kellybergin
@kellybergin.bsky.social
She/they. As Reba croons, “I’m a survivor.”Outliving every prognosis. #t1d #stat1GOF #lupus #aya #scid. On the hunt for fun, especially water slides. Fun gay aunt. Yankees fanatic. Dog Dad. Writer. ninelivesbykpb.substack.com 🏳️🌈🏳️⚧️
I'm in incredible pain. My prognosis is a year. I will spend every day in unbelievable pain until then. I wrote about why I'm enrolling in a clinical trial. I chose survival because leaving would have broken them worse than it broke me to stay. ninelivesbykpb.substack.com/p/im-still-s...
I’m Still Standing
I didn’t fall.
ninelivesbykpb.substack.com
May 4, 2025 at 3:14 AM
I'm in incredible pain. My prognosis is a year. I will spend every day in unbelievable pain until then. I wrote about why I'm enrolling in a clinical trial. I chose survival because leaving would have broken them worse than it broke me to stay. ninelivesbykpb.substack.com/p/im-still-s...
God help me, I think I’m becoming a bird person.
The wonderful Blue-throated Goldentail, one of my favorite #CostaRica hummingbirds @tapirvalley.bsky.social
#birds #hummingbirds #nature
#birds #hummingbirds #nature
April 22, 2025 at 11:01 AM
God help me, I think I’m becoming a bird person.
Spilled a Gatorade and ruined: my phone (had to get a new one), my beloved Powerbeats Pro, my iPad’s battery, and my MacBook’s charger. One spill cost me thousands of dollars. Combine this with PMDD, grief, horrible “you’re gonna die in 5 yrs if you’re lucky” medical news and you have me right now.
April 17, 2025 at 10:31 PM
Spilled a Gatorade and ruined: my phone (had to get a new one), my beloved Powerbeats Pro, my iPad’s battery, and my MacBook’s charger. One spill cost me thousands of dollars. Combine this with PMDD, grief, horrible “you’re gonna die in 5 yrs if you’re lucky” medical news and you have me right now.
Writing about the 3 weeks I spent inpatient at the #NIH while they gutted funding and cut jobs including maintainence crews. Two days later, sewage started coming out of the patients’ shower drains. Including my own. I had to switch rooms mid-vomiting attack.
March 6, 2025 at 5:01 AM
Writing about the 3 weeks I spent inpatient at the #NIH while they gutted funding and cut jobs including maintainence crews. Two days later, sewage started coming out of the patients’ shower drains. Including my own. I had to switch rooms mid-vomiting attack.
A nurse here at NIH heard I needed the basics as my stay is now for weeks. I’m quite ill. This angel nurse heard and went to Target on HER DAY OFF! She refuses to let me pay her back. That is beauty and empathy, things you’ll find at the National Institutes of health.
February 7, 2025 at 9:00 PM
A nurse here at NIH heard I needed the basics as my stay is now for weeks. I’m quite ill. This angel nurse heard and went to Target on HER DAY OFF! She refuses to let me pay her back. That is beauty and empathy, things you’ll find at the National Institutes of health.
Trying to swallow with candida esophagitis is like trying to swallow knives. I head to the NIH on Sunday or else I’d go to the ER. Unfortunately NIH is so strict about IV pain meds. Candida esophagitis is horrific; I shouldn’t have to fight for minor, short comfort. We’ll see how they are Sunday.
January 31, 2025 at 3:18 AM
Trying to swallow with candida esophagitis is like trying to swallow knives. I head to the NIH on Sunday or else I’d go to the ER. Unfortunately NIH is so strict about IV pain meds. Candida esophagitis is horrific; I shouldn’t have to fight for minor, short comfort. We’ll see how they are Sunday.
Reposted by kellybergin
Today is International Holocaust Remembrance Day. More than 90 members of my extended family were murdered. Children. Parents. Grandparents.
I'm sharing a piece I wrote in 2021. #neverforget
open.substack.com/pub/jenmen/p...
I'm sharing a piece I wrote in 2021. #neverforget
open.substack.com/pub/jenmen/p...
Serendipity
How the pieces come together
open.substack.com
January 27, 2025 at 6:24 PM
Today is International Holocaust Remembrance Day. More than 90 members of my extended family were murdered. Children. Parents. Grandparents.
I'm sharing a piece I wrote in 2021. #neverforget
open.substack.com/pub/jenmen/p...
I'm sharing a piece I wrote in 2021. #neverforget
open.substack.com/pub/jenmen/p...
I’m babysitting till midnight and I need something to watch. I don’t like anything scary, disturbing, super serious. My fav show ever is The West Wing & unfortunately, Gilmore Girls. I love the new Matlock. And High Potential. Should I watch episode 2 of #ThePitt? Help. I can’t watch another Gilmore
January 25, 2025 at 12:52 AM
I’m babysitting till midnight and I need something to watch. I don’t like anything scary, disturbing, super serious. My fav show ever is The West Wing & unfortunately, Gilmore Girls. I love the new Matlock. And High Potential. Should I watch episode 2 of #ThePitt? Help. I can’t watch another Gilmore
I fell down 6 wooden stairs in my parents’ house today and I’m fairly certain the ring and pinky are broken. They’re so swollen. My baby toe looks like Chris Farley.
January 24, 2025 at 4:04 AM
I fell down 6 wooden stairs in my parents’ house today and I’m fairly certain the ring and pinky are broken. They’re so swollen. My baby toe looks like Chris Farley.
Great coping method, cuz lol
January 23, 2025 at 9:45 PM
Great coping method, cuz lol
@ehahnmd.bsky.social hey, can I send you a private message? My friend’s niece just got diagnosed w osteosarcoma and starts chemo Friday at MSKCC and I told the mom that the pain team was great but I’m sure she’d be super reassured knowing I mentioned her name to you. Would so appreciate it. Thanks.
December 31, 2024 at 1:59 PM
@ehahnmd.bsky.social hey, can I send you a private message? My friend’s niece just got diagnosed w osteosarcoma and starts chemo Friday at MSKCC and I told the mom that the pain team was great but I’m sure she’d be super reassured knowing I mentioned her name to you. Would so appreciate it. Thanks.
“I have never cried so much in a day,” she says every couple months now. #grief #suddendeath #67istooyoung #deadDadclub
December 10, 2024 at 2:05 AM
“I have never cried so much in a day,” she says every couple months now. #grief #suddendeath #67istooyoung #deadDadclub
Not me being cranky on this app cuz I have like 40 followers lol. I keep forgetting to log on. I’m such a baby. I do think social media is built to feed resentment and envy and consumerism. And yet we persist!
Find me and my insane hair on Instagram @KellyBergin where I’m unfortunately more active
Find me and my insane hair on Instagram @KellyBergin where I’m unfortunately more active
December 9, 2024 at 5:14 PM
Not me being cranky on this app cuz I have like 40 followers lol. I keep forgetting to log on. I’m such a baby. I do think social media is built to feed resentment and envy and consumerism. And yet we persist!
Find me and my insane hair on Instagram @KellyBergin where I’m unfortunately more active
Find me and my insane hair on Instagram @KellyBergin where I’m unfortunately more active
@taylorlorenz.bsky.social tay, post these bills I got today from an ICU stay at UCLA. I’m on SSD, $1100 a month, Medicare Part A, B and D.
December 4, 2024 at 10:21 PM
@taylorlorenz.bsky.social tay, post these bills I got today from an ICU stay at UCLA. I’m on SSD, $1100 a month, Medicare Part A, B and D.
Celebrating Adelaide’s birthday without my dad really fucking hurt. Worse than Thanksgiving. Raw emotion and an empty chair don’t mix. He should fucking be here. This is them during the speech he gave with Ad at my brother’s rehearsal dinner. He died 12 days later.
December 3, 2024 at 2:58 AM
Celebrating Adelaide’s birthday without my dad really fucking hurt. Worse than Thanksgiving. Raw emotion and an empty chair don’t mix. He should fucking be here. This is them during the speech he gave with Ad at my brother’s rehearsal dinner. He died 12 days later.
It’s my middle niece’s 9th birthday. She is an incredible kid—brilliant, hard-working & deeply kind. She’s an empath so she has really struggled since my dad died unexpectedly 7 months ago. She misses him and hates seeing us all heartbroken. She is magic. So glad she had a good day.
December 3, 2024 at 2:41 AM
It’s my middle niece’s 9th birthday. She is an incredible kid—brilliant, hard-working & deeply kind. She’s an empath so she has really struggled since my dad died unexpectedly 7 months ago. She misses him and hates seeing us all heartbroken. She is magic. So glad she had a good day.
My family is too Irish Catholic to do a turkey trot. The only running we do is to the toilet to throw up the alcohol we drank last night.
November 28, 2024 at 1:23 AM
My family is too Irish Catholic to do a turkey trot. The only running we do is to the toilet to throw up the alcohol we drank last night.
Okay. Tell me where you live and how much an average cheeseburger is at a bar/tavern. I’m aghast that they’re now $18 here. (Asbury Park, NJ)
November 16, 2024 at 9:29 PM
Okay. Tell me where you live and how much an average cheeseburger is at a bar/tavern. I’m aghast that they’re now $18 here. (Asbury Park, NJ)
Peter James Matthew Kingston the Fir-irrrstttt 🎤Sing that in an annoying singsong voice and you have me conversing to my dog every day.
November 16, 2024 at 5:03 AM
Peter James Matthew Kingston the Fir-irrrstttt 🎤Sing that in an annoying singsong voice and you have me conversing to my dog every day.
Found this in my TimeHop. No one is more peak middle child than my second niece, Adelaide. Fear her. (She’s almost nine now and the kindest kid in her class according to her teacher. According to us, yes…and she will fillet you like a fish using only her words)
November 16, 2024 at 1:34 AM
Found this in my TimeHop. No one is more peak middle child than my second niece, Adelaide. Fear her. (She’s almost nine now and the kindest kid in her class according to her teacher. According to us, yes…and she will fillet you like a fish using only her words)
My dog is too attached to me. He has to be touching my arm. He’s definitely part human.
November 15, 2024 at 10:22 AM
My dog is too attached to me. He has to be touching my arm. He’s definitely part human.
Did some of my best writing recently on today’s new newsletter. Please check it out. It would mean the world to me if you subscribed. #terminaldisease #grief #loss #writing ninelivesbykpb.substack.com
November 15, 2024 at 5:49 AM
Did some of my best writing recently on today’s new newsletter. Please check it out. It would mean the world to me if you subscribed. #terminaldisease #grief #loss #writing ninelivesbykpb.substack.com