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locuscoeruleus.bsky.social
@locuscoeruleus.bsky.social
36 followers 120 following 0 posts
MD with MECFS
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Reposted
tomkindlon.bsky.social
"Results showed increased cortical thickness in the caudal anterior, isthmus, & the posterior cingulate gyrus plus the rostral middle frontal gyrus respectively along with higher gray matter volume in the posterior cingulate & the isthmus cingulate in patients with #LongCOVID."
December 10, 2024 at 2:00 AM
Reposted
daniellebeckman.bsky.social
This will get more common if we stop vaccinating pregnant woman for Covid.

Stop condemning the next generation!
#NeuroCovid
#LongCovidKids

Thanks @davidjoffe64.bsky.social for sending it, once again, nightmare stuff 😖.
Manuscript published on Dec 5, title reads: Cranial ultrasonographic findings in newborns exposed to SARS-CoV-2: a single-centre cross-sectional analysis
December 7, 2024 at 7:21 PM
Reposted
longcovidfam.bsky.social
COVID Exposure Linked to Higher Brain Abnormalities in Newborns

Babies exposed to COVID during pregnancy or birth showed more brain abnormalities (23%) compared to babies who were not exposed (16.5%). More studies are needed, but ultrasounds could help check for these changes in newborns.
Cranial ultrasonographic findings in newborns exposed to SARS-CoV-2: a single-centre cross-sectional analysis - Italian Journal of Pediatrics
Background SARS-CoV-2’s potential consequences on the developing brain are still unknown. The aim of this study was to describe cranial ultrasonographic (cUS) findings in a population of newborns expo...
ijponline.biomedcentral.com
December 8, 2024 at 12:36 AM
Reposted
tomkindlon.bsky.social
Press release:
Immune T cells become exhausted in chronic fatigue syndrome patients

www.eurekalert.org/news-release...

Longer piece from same university with more quotes:
news.cornell.edu/stories/2024...

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
News Release 3-Dec-2024 Immune T cells become exhausted in chronic fatigue syndrome patients Peer-Reviewed Publication Cornell University ITHACA, N.Y. – Chronic fatigue syndrome creates conditions where pathogen-killing immune T cells become exhausted, according to a new Cornell University study. The study’s authors knew the immune system was dysregulated in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) but wondered which parts shift with the condition. A systematic exploration revealed that key CD8+ T cells displayed one of the most pronounced signatures of dysregulation, with signs of constant stimulation that lead to an exhausted state, a condition that is well-studied in cancer. “This is an important finding for ME/CFS because now we can examine the T cells more carefully, and hopefully by looking in the exhausted cells we can start to get hints as to what they are responding to,” said Andrew Grimson, professor of molecular biology and co-corresponding author of the study. Maureen Hanson, professor of molecular biology and genetics, is the other corresponding author.
December 4, 2024 at 1:56 AM
Reposted
bhanlon15.bsky.social
PS: 'Millions Are Suffering From Chronic Fatigue Syndrome — So Where’s the Urgency?'

'ME/CFS had the lowest NIH funding relative to disease burden, estimating that it would take $203 million dollars to properly address 2017 levels of burden'

www.popsugar.com/fitness/mecf...
Millions Are Suffering From Chronic Fatigue Syndrome — So Where’s the Urgency?
Myalgic encephalomyelitis/chronic fatigue syndrome affects up to 2.5 million Americans. Why is research is actively neglected?
www.popsugar.com
November 29, 2024 at 2:54 PM
Reposted
bhanlon15.bsky.social
Health Day: “Young and Middle-Aged Adults at Higher Risk of Long COVID than Seniors”

‘A new study finds younger and middle-aged adults suffer worse symptoms of Long COVID than people 65 and older’

www.healthday.com/healthday-tv...
Young and Middle-Aged Adults at Higher Risk of Long COVID than Seniors
It looks like Long COVID takes a bigger toll on younger and middle-aged adults than seniors, a new study finds.Researchers at Northwestern Medicine weren’t expe
www.healthday.com
November 22, 2024 at 10:32 PM
Reposted
tmprowell.bsky.social
#COVID19 doubles risk of heart problems for 3y. Those hospitalized for #COVID19 are ~4x ⬆️ risk of heart attack, stroke, or die in next 3y compared to un-infected. #MedSky, are you managing cardiac risk in your pts prev hospitalized for Covid as if they had prior MI?

www.nytimes.com/2024/11/22/w...
Covid Can Raise the Risk of Heart Problems for Years (Gift Article)
People who had severe infections are especially vulnerable.
www.nytimes.com
November 23, 2024 at 9:44 PM
Reposted
tomkindlon.bsky.social
New 4-minute sympathetic video

"The Basics: Diagnosing ME/CFS"

www.youtube.com/watch?v=8LXI...

Focuses on the National Academy of Medicine/IoM criteria.

Other symptoms are briefly mentioned

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Photo of Clayton Powers National Academy of Medicine (NAM) CLINICAL DIAGNOSTIC CRITERIA • Impairment of normal function accompanied by fatigue persisting > 6 months • Post-exertional malaise (PEM)* ⚫ Unrefreshing sleep* • Plus at least one of the following: -Cognitive impairment* -Orthostatic intolerance *Must be moderate-severe and present > 50% of time Other common but more variable features of illness: Pain (headache, muscle and joint aches, hyperalgesia) • Immune manifestations (allergy, inflammation, sensitivities) • Infection (viral or atypical infections) The Basics: Diagnosing ME/CFS Bateman Horne Center 13.9K subscribers 140 views 16 Nov 2024 Clayton Powers, DPT, discusses the basics of diagnosing myalgic encephalomyelitis (ME/CFS). • ME/CFS description Symptoms that meet the diagnostic criteria This video is the third in our series called The Basics. Other videos cover post-exertional malaise (PEM) and orthostatic intolerance.
November 16, 2024 at 11:27 PM
Reposted
sunsopeningband.bsky.social
Here’s the thing with symptom-titrated exercise in #MECFS, friends:
1. You never get away from the energy robbing nature of this disease
2. Never
3. See #1 and #2

If all your patients miraculously seem to improve in response to your special exercise regimen, they’re probably talking to me instead.
November 16, 2024 at 7:03 AM