Myrl
@myrljohnson.bsky.social
Fan of books, movies, family, friends, recipes, beaches, mountains
Always looking for information and inspiration; #pwME #pwMCAS
Ally
Try to be of service
Always looking for information and inspiration; #pwME #pwMCAS
Ally
Try to be of service
Happy Birthday!
I get such joy reading your posts.
I’m mostly home bound, but I was more like you.
May you have a terrific day.
Be safe in Colorado.
Big beautiful country.
🐕🦮🐩🐕🦺🐾
🩺🩻🥼👩⚕️
✈️🚗🚘
I get such joy reading your posts.
I’m mostly home bound, but I was more like you.
May you have a terrific day.
Be safe in Colorado.
Big beautiful country.
🐕🦮🐩🐕🦺🐾
🩺🩻🥼👩⚕️
✈️🚗🚘
December 18, 2025 at 1:49 PM
Happy Birthday!
I get such joy reading your posts.
I’m mostly home bound, but I was more like you.
May you have a terrific day.
Be safe in Colorado.
Big beautiful country.
🐕🦮🐩🐕🦺🐾
🩺🩻🥼👩⚕️
✈️🚗🚘
I get such joy reading your posts.
I’m mostly home bound, but I was more like you.
May you have a terrific day.
Be safe in Colorado.
Big beautiful country.
🐕🦮🐩🐕🦺🐾
🩺🩻🥼👩⚕️
✈️🚗🚘
Were not on Medicaid,
current w bills and finally got a job w good insurance. Hired in 92, promised insurance for life, mom went on strike, I walked out, took a pay cut
They took that extra insurance from us in 2018-2 years after I retired
True story-American medical care
Many folks have it worse
current w bills and finally got a job w good insurance. Hired in 92, promised insurance for life, mom went on strike, I walked out, took a pay cut
They took that extra insurance from us in 2018-2 years after I retired
True story-American medical care
Many folks have it worse
December 17, 2025 at 11:16 AM
Were not on Medicaid,
current w bills and finally got a job w good insurance. Hired in 92, promised insurance for life, mom went on strike, I walked out, took a pay cut
They took that extra insurance from us in 2018-2 years after I retired
True story-American medical care
Many folks have it worse
current w bills and finally got a job w good insurance. Hired in 92, promised insurance for life, mom went on strike, I walked out, took a pay cut
They took that extra insurance from us in 2018-2 years after I retired
True story-American medical care
Many folks have it worse
Second child had seizures at 12. Had to research myself. Hard to get help. More crazy bills. Less coverage.
My kids learned that the insurance package from employer was paramount
When ACA arrived, we were so grateful.
But told it didn’t apply to us. Smh
My kids learned that the insurance package from employer was paramount
When ACA arrived, we were so grateful.
But told it didn’t apply to us. Smh
December 17, 2025 at 11:16 AM
Second child had seizures at 12. Had to research myself. Hard to get help. More crazy bills. Less coverage.
My kids learned that the insurance package from employer was paramount
When ACA arrived, we were so grateful.
But told it didn’t apply to us. Smh
My kids learned that the insurance package from employer was paramount
When ACA arrived, we were so grateful.
But told it didn’t apply to us. Smh
Rented, because that was only choice
Money was tough
Made bread and all meals at home
Could feed family on 1 chicken and veggies for a week
Sewed clothing-cheaper then-lived w 1 car for a long time
No AC in house or car-lived in hottest part of US
grew food
My opinion: things have not changed
Money was tough
Made bread and all meals at home
Could feed family on 1 chicken and veggies for a week
Sewed clothing-cheaper then-lived w 1 car for a long time
No AC in house or car-lived in hottest part of US
grew food
My opinion: things have not changed
December 17, 2025 at 11:16 AM
Rented, because that was only choice
Money was tough
Made bread and all meals at home
Could feed family on 1 chicken and veggies for a week
Sewed clothing-cheaper then-lived w 1 car for a long time
No AC in house or car-lived in hottest part of US
grew food
My opinion: things have not changed
Money was tough
Made bread and all meals at home
Could feed family on 1 chicken and veggies for a week
Sewed clothing-cheaper then-lived w 1 car for a long time
No AC in house or car-lived in hottest part of US
grew food
My opinion: things have not changed
because of some weird phrasing about the first few weeks
Salary 20000 per year (CPA), and deductibles were 2000 per person-8000 for family.
Kids were sick a lot, implications that we were bad parents
It was horrifying
Had to charge food and meds to credit cards
Daycare was 165 per month
Salary 20000 per year (CPA), and deductibles were 2000 per person-8000 for family.
Kids were sick a lot, implications that we were bad parents
It was horrifying
Had to charge food and meds to credit cards
Daycare was 165 per month
December 17, 2025 at 11:16 AM
because of some weird phrasing about the first few weeks
Salary 20000 per year (CPA), and deductibles were 2000 per person-8000 for family.
Kids were sick a lot, implications that we were bad parents
It was horrifying
Had to charge food and meds to credit cards
Daycare was 165 per month
Salary 20000 per year (CPA), and deductibles were 2000 per person-8000 for family.
Kids were sick a lot, implications that we were bad parents
It was horrifying
Had to charge food and meds to credit cards
Daycare was 165 per month
born in 1953. Married in 1973. Kids in 77 and 81
We didn’t worry too much about insurance until my 81 baby had seizures at 6 weeks
HMOs were just starting-Except Kaiser, which cared for me in the Bay Area as a child
Within 2 weeks, we had $10000 in medical bills.
Baby not covered
We didn’t worry too much about insurance until my 81 baby had seizures at 6 weeks
HMOs were just starting-Except Kaiser, which cared for me in the Bay Area as a child
Within 2 weeks, we had $10000 in medical bills.
Baby not covered
December 17, 2025 at 11:16 AM
born in 1953. Married in 1973. Kids in 77 and 81
We didn’t worry too much about insurance until my 81 baby had seizures at 6 weeks
HMOs were just starting-Except Kaiser, which cared for me in the Bay Area as a child
Within 2 weeks, we had $10000 in medical bills.
Baby not covered
We didn’t worry too much about insurance until my 81 baby had seizures at 6 weeks
HMOs were just starting-Except Kaiser, which cared for me in the Bay Area as a child
Within 2 weeks, we had $10000 in medical bills.
Baby not covered
And yet, I’ve never accepted this properly.
I kick and scream through these changes.
Sometimes gracefully; sometimes inappropriately.
Still a work in progress.
I kick and scream through these changes.
Sometimes gracefully; sometimes inappropriately.
Still a work in progress.
December 9, 2025 at 10:12 AM
And yet, I’ve never accepted this properly.
I kick and scream through these changes.
Sometimes gracefully; sometimes inappropriately.
Still a work in progress.
I kick and scream through these changes.
Sometimes gracefully; sometimes inappropriately.
Still a work in progress.
Treat is as very special term.
December 9, 2025 at 3:01 AM
Treat is as very special term.
Love reading. Best relaxation and escape
True
We make time for what we love
True
We make time for what we love
November 25, 2025 at 11:25 AM
Love reading. Best relaxation and escape
True
We make time for what we love
True
We make time for what we love
Reposted by Myrl
Research papers and links from our Clinician's Roundtable with Drs. Tania Dempsey & @kaufmanmd.bsky.social 🧵
We linked these in the YouTube transcript too
The effect of GLP-1RA exenatide on idiopathic intracranial hypertension: a randomized clinical trial: pmc.ncbi.nlm.nih.gov/articles/PMC...
We linked these in the YouTube transcript too
The effect of GLP-1RA exenatide on idiopathic intracranial hypertension: a randomized clinical trial: pmc.ncbi.nlm.nih.gov/articles/PMC...
The effect of GLP-1RA exenatide on idiopathic intracranial hypertension: a randomized clinical trial
Therapeutics to reduce intracranial pressure are an unmet need. Preclinical data have demonstrated a novel strategy to lower intracranial pressure using glucagon-like peptide-1 (GLP-1) receptor signalling. Here, we translate these findings into ...
pmc.ncbi.nlm.nih.gov
November 13, 2025 at 11:30 PM
Research papers and links from our Clinician's Roundtable with Drs. Tania Dempsey & @kaufmanmd.bsky.social 🧵
We linked these in the YouTube transcript too
The effect of GLP-1RA exenatide on idiopathic intracranial hypertension: a randomized clinical trial: pmc.ncbi.nlm.nih.gov/articles/PMC...
We linked these in the YouTube transcript too
The effect of GLP-1RA exenatide on idiopathic intracranial hypertension: a randomized clinical trial: pmc.ncbi.nlm.nih.gov/articles/PMC...
What about how PEM makes long Covid so much worse? I’m sure I read evidence that those recovering for Covid l are less likely to get long Covid and complications if they take their recovery slowly and gently.
November 19, 2025 at 10:28 PM
What about how PEM makes long Covid so much worse? I’m sure I read evidence that those recovering for Covid l are less likely to get long Covid and complications if they take their recovery slowly and gently.
Mostly. Needing to change my living situation; finding it difficult.
November 15, 2025 at 9:16 PM
Mostly. Needing to change my living situation; finding it difficult.
😂😂. Love the duck.
We are rescue people too. I always want more, but I physically can’t handle proper love and care for more right now.
We are rescue people too. I always want more, but I physically can’t handle proper love and care for more right now.
November 14, 2025 at 9:55 AM
😂😂. Love the duck.
We are rescue people too. I always want more, but I physically can’t handle proper love and care for more right now.
We are rescue people too. I always want more, but I physically can’t handle proper love and care for more right now.
Many docs. Many times.
November 14, 2025 at 9:36 AM
Many docs. Many times.