Patient Focused Medicines Development (PFMD)
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madewithpatients.bsky.social
Patient Focused Medicines Development (PFMD)
@madewithpatients.bsky.social
34 followers 33 following 36 posts
We are a multi-stakeholder coalition uniting the people, frameworks, and tools needed to make patient engagement a standard in healthcare worldwide.
Visit us at https://patientfocusedmedicine.org/
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madewithpatients.bsky.social
One patient story. One room that listened. One national policy changed.

Watch how Robert Joyce helped shift the system — simply by speaking up.

#PFMD #MadeWithPatients #PEOF2025
December 4, 2025 at 1:00 PM
madewithpatients.bsky.social
At #PEOF2025, BMJ’s Emma Doble shared how patients are shaping research. As reviewers, authors & partners, they are redefining what credible science looks like: evidence built with empathy.

Watch her speak:

#PFMD #MwP
November 27, 2025 at 12:56 PM
madewithpatients.bsky.social
One patient story. One room that listened. One national policy changed.
Watch how Robert Joyce helped shift the system — simply by speaking up.

#PFMD #MadeWithPatients #PEOF2025
#PolicyChange
November 20, 2025 at 12:54 PM
madewithpatients.bsky.social
“Inclusion is a scientific necessity.” Lara Bloom, President & CEO of The Ehlers-Danlos Society & 2025 Made With Patients Champion, shares why lived experience must stay central to human-centered research. -
#PEOF #PE
November 17, 2025 at 1:14 PM