Yann (ME/LC)
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me-cfs.bsky.social
Yann (ME/LC)
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.

I care.

Ⓐ💚, (FR/DE/EN, but posts in english)

Clinging onto the ledge above the abyss.
The reason they give “we just pulled anything ME/CFS related from clinical trials . gov

is completely honest mistake IMO

The doubling down when criticised going on about “everything on there is reviewed by ethics boards

Put a bitter taste in my mouth.

Felt very “damage control PR” not genuine.
December 6, 2025 at 9:31 PM
Hi, would it be possible to use alt texts on images to make them accessible. Thank you.
December 6, 2025 at 1:43 PM
Thank you for fighting for pwME.
December 6, 2025 at 1:30 PM
🫂🫂
December 5, 2025 at 8:21 PM
Visualisation of the NHS’s new pandemic policy
December 5, 2025 at 7:52 PM
I mean „the times“ link sorry.
December 4, 2025 at 4:38 PM
Hi George, thank you for sharing this. Just so you know, share.google links like you shared have trackers in them that hoover up data for data brokers (in this case google).

Using the normal guardian link would be preferable.
share.google
share.google
December 4, 2025 at 4:37 PM
I’d be very interested in you elaborating what exactly you mean by “unmet medical need”.

Is this an EU category?

Perhaps we should start a S4ME discussion?
December 3, 2025 at 4:57 PM
Oh I agree totally. I’m against the police or the state as an institution, even borders.

But I just think it’s a good talking point to get liberals on board.
November 29, 2025 at 11:22 AM
Plus ICE is rather new. Most people don’t realise it didn’t even exist under Reagan or Bush Sr.
November 28, 2025 at 8:05 PM
Hi could you use alt text on photos with text inside them please.
November 28, 2025 at 1:31 PM
I agree. PwME deserve reparations.
November 28, 2025 at 1:27 PM
Hi. I really appreciate your posts but could I ask you use alt texts to make these types accessible to blind and low vision people (and others who need it).
November 15, 2025 at 9:08 PM
Reposted by Yann (ME/LC)
“Don’t let the bastards grind you down. I love you all.”
November 15, 2025 at 6:15 AM