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MS Sucks 🎗

@itreallydoes.com

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MS Sucks 🎗 @itreallydoes.com · 21m

So far, thanks. In NYC now. About to make the 2.5hr drive home. Although the legs thought they were walking home in my sleep last night 😆

MS Sucks 🎗 @itreallydoes.com · 23m

I never tried to describe it. Just figured everyone would think I was nuts. I suspect it’s tremors for me.

MS Sucks 🎗 @itreallydoes.com · 33m

Waiting for a relapse to be put on a DMT, after a dx is just bonkers. It’s screaming, let’s wait until the house burns down, then we’ll buy a fire extinguisher.

Current guidelines say DMT as soon as possible after dx. Hopefully you get what you need sooner than later.

ER’s are a time vacuum. 🧡

MS Sucks 🎗 @itreallydoes.com · 17h

For this #MSFriday some light reading and coffee. Glad it’s the last day here. Woke up this morning and my immune system choose vilonece. Ready to go back home to my own bed.

A paper cup of Starbucks coffee labeled “Sam ♥” sits on a small white table next to a book titled Close Encounters of the WTF Kind. Through the large window behind them, a sunny marina with boats, docks, and a crane is visible, with the ocean and blue sky in the distance.

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MS Sucks 🎗 @itreallydoes.com · 3d

www.youtube.com/watch?v=oxd3...

Dr. Beaber always does a great job translating the data for us medically challenged. Follow him if you already don't: @brandon-beaber.bsky.social

Multiple Sclerosis Starts Years Before Symptom Onset

YouTube video by Dr. Brandon Beaber

www.youtube.com

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Reposted by MS Sucks 🎗

Kevin Byrne @kevjbyrne.bsky.social · 3d

Rest stop 1: 25 miles
Please share this special message and link: mssociety.donordrive.com/participant/...
I will personally match every donation received today to my fight, up to $10,000!
#NeverStopNeverQuitForThem #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon

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Reposted by MS Sucks 🎗

Tina Meyer 🕊🫂#resist🇺🇦 4 democracy @tinameyer.bsky.social · 3d

Interesting 👇

Yes, the need to tackle a root cause of the #MS worsening is still unmet ... As well as #remylination

FYI @itreallydoes.com

www.biospace.com/drug-develop...

Beyond BTK Inhibitors: Next Gen MS Treatments Could Transcend Symptom Management

While Bruton’s tyrosine kinase inhibitors are often hailed as the next big breakthrough in multiple sclerosis, Immunic Therapeutics and others are leveraging neuroprotective targets and remyelination ...

www.biospace.com

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MS Sucks 🎗 @itreallydoes.com · 3d

Thanks. Yeah, agreed. Tackling closer to the root cause is the key. I think crossing the blood-brain barrier like those dumbass B cells do could be a more direct route with fewer side effects.

There’s one waiting on FDA approval—Tolebrutinib. People were hyped for Oct, but it got pushed to Dec.

MS Sucks 🎗 @itreallydoes.com · 4d

Few days in Bermuda. The sea is calm, the sky is dramatic, and my MS is currently pretending to behave. Let’s see how long that lasts, it’s early 😆 #MSLife #MSSucks

A cloudy Bermuda harbor with turquoise water, stone fort walls, and white-roofed buildings. Several tour buses line the dock while a pink and white ferry waits at the pier. The scene contrasts dark storm clouds with patches of sunlight breaking through.

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MS Sucks 🎗 @itreallydoes.com · 4d

Good choice. I always have a few snacks in my bag lol

MS Sucks 🎗 @itreallydoes.com · 4d

The taste of metal is annoying. Also makes my mouth raw and can’t handle anything remotely spicy for a few weeks.

Hope you feel better soon! 🧡

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MS Sucks 🎗 @itreallydoes.com · 5d

Sadly, it might just give him the idea to inflict damage. Seems like that’s the goal in most things these days. Hopefully I’m just being cynical lol

MS Sucks 🎗 @itreallydoes.com · 5d

Dumb MS brain. Forgot to reply. Correct. I found 2 studies being conducted. Would be great if it did help some people. I’ve been on it for a few years but hasn’t helped for me but that’s just my experience. Everyone with this dumpster fire disease is different and it quite possibly could be dosing.

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MS Sucks 🎗 @itreallydoes.com · 7d

That’s brutal to have to deal with. Does it cause you to fall a lot?

MS Sucks 🎗 @itreallydoes.com · 7d

I bet I've hidden more dead bodies than you have.

New Blog Post: When #MS becomes your crappy boss.

Read ⮕ mssucks.co/j

A close-up of a person digging into the dirt at night with a shovel. Only their boots, hands, and part of their legs are visible, lit by a spotlight against a dark background.

MS Sucks 🎗 @itreallydoes.com · 11d

Need a service that if you don’t check in every 72hrs they send a wellness check lol

Reposted by MS Sucks 🎗

Paula Krebs @paulakrebs.bsky.social · 12d

Just $70 short of my goal, in case Multiple Sclerosis research is a cause you support. #BikeMS events.nationalmssociety.org/participants...

Paula at rest stop of City to Shore ride

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MS Sucks 🎗 @itreallydoes.com · 12d

LMAO

MS Sucks 🎗 @itreallydoes.com · 13d

In the same boat. I still have 2 parents mid 70’s but I’m the last of the family line. Younger brother was taken out by cancer. Maybe we need to start a club. 🧡

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MS Sucks 🎗 @itreallydoes.com · 14d

Yeah, I’ve been through most of them way back when I had A1C issues. Ended up on the one everyone wants to get skinny. Went from 10.8 to a steady 5.6.

MS Sucks 🎗 @itreallydoes.com · 14d

Deal

MS Sucks 🎗 @itreallydoes.com · 14d

I’ve considered a ratchet strap 😅

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MS Sucks 🎗 @itreallydoes.com · 14d

Figures. I’m allergic to Metformin. 😂

Reposted by MS Sucks 🎗

PinkTweets @pinktweets.bsky.social · 14d

@itreallydoes.com @elizabethjacobs.bsky.social @vivianofthesierras.bsky.social

www.theguardian.com/society/2025...

‘Exciting’ clinical results offer hope for new class of MS therapies

Cambridge trial suggests diabetes drug with antihistamine can partially repair damage in the nervous system

www.theguardian.com

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MS Sucks 🎗 @itreallydoes.com · 14d

It’s annoying. Here late it’s been happening at 4am and I end up getting irritated and just get up for the day.

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