The Life Raft Group - GIST Support
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support
@liferaftgroup.bsky.social
Enhancing survival and quality of life for people living with GIST and other rare diseases through patient-powered research, education and empowerment and global advocacy efforts.

https://liferaftgroup.org/
liferaftgroup.org/donate
Your gift helps patients like Deb find knowledge, support, and hope.
Donate: bit.ly/Give-2025
#HopeForTheHolidays #ThrivingTogether #sarcoma #GIST
December 4, 2025 at 4:40 PM
GISTer Chris B shares why your gift this #GivingTuesday matters. Your support brings hope to patients and families who need it most.

Donate: bit.ly/Give-2025
#HopeForTheHolidays #ThrivingTogether #sarcoma #GIST
December 2, 2025 at 2:16 PM
We are thankful for Sammy and Ina who are sharing their story of living with GIST this November. bit.ly/COMNov2025 #patientofthemonth #caregiverofthemonth #patientstory #ThrivingTogether
November 24, 2025 at 8:10 PM
Discover the latest breakthroughs in #GISTresearch! Dr. Sobczuk from Vall d’Hebron Institute of Oncology will unpack key findings and trends shared at the #CTOS2025 Annual Meeting, offering valuable insights for the #GISTcommunity. bit.ly/CTOS-updates #GISTEducation #GIST
November 24, 2025 at 3:30 PM
An unforgettable evening filled with amazing whisky, amazing people, and a powerful mission came together to support the GIST community — see the full gallery here: bit.ly/WOLF-2025 #WhiskyEvent #NYCEvents #Fundraiser #GISTCommunity #GISTAwareness
November 20, 2025 at 7:59 PM
Day 2 highlights #CTOS2025 w/Exec. Dir. Sara Rothschild, Sr. Dir. Data Mgmt & Research Denisse Evans, & Data Analyst Jerry Call, discussing LRG posters with GIST researchers, & oncologists. Register for Updates from CTOS w/ Dr. Sobczuk bit.ly/CTOS-updates #GISTResearch #PatientReportedData
November 14, 2025 at 6:41 PM
The Life Raft Group is proud to have a strong scientific presence at #CTOS2025. Executive Director Sara Rothschild and Sr. Director of Data Management Denisse Evans are presenting our latest patient registry research through posters, a presentation, and collaboration. #GISTresearch
November 11, 2025 at 7:04 PM
We are deeply saddened to learn of the passing of Dr. Brian A. Van Tine. Dr. Van Tine was a brilliant sarcoma oncologist and a true ally to the GIST community. His research, compassion, and partnership made a meaningful impact on patients and families.
November 10, 2025 at 8:55 PM
Want your poker skills to make a difference? Every hand at Texas Hold’em Poker Tournament helps bring hope to the GIST community. Join us for an unforgettable evening! bit.ly/LRGPoker2025 #poker #GISTawareness
#novemberevents #OaklandNJEvents #fallevents #fundraiser
November 5, 2025 at 4:11 PM
October Patient of the Month Sandra shares how support and care turned her GIST diagnosis into hope and strength. Read more: bit.ly/POMOct2025
#patientofthemonth #patientstory #ThrivingTogether
October 27, 2025 at 2:07 PM