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jennycrow.bsky.social @jennycrow.bsky.social · 9d

The Power of Peer Support open.substack.com/pub/mayakuza...

The Power of Peer Support

Lived Experience Matters.

open.substack.com

jennycrow.bsky.social @jennycrow.bsky.social · 17d

Maya reflects on the distinction between clinical and personal recovery after stroke. She describes how recovery is not about being who you were before but is self-determined and about becoming who you want to be. open.substack.com/pub/mayakuza...

(Re)defining Recovery

Recovering from a stroke is a journey that's physical, cognitive, mental and more...

open.substack.com

jennycrow.bsky.social @jennycrow.bsky.social · 17d

Maya explains her experience of life after stroke and how the European Life After Stroke Conference was a turning point in navigating her life post-stroke. Also what she wished she had been told - stroke professionals please read this!!
Becoming Your Own Advocate open.substack.com/pub/mayakuza...

Becoming Your Own Advocate

Fighting for continuity of care.

open.substack.com

jennycrow.bsky.social @jennycrow.bsky.social · 17d

What stroke survivors want you to know, how it helps & the value of lived experience. Excellent descriptions and important reading for professionals and the families of those adjusting to life after stroke. @louiseclark15.bsky.social @willchegwidden.bsky.social open.substack.com/pub/theesk/p...

What stroke survivors want you to know, how it helps & the value of lived experience

What Stroke Survivors Want You to Know......

open.substack.com

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jennycrow.bsky.social @jennycrow.bsky.social · 17d

A stranger’s face, a stranger’s mind
open.substack.com/pub/theesk/p...

A stranger’s face, a stranger’s mind

Thoughts of a stroke survivor

open.substack.com

jennycrow.bsky.social @jennycrow.bsky.social · Jul 30

Looking at my qualitative interviews with young people after minor stroke. 31 yr olds comment on multiple errands test ‘I am very confident I can do that but that does not in anyway mean I am fine’ #lifeafterstroke @f-geranmayeh.bsky.social @imperialbrains.bsky.social @thestrokeassoc.bsky.social

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jennycrow.bsky.social @jennycrow.bsky.social · Jun 24

That is so true!! Once our respective PhDs are handed in we need to explore some more joint working projects. #clinicalacademics #teamwork #stroke #lifeafterstroke

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jennycrow.bsky.social @jennycrow.bsky.social · Jun 23

Grateful to be interviewed by Sara Tavares, Heart Failure Specialist Nurse, clinical academic colleague about my path into advocacy for people after stroke #lifeafterstroke @pareshmalhotra.bsky.social @gemmaclunie.bsky.social @ismalias.bsky.social
academic.oup.com/eurjcn/advan...

Advocacy Spotlight Series : Jennifer Crow

Sara Tavares, Jennifer Crow; Advocacy Spotlight Series : Jennifer Crow, European Journal of Cardiovascular Nursing, , zvaf093, https://doi.org/10.1093/eurj

academic.oup.com

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jennycrow.bsky.social @jennycrow.bsky.social · Jun 3

Have a listen to this new podcast started by a member of our Imperial Stroke Public Involvement Group. I think it has the potential to evolve into a useful resource for people with stroke and their families. @imperialbrains.bsky.social @imperialperc.bsky.social shows.acast.com/talking-abou...

Talking about Strokes | Talking about Strokes

A gentle introduction.....

shows.acast.com

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jennycrow.bsky.social @jennycrow.bsky.social · Jun 3

Really looking forward to reading this editorial ‘If patients only knew’. Will message you with a few thoughts.

Masud Husain @masudhusain.bsky.social · May 30

I'm planning to write an editorial in @brain1878.bsky.social entitled "If patients only knew".
It's about obstacles that slow down or prevent people from participating in clinical studies and the pace of initiating #ClinicalTrials. If you have experience or comments please message me and repost.

jennycrow.bsky.social @jennycrow.bsky.social · May 29

Had our 2nd Imperial Stroke Public Involvement group of the year yesterday. Excellent discussions around SILENCE-CSVD trial. Celebrated attendance of 4 of our group members at the European life after stroke conference in Prague. #lifeafterstroke @imperialbrains.bsky.social @imperialperc.bsky.social

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jennycrow.bsky.social @jennycrow.bsky.social · May 17

@imperialbrains.bsky.social

Stephanie Rossit @stephanierossit.bsky.social · May 15

What an absolute pleasure it was to welcome the brilliant @f-geranmayeh.bsky.social for our seminar series at @psychologyuea.bsky.social. Fascinating and important work on using LLMs in stroke. Great speaker :)

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jennycrow.bsky.social @jennycrow.bsky.social · May 17

TIA - Neurological symptoms NOT fully resolved within 24 hours! An interesting prospective cohort study looking at fatigue up to 12 months after #TIA @ismalias.bsky.social @avrildrummond1.bsky.social @pareshmalhotra.bsky.social @imperialbrains.bsky.social
pubmed.ncbi.nlm.nih.gov/40367404/

Long-Term Fatigue Following Transient Ischemic Attack: A Prospective Cohort Study - PubMed

The study is part of the Life After Stroke Cohort (ClinicalTrials.gov: NCT05234528). Registered February 1, 2022. First patient included February 2, 2022.

pubmed.ncbi.nlm.nih.gov

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jennycrow.bsky.social @jennycrow.bsky.social · Apr 27

Watched this last night and highly recommend it
Bbc.co.uk/programmes/m0029cpt
‘Hope plays a major role in recovery’ #lifeafterstroke

BBC Two - My Brain: After the Rupture

The incredible story of Clemency Burton-Hill’s recovery following a brain haemorrhage.

Bbc.co.uk

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jennycrow.bsky.social @jennycrow.bsky.social · Apr 23

Do you use lay consent forms?

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jennycrow.bsky.social @jennycrow.bsky.social · Apr 23

Yes I had lay P.I.S which were useful for many of the participants, even those who had English as their mother tongue. The problem comes with the consent form which is so formally worded and inaccessible. With words like legal rights, regulatory authorities.

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Reposted

Stephanie Rossit @stephanierossit.bsky.social · Apr 5

I am lucky enough to Chair this organisation & work with fabulous team bringing these events together where psychological stroke research worldwide is showcased. We are looking for abstract submissions - don’t miss out! It’s THE event for research of psychological aspects of stroke! Join us!

Organisation for Psychological Research Into Stroke @opsyris.bsky.social · Mar 31

❗ #OPSYRIS2025 Abstract Deadline: 30th April! ❗

Have you submitted yours yet? ⏳ Don’t miss out!

🔗 Submit here: docs.google.com/forms/d/e/1F...

📩 More info on our website opsyris.org & newsletter tinyurl.com/3wvaye37

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jennycrow.bsky.social @jennycrow.bsky.social · Apr 2

Thanks Toby

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jennycrow.bsky.social @jennycrow.bsky.social · Apr 2

Do our well intentioned research processes exacerbate exclusion? @ismalias.bsky.social @willchegwidden.bsky.social

Paresh Malhotra @pareshmalhotra.bsky.social · Apr 2

journals.sagepub.com/doi/10.1177/...
Food for thought about (?over)protection of research participants and effects on inclusion from @jennycrow.bsky.social @imperialbrains.bsky.social

Sage Journals: Discover world-class research

Subscription and open access journals from Sage, the world's leading independent academic publisher.

journals.sagepub.com

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Reposted

Paresh Malhotra @pareshmalhotra.bsky.social · Mar 27

‘Exodus’ of clinical researchers sparks concern over future of UK healthcare in @financialtimes.com today. Lots of change needed.

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Reposted

Prof Nick Ward @prof-nick-ward.bsky.social · Mar 28

Watch this tonight about Clemency Burton-Hill's continuing fight to recover after a #stroke 5 years ago. @clemencybh www.bbc.co.uk/programmes/m...

BBC Two - My Brain: After the Rupture

The incredible story of Clemency Burton-Hill’s recovery following a brain haemorrhage.

www.bbc.co.uk

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Reposted

Avril Drummond @avrildrummond1.bsky.social · Mar 10

#lifeafterstroke #elasf2025 excellent session on secondary prevention after stroke. Medical and lifestyle issues covered but also the need to live

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Reposted

Avril Drummond @avrildrummond1.bsky.social · Mar 10

#lifeafterstroke #elasf2025 Alexia Kountouri from Cyprus talks in English about her aphasia. Involvement in research has given her a voice.

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Reposted

Avril Drummond @avrildrummond1.bsky.social · Mar 10

#lifeafterstroke #elasf2025 Hatice Ozkan - participant " I am more than my stroke"

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Reposted

Fatemeh Geranmayeh @f-geranmayeh.bsky.social · Mar 7

Well worth a read .

Masud Husain @masudhusain.bsky.social · Mar 6

Why academia is sleepwalking into self-destruction. My editorial @brain1878.bsky.social If you agree with the sentiments please repost. It's important for all our sakes to stop the madness
academic.oup.com/brain/articl...

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