The reason they give “we just pulled anything ME/CFS related from clinical trials . gov

is completely honest mistake IMO

The doubling down when criticised going on about “everything on there is reviewed by ethics boards

Put a bitter taste in my mouth.

Felt very “damage control PR” not genuine.

Hi, would it be possible to use alt texts on images to make them accessible. Thank you.

Thank you for fighting for pwME.

🫂🫂

Visualisation of the NHS’s new pandemic policy

I mean „the times“ link sorry.

Hi George, thank you for sharing this. Just so you know, share.google links like you shared have trackers in them that hoover up data for data brokers (in this case google).

Using the normal guardian link would be preferable.

I’d be very interested in you elaborating what exactly you mean by “unmet medical need”.

Is this an EU category?

Perhaps we should start a S4ME discussion?

Oh I agree totally. I’m against the police or the state as an institution, even borders.

But I just think it’s a good talking point to get liberals on board.

Plus ICE is rather new. Most people don’t realise it didn’t even exist under Reagan or Bush Sr.

Hi could you use alt text on photos with text inside them please.

I agree. PwME deserve reparations.

Hi. I really appreciate your posts but could I ask you use alt texts to make these types accessible to blind and low vision people (and others who need it).

“Don’t let the bastards grind you down. I love you all.”