@mary-saunders.bsky.social
Please, please sign and share this petition for funding for desperately needed thyroid clinics 🙏🙏🙏
petition.parliament.uk/petitions/73...
petition.parliament.uk/petitions/73...
November 16, 2025 at 9:37 PM
Please, please sign and share this petition for funding for desperately needed thyroid clinics 🙏🙏🙏
petition.parliament.uk/petitions/73...
petition.parliament.uk/petitions/73...
Reposted
stay humble biologists. impossible to know even a fraction of things biology is doing
November 4, 2025 at 7:24 PM
stay humble biologists. impossible to know even a fraction of things biology is doing
Reposted
Join us tomorrow for our next online event with Dr Georgina Conway & Nicole Goode!
Get tickets here: www.eventbrite.co.uk/e/taking-a-h...
Get tickets here: www.eventbrite.co.uk/e/taking-a-h...
November 1, 2025 at 3:57 PM
Join us tomorrow for our next online event with Dr Georgina Conway & Nicole Goode!
Get tickets here: www.eventbrite.co.uk/e/taking-a-h...
Get tickets here: www.eventbrite.co.uk/e/taking-a-h...
Well done to the BTF for amending the wording on their 'Myths and Misconceptions' page following correspondence about DIO2 genetic testing. There's more work to be done on this and other information on this webpage, but at least it's a start.
The British Thyroid Foundation recently wrote in response to my article in Nature Reviews Endocrinology (published in May) defending their position against thyroid patients using private testing for blood and genetic tests 🤷 My reply to the BTF is here: rdcu.be/eHYv3
Reply to ‘Why the science on T3 and genomics is not settled’
Nature Reviews Endocrinology - Reply to ‘Why the science on T3 and genomics is not settled’
rdcu.be
October 30, 2025 at 12:11 PM
Well done to the BTF for amending the wording on their 'Myths and Misconceptions' page following correspondence about DIO2 genetic testing. There's more work to be done on this and other information on this webpage, but at least it's a start.
In 2008 my hypothyroid diagnosis would have been missed with a TSH only test, b/c it was low normal at 2.9. But my FT4 was below the ref. range minimum 🤦 Luckily for me T4 tests were routinely ordered to check thyroid status then. Even T3 was checked. Highly likely my diagnosis would be missed today
October 30, 2025 at 11:56 AM
In 2008 my hypothyroid diagnosis would have been missed with a TSH only test, b/c it was low normal at 2.9. But my FT4 was below the ref. range minimum 🤦 Luckily for me T4 tests were routinely ordered to check thyroid status then. Even T3 was checked. Highly likely my diagnosis would be missed today
Reposted
Outstanding reply, Mary!! Very professional and well-stated.
I hope it does some good. You did a GREAT job with this!! 😀
I hope it does some good. You did a GREAT job with this!! 😀
October 3, 2025 at 4:45 PM
Outstanding reply, Mary!! Very professional and well-stated.
I hope it does some good. You did a GREAT job with this!! 😀
I hope it does some good. You did a GREAT job with this!! 😀
The British Thyroid Foundation recently wrote in response to my article in Nature Reviews Endocrinology (published in May) defending their position against thyroid patients using private testing for blood and genetic tests 🤷 My reply to the BTF is here: rdcu.be/eHYv3
Reply to ‘Why the science on T3 and genomics is not settled’
Nature Reviews Endocrinology - Reply to ‘Why the science on T3 and genomics is not settled’
rdcu.be
October 3, 2025 at 4:35 PM
The British Thyroid Foundation recently wrote in response to my article in Nature Reviews Endocrinology (published in May) defending their position against thyroid patients using private testing for blood and genetic tests 🤷 My reply to the BTF is here: rdcu.be/eHYv3
This is everything that's wrong with treating hypothyroidism in 2025 🤦https://pubmed.ncbi.nlm.nih.gov/40785434/ 'Most respondents [treating physicians] attributed persistent symptoms in LT4-treated patients to psychosocial factors, comorbidities, or unrealistic expectations'.
September 21, 2025 at 9:57 PM
This is everything that's wrong with treating hypothyroidism in 2025 🤦https://pubmed.ncbi.nlm.nih.gov/40785434/ 'Most respondents [treating physicians] attributed persistent symptoms in LT4-treated patients to psychosocial factors, comorbidities, or unrealistic expectations'.
I am constantly frustrated by the claim that patients are not compliant with their Levothyroxine to explain continuing, unresolved symptoms. Yet how often do Drs only focus on the TSH, rather than THs and fail to test patients at the optimal time for accurate blood test status?
September 5, 2025 at 2:51 PM
I am constantly frustrated by the claim that patients are not compliant with their Levothyroxine to explain continuing, unresolved symptoms. Yet how often do Drs only focus on the TSH, rather than THs and fail to test patients at the optimal time for accurate blood test status?
Please share my post if you would like to see better hypothyroid care for patients. We need prompt, accurate diagnosis and appropriate treatment, including access to liothyronine, T3 for those who need it. Or send your own story to Patient Safety Learning
🆕Removing barriers to vital thyroid hormone (L-T3) could improve outcomes🆕
A new blog by Mary Saunders, a patient with hypothyroidism, featured on the hub today. pslhub.org/learn/commis... @mary-saunders.bsky.social @thyroiduk.bsky.social
A new blog by Mary Saunders, a patient with hypothyroidism, featured on the hub today. pslhub.org/learn/commis... @mary-saunders.bsky.social @thyroiduk.bsky.social
Removing barriers to vital thyroid hormone (L-T3) could improve outcomes
Mary Saunders is a patient with hypothyroidism. In this blog she outlines her patient safety concerns relating to the restricted access of a synthetic hormone called L-T3. Mary calls for clarification...
pslhub.org
July 29, 2025 at 8:45 AM
Please share my post if you would like to see better hypothyroid care for patients. We need prompt, accurate diagnosis and appropriate treatment, including access to liothyronine, T3 for those who need it. Or send your own story to Patient Safety Learning
Reposted
🆕Removing barriers to vital thyroid hormone (L-T3) could improve outcomes🆕
A new blog by Mary Saunders, a patient with hypothyroidism, featured on the hub today. pslhub.org/learn/commis... @mary-saunders.bsky.social @thyroiduk.bsky.social
A new blog by Mary Saunders, a patient with hypothyroidism, featured on the hub today. pslhub.org/learn/commis... @mary-saunders.bsky.social @thyroiduk.bsky.social
Removing barriers to vital thyroid hormone (L-T3) could improve outcomes
Mary Saunders is a patient with hypothyroidism. In this blog she outlines her patient safety concerns relating to the restricted access of a synthetic hormone called L-T3. Mary calls for clarification...
pslhub.org
July 29, 2025 at 8:19 AM
🆕Removing barriers to vital thyroid hormone (L-T3) could improve outcomes🆕
A new blog by Mary Saunders, a patient with hypothyroidism, featured on the hub today. pslhub.org/learn/commis... @mary-saunders.bsky.social @thyroiduk.bsky.social
A new blog by Mary Saunders, a patient with hypothyroidism, featured on the hub today. pslhub.org/learn/commis... @mary-saunders.bsky.social @thyroiduk.bsky.social
Reposted
We have two types of collection boxes, not only do they help to raise vital funds, they also create awareness of Thyroid UK’s important work. See them both here thyroiduk.org/support-us/m....
July 24, 2025 at 10:00 AM
We have two types of collection boxes, not only do they help to raise vital funds, they also create awareness of Thyroid UK’s important work. See them both here thyroiduk.org/support-us/m....
Reposted
If those in power do not tell the truth, how can we trust them with that power? From Tom Serpell.
Hope for truth
If those in power do not tell the truth, how can we trust them with that power?
sussexbylines.co.uk
July 24, 2025 at 12:37 PM
If those in power do not tell the truth, how can we trust them with that power? From Tom Serpell.
Reposted
Best advice I got. The male doc I’d seen for 2 yrs kept telling me I had allergies & an unhealthy gut biome. Switched to a female doc & diagnosed with hypothyroidism, perimenopause, & and a fibroid cyst that caused heavy periods within the first two visits. She saved my sanity and life.
June 2, 2025 at 7:07 PM
Best advice I got. The male doc I’d seen for 2 yrs kept telling me I had allergies & an unhealthy gut biome. Switched to a female doc & diagnosed with hypothyroidism, perimenopause, & and a fibroid cyst that caused heavy periods within the first two visits. She saved my sanity and life.
Reposted
Wanna know something weird? I have Graves Disease AND Hashimoto's Thyroiditis at the SAME TIME. One gives you hyperthyroidism (Graves) and one gives you hypothyroidism (Hashimoto's). Right now the Graves antibodies are leaving me alone pretty much so I get to have hypothyroidism.
June 26, 2025 at 4:00 AM
Wanna know something weird? I have Graves Disease AND Hashimoto's Thyroiditis at the SAME TIME. One gives you hyperthyroidism (Graves) and one gives you hypothyroidism (Hashimoto's). Right now the Graves antibodies are leaving me alone pretty much so I get to have hypothyroidism.
Very interesting article that suggests lower T3 is associated with increased risk of mortality and dementia:
academic.oup.com/jcem/advance...
academic.oup.com/jcem/advance...
June 21, 2025 at 4:57 PM
Very interesting article that suggests lower T3 is associated with increased risk of mortality and dementia:
academic.oup.com/jcem/advance...
academic.oup.com/jcem/advance...
Reposted
Help to support and raise awareness of Thyroid UK by purchasing a wristband, ribbon or pin badge. We have many awareness products available in our online shop thyroiduk.org/product-cate....
June 8, 2025 at 10:01 AM
Help to support and raise awareness of Thyroid UK by purchasing a wristband, ribbon or pin badge. We have many awareness products available in our online shop thyroiduk.org/product-cate....
Reposted
New on the hub today: Liothyronine treatment for hypothyroidism — a patient’s view. @mary-saunders.bsky.social shares her experience as a patient living with hypothyroidism for 16 years (via @natrevendo.nature.com). www.pslhub.org/learn/commis...
Liothyronine treatment for hypothyroidism — a patient’s view
A patient living with hypothyroidism for 16 years share their experience
www.pslhub.org
June 5, 2025 at 2:05 PM
New on the hub today: Liothyronine treatment for hypothyroidism — a patient’s view. @mary-saunders.bsky.social shares her experience as a patient living with hypothyroidism for 16 years (via @natrevendo.nature.com). www.pslhub.org/learn/commis...
Reposted
My article's been accepted by
@ptsafetylearn
It seems to be resonating with many hypothyroid pts sadly. Please share to raise awareness of the need for improved diagnosis and treatment of this chronic poorly treated illness. You can read in full here rdcu.be/el9CM
@ptsafetylearn
It seems to be resonating with many hypothyroid pts sadly. Please share to raise awareness of the need for improved diagnosis and treatment of this chronic poorly treated illness. You can read in full here rdcu.be/el9CM
June 5, 2025 at 1:10 PM
My article's been accepted by
@ptsafetylearn
It seems to be resonating with many hypothyroid pts sadly. Please share to raise awareness of the need for improved diagnosis and treatment of this chronic poorly treated illness. You can read in full here rdcu.be/el9CM
@ptsafetylearn
It seems to be resonating with many hypothyroid pts sadly. Please share to raise awareness of the need for improved diagnosis and treatment of this chronic poorly treated illness. You can read in full here rdcu.be/el9CM
June 5, 2025 at 11:48 AM
My article's been accepted by
@ptsafetylearn
It seems to be resonating with many hypothyroid pts sadly. Please share to raise awareness of the need for improved diagnosis and treatment of this chronic poorly treated illness. You can read in full here rdcu.be/el9CM
@ptsafetylearn
It seems to be resonating with many hypothyroid pts sadly. Please share to raise awareness of the need for improved diagnosis and treatment of this chronic poorly treated illness. You can read in full here rdcu.be/el9CM
June 5, 2025 at 11:36 AM
My article's been accepted by
@ptsafetylearn
It seems to be resonating with many hypothyroid pts sadly. Please share to raise awareness of the need for improved diagnosis and treatment of this chronic poorly treated illness. You can read in full here rdcu.be/el9CM
@ptsafetylearn
It seems to be resonating with many hypothyroid pts sadly. Please share to raise awareness of the need for improved diagnosis and treatment of this chronic poorly treated illness. You can read in full here rdcu.be/el9CM
Reposted
Our book is now available in printed form. Use the code SPRAUT to get a discount of 20% at Springer Nature.
link.springer.com/book/9789819...
link.springer.com/book/9789819...
June 4, 2025 at 4:13 PM
Our book is now available in printed form. Use the code SPRAUT to get a discount of 20% at Springer Nature.
link.springer.com/book/9789819...
link.springer.com/book/9789819...
Reposted
It is the usual, nay - universal, claim.
Instance that timing makes no difference - neither circadian, nor relative to taking medicines incl. thyroid hormones, food, etc.
Instance that timing makes no difference - neither circadian, nor relative to taking medicines incl. thyroid hormones, food, etc.
June 4, 2025 at 1:06 PM
It is the usual, nay - universal, claim.
Instance that timing makes no difference - neither circadian, nor relative to taking medicines incl. thyroid hormones, food, etc.
Instance that timing makes no difference - neither circadian, nor relative to taking medicines incl. thyroid hormones, food, etc.
Reposted
Very much appreciate.
Thyroid management has so many points of failure.
One seemingly utterly trivial issue is when a blood draw is done. Time of day alone can make the difference between being diagnosed and being dismissed.
And it just gets worse.
Thyroid management has so many points of failure.
One seemingly utterly trivial issue is when a blood draw is done. Time of day alone can make the difference between being diagnosed and being dismissed.
And it just gets worse.
June 4, 2025 at 12:35 PM
Very much appreciate.
Thyroid management has so many points of failure.
One seemingly utterly trivial issue is when a blood draw is done. Time of day alone can make the difference between being diagnosed and being dismissed.
And it just gets worse.
Thyroid management has so many points of failure.
One seemingly utterly trivial issue is when a blood draw is done. Time of day alone can make the difference between being diagnosed and being dismissed.
And it just gets worse.
Reposted
The Society for Endocrinology's Clinical Committee has commissioned a new guideline to support clinicians in the investigation and management of patients with androgen excess. 📄
Explore the new guideline and enhance your clinical practice with expert-backed recommendations 👉 bit.ly/4dKF0aR
Explore the new guideline and enhance your clinical practice with expert-backed recommendations 👉 bit.ly/4dKF0aR
June 4, 2025 at 8:00 AM
The Society for Endocrinology's Clinical Committee has commissioned a new guideline to support clinicians in the investigation and management of patients with androgen excess. 📄
Explore the new guideline and enhance your clinical practice with expert-backed recommendations 👉 bit.ly/4dKF0aR
Explore the new guideline and enhance your clinical practice with expert-backed recommendations 👉 bit.ly/4dKF0aR