One patient story. One room that listened. One national policy changed.

Watch how Robert Joyce helped shift the system — simply by speaking up.

#PFMD #MadeWithPatients #PEOF2025

On #IDPD, we’re reminded that access, inclusion, and participation are fundamental rights. In MedTech, real-world experience shapes what truly works. Let’s commit to innovations co-created with patients, not just delivered. 
Learn more at pemsuite.org.

#DisabilityInclusion #PatientEngagement

Preclinical research often lacks patient voices. At the @knaw-nl.bsky.social session “International perspective on patient and citizen participation in financing processes”, PFMD highlighted how funders can embed engagement into grants, shaping patient-centered research from the start.
#PE

At #PEOF2025, BMJ’s Emma Doble shared how patients are shaping research. As reviewers, authors & partners, they are redefining what credible science looks like: evidence built with empathy.

Watch her speak:

#PFMD #MwP

10 years of shared frameworks have turned PE into evidence shaping science, policy & care. As the EMA consultation continues, it marks a collective opportunity to embed lasting change in how patient experience data informs health decisions.

Explore more: pemsuite.org

#PE #EMA

PFMD's PE Intelligence data shows patient input drives real financial value with 61 days saved per avoided protocol change & 500x ROI from initial PE investment. Patient engagement is now a strategic lever reshaping costs, risk, and speed in clinical development.

#PatientEngagement

The latest OECD Health at a Glance report shows progress. The real opportunity now is a deeper partnership with patients — listening, involving & co-creating care that builds trust and strengthens every interaction.
 
Full report: oe.cd/6gn
 
#HealthAtAGlance #OECD #PE

One patient story. One room that listened. One national policy changed.
Watch how Robert Joyce helped shift the system — simply by speaking up.

#PFMD #MadeWithPatients #PEOF2025
#PolicyChange

“Inclusion is a scientific necessity.” Lara Bloom, President & CEO of The Ehlers-Danlos Society & 2025 Made With Patients Champion, shares why lived experience must stay central to human-centered research. -
#PEOF #PE

Turning patient experience into evidence is no longer a vision; it’s happening now!

Learn how your organisation can lead this shift with 7 takeaways on advancing Patient Experience Data (PED).

Read more: tinyurl.com/mtwsbse5

#PatientEngagement #HealthData #PFMD

Tomorrow’s the day!

Join us for #Lunch&Learn: Rules of Engagement – Navigating Codes of Conduct for Patient Engagement (II) to explore how trade associations’ Codes of Conduct shape pharma–patient collaboration.

Not registered yet? Do it now 👉 tinyurl.com/ymtvfb6r

#PatientEngagement #PEOF2025

Our Lunch & Learn: Rules of Engagement II on Oct 28, 13:30–14:30 CET will explore real examples, key rules, and how PFMD Country Guidelines support your work. Submit your questions in advance to [email protected]

Register now! patientengagement.synapseconnect.org/events/lunch...

#PEOF #PFMD

A truly insightful session at PEOF!

Unlocking Patient Engagement Intelligence highlighted the power of patient voices in shaping healthcare decisions.

Grateful to our program director, jury, speakers, and all participants for their contributions.

#PatientEngagement #MadeWithPatients #PEOF2025

Over the past decade, the PE community has helped turn patient engagement from isolated pilots into a shared global practice. Now, the EMA’s Reflection Paper marks a defining moment, validating this collective progress.

Let’s make this count. tinyurl.com/5n86p3rw

#PFMD #EMA #PatientExperienceData

Clinical research often overlooks Africa’s realities. Our recent webinar showed the path forward: local leadership, community voices & systems change drive impact. The Africa Working Group is uniting voices—join us. Link in the comments.

#GlobalHealth #ClinicalResearch#CommunityLeadership

The 2025 #MadeWithPatients Awards offered something rare: a shared pause. A moment to witness the quiet power of patient-led transformation.
🎥 Watch the full ceremony. Link in comments.
Follow this space as we share lessons that will guide the next steps.

#PatientEngagement#HealthcarethatListens