Jamie Hill
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jamielylehill.bsky.social
Jamie Hill
@jamielylehill.bsky.social
I'm an Actor! I think? I have long covid, so I don't know anymore. Follow my TikTok at Jamiehill5546
God, I hate that man so much.

ME/CFS research program shuts down at Columbia after Trump cuts www.statnews.com/2025/03/19/m... via @statnews.com
ME/CFS research program shuts down at Columbia after Trump cuts
ME/CFS, which affects millions of Americans, has few dedicated research centers. Now the one at Columbia has been shut down over Trump funding cuts.
www.statnews.com
March 21, 2025 at 6:51 PM
When I reopened TikTok, I got a message saying I was suspended from using promote for 10 years....What? If you follow me on TikTok, you'll see I post the least offensive content ever and try to bring awareness to the realities of Long Haul. So ya....what?

#chronicillness #TikTok #longcovid #mecfs
January 19, 2025 at 9:19 PM
So it looks like TikTok is actually getting banned? It was a way to actually connect and show the world that our Chronic Illnesses were real and that we exist as people. It also helped me pay rent. This is devastating and sets a terrible precedent going forward.
#chronicillness #longcovid #mecfs
January 16, 2025 at 2:20 PM
We reached our go fund me goal for our documentary on living with Long Covid/ MECFS! Just raising money used spoons. But It's worth it if I can do my part to help. I'm excited for what 2025 will bring.

#longcovid #mecfs #cfs #pots #chronicillness
December 30, 2024 at 2:17 PM
I think I figured out why I never used Twitter much in the first place. I talk too much and always go wayyy over the word limit. Maybe I can learn to shut up for once?
December 23, 2024 at 3:49 PM
I've started a gofundme for my documentary on Long Covid and ME/CFS. Unfortunately, the video is too long for bluesky.
Take a look and contribute if you can!!! The time for action is now.
#mecfs #longcovid #POTS #chronicillness #cfs
gofund.me/70fff0b2
Donate to Living in Hell with Long Covid: A Documentary, organized by Jamie Thompson
I'm an actor based in Atlanta, GA, that has been suffering with mild Long… Jamie Thompson needs your support for Living in Hell with Long Covid: A Documentary
gofund.me
December 2, 2024 at 6:36 PM
How I wake up every morning this time of year with Long Covid. First year of my life that I'll be alone for Christmas. It sucks, man.
#longcovid #mecfs #cfs #POTS #dysautonomia #silenthill
November 27, 2024 at 1:33 PM
When you're a hardcore sports fan but can't get emotional so you won't get sick.
#longcovid #mecfs #pots #chronicillness #sanfrancisco #49ers #acting
November 23, 2024 at 1:00 PM
90% of my Long Covid related videos are at least over 3 minutes, so I can't post them here :( Unless I'm just still completely tech illiterate and just am not getting it.
November 23, 2024 at 12:58 PM
What it feels like to stand up too fast with POTS.
#pots #longcovid #cfs #content #chronicillness ##acting #silly #wacky #funny
November 21, 2024 at 2:09 PM
Reposted by Jamie Hill
Hi @medsky.social could you possibly also make a category for #LongCovid and #MECFS specialists? With 400 million Long Covid sufferers as of 08/2024, many of which have developed ME/CFS, and such a lack of knowledgeable clinical care, this would be really helpful 🙏

www.nature.com/articles/s41...
Long COVID science, research and policy - Nature Medicine
This Review outlines the current state of scientific evidence on long COVID, discusses its impacts on patients, health systems, economies and global health metrics, and proposes a forward-looking rese...
www.nature.com
November 18, 2024 at 7:20 AM
Question for my Chronic Illness community. Mostly because I'm internet illiterate. I have an entire TikTok dedicated to Long Covid awareness. Is it acceptable to post my videos here? For those interested, my TikTok handle is @jamiehill5546

#chronicillness #longcovid #pots #cfs
November 19, 2024 at 11:15 AM
How do I find my mutual contacts on here. I know I'm computer illiterate, but I can't find anyone I know. I'm like a lost little child :(.
November 17, 2024 at 1:44 PM
I'm actively trying to get banned on Twitter whilst starting an account here. Shouldn't be too hard, right?
November 14, 2024 at 1:03 PM