandon-beaber.bsky.social

Multiple Sclerosis Starts Years Before Symptom Onset

YouTube video by Dr. Brandon Beaber

www.youtube.com

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Reposted by MS Sucks 🎗

Kevin Byrne @kevjbyrne.bsky.social · 2d

Rest stop 1: 25 miles
Please share this special message and link: mssociety.donordrive.com/participant/...
I will personally match every donation received today to my fight, up to $10,000!
#NeverStopNeverQuitForThem #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon

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Reposted by MS Sucks 🎗

Tina Meyer 🕊🫂#resist🇺🇦 4 democracy @tinameyer.bsky.social · 2d

Interesting 👇

Yes, the need to tackle a root cause of the #MS worsening is still unmet ... As well as #remylination

FYI @itreallydoes.com

www.biospace.com/drug-develop...

Beyond BTK Inhibitors: Next Gen MS Treatments Could Transcend Symptom Management

While Bruton’s tyrosine kinase inhibitors are often hailed as the next big breakthrough in multiple sclerosis, Immunic Therapeutics and others are leveraging neuroprotective targets and remyelination ...

www.biospace.com

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MS Sucks 🎗 @itreallydoes.com · 2d

Thanks. Yeah, agreed. Tackling closer to the root cause is the key. I think crossing the blood-brain barrier like those dumbass B cells do could be a more direct route with fewer side effects.

There’s one waiting on FDA approval—Tolebrutinib. People were hyped for Oct, but it got pushed to Dec.

MS Sucks 🎗 @itreallydoes.com · 2d

Few days in Bermuda. The sea is calm, the sky is dramatic, and my MS is currently pretending to behave. Let’s see how long that lasts, it’s early 😆 #MSLife #MSSucks

A cloudy Bermuda harbor with turquoise water, stone fort walls, and white-roofed buildings. Several tour buses line the dock while a pink and white ferry waits at the pier. The scene contrasts dark storm clouds with patches of sunlight breaking through.

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MS Sucks 🎗 @itreallydoes.com · 2d

Good choice. I always have a few snacks in my bag lol

MS Sucks 🎗 @itreallydoes.com · 2d

The taste of metal is annoying. Also makes my mouth raw and can’t handle anything remotely spicy for a few weeks.

Hope you feel better soon! 🧡

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MS Sucks 🎗 @itreallydoes.com · 3d

Sadly, it might just give him the idea to inflict damage. Seems like that’s the goal in most things these days. Hopefully I’m just being cynical lol

MS Sucks 🎗 @itreallydoes.com · 3d

Dumb MS brain. Forgot to reply. Correct. I found 2 studies being conducted. Would be great if it did help some people. I’ve been on it for a few years but hasn’t helped for me but that’s just my experience. Everyone with this dumpster fire disease is different and it quite possibly could be dosing.

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MS Sucks 🎗 @itreallydoes.com · 5d

That’s brutal to have to deal with. Does it cause you to fall a lot?

MS Sucks 🎗 @itreallydoes.com · 5d

I bet I've hidden more dead bodies than you have.

New Blog Post: When #MS becomes your crappy boss.

Read ⮕ mssucks.co/j

A close-up of a person digging into the dirt at night with a shovel. Only their boots, hands, and part of their legs are visible, lit by a spotlight against a dark background.

MS Sucks 🎗 @itreallydoes.com · 10d

Need a service that if you don’t check in every 72hrs they send a wellness check lol

Reposted by MS Sucks 🎗

Paula Krebs @paulakrebs.bsky.social · 10d

Just $70 short of my goal, in case Multiple Sclerosis research is a cause you support. #BikeMS events.nationalmssociety.org/participants...

Paula at rest stop of City to Shore ride

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MS Sucks 🎗 @itreallydoes.com · 10d

LMAO

MS Sucks 🎗 @itreallydoes.com · 11d

In the same boat. I still have 2 parents mid 70’s but I’m the last of the family line. Younger brother was taken out by cancer. Maybe we need to start a club. 🧡

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MS Sucks 🎗 @itreallydoes.com · 13d

Yeah, I’ve been through most of them way back when I had A1C issues. Ended up on the one everyone wants to get skinny. Went from 10.8 to a steady 5.6.

MS Sucks 🎗 @itreallydoes.com · 13d

Deal

MS Sucks 🎗 @itreallydoes.com · 13d

I’ve considered a ratchet strap 😅

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MS Sucks 🎗 @itreallydoes.com · 13d

Figures. I’m allergic to Metformin. 😂

Reposted by MS Sucks 🎗

PinkTweets @pinktweets.bsky.social · 13d

@itreallydoes.com @elizabethjacobs.bsky.social @vivianofthesierras.bsky.social

www.theguardian.com/society/2025...

‘Exciting’ clinical results offer hope for new class of MS therapies

Cambridge trial suggests diabetes drug with antihistamine can partially repair damage in the nervous system

www.theguardian.com

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MS Sucks 🎗 @itreallydoes.com · 13d

It’s annoying. Here late it’s been happening at 4am and I end up getting irritated and just get up for the day.

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MS Sucks 🎗 @itreallydoes.com · 13d

You too!

Reposted by MS Sucks 🎗

brandon-beaber.bsky.social @brandon-beaber.bsky.social · 15d

Best Multiple Sclerosis Medicine for Preventing Disability youtu.be/3wstm5izx2o?...

Best Multiple Sclerosis Medicine for Preventing Disability

YouTube video by Dr. Brandon Beaber

youtu.be

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Reposted by MS Sucks 🎗

Kevin Byrne @kevjbyrne.bsky.social · 14d

Please support my fight against the devastating effects of multiple sclerosis. I WILL every donation with my blood, sweat, and smiles!
#NeverStopNeverQuitForThem #NSNQFT #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon

mssociety.donordrive.com/participant/...

I'm participating in Bike MS: Oregon 2025!

I’m participating in Bike MS: Oregon 2025 to raise funds for the National Multiple Sclerosis Society. Nearly one million people in the US are living with the challenges and uncertainty of multiple sc...

mssociety.donordrive.com

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MS Sucks 🎗 @itreallydoes.com · 14d

Places to put stuff is nice. I bought a few pairs of tactical pants because they have tons of pockets for stuff.

At this point I don’t leave home without a backpack which I dubbed my MS Go Bag. Spare clothes and a bunch of other stuff that this crappy condition has forced me to lug around.

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