Niko Suvisto
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nikosuvisto.com
Niko Suvisto
@nikosuvisto.com
990 followers 560 following 890 posts
Life on hold by severe #MECFS, currently 99% bedbound 🛌

Documenting my life like it is now, advocacy through photography 📷

📍Finland

https://nikosuvisto.com/
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nikosuvisto.com
My room was originally my parents, so it had a lot of stuff that wasn’t mine and still does. We finally got rid of a huge linen closet and replaced it with a bookshelf. My photo books were all just piled up on the sideboard. Now everything has a place and it’s so much nicer to look at!

#MECFS
A black and white photo of a man holding a tilted closet. Another person is crouched next to him and holding onto the closet as well. The setting is a bedroom, and in the background personal belongings are visible. A black and white photo of a tall bookshelf full of books in a bedroom corner. Piled stools are in front of the shelf. A mirror, artworks and personal belongings hang on the walls.
December 14, 2025 at 8:06 AM
nikosuvisto.com
Photo from November 2025.

I was able to keep my functioning more stable during the last month, which resulted in more photographs, probably more than any other month this year.

#MECFS #pwME #Photography
A black and white photo of a man’s hand, taken from his point of view, reaching towards a sun shining through a faraway window, seen through a doorway.
December 13, 2025 at 8:11 AM
nikosuvisto.com
A friend of mine sent me these lovely flowers.

#Photography
A black and white photo of a flower bouquet in a vase on top of a sideboard. A table lamp is the only light source. There is a candle, cards, a glass bird, a clock radio, and a vase on the sideboard as well. An artwork hangs on the wall behind them.
December 11, 2025 at 5:49 PM
nikosuvisto.com
Today is Finland’s Independence Day. I usually post my photograph of our flag, but this time I want to talk about something else. Some of you know that I’ve participated in a class-action complaint against the state of Finland. 1/10

#MECFS #pwME #Photography #Finland
A black and white photograph of a hand grabbing a striped duvet.
December 6, 2025 at 12:21 PM
nikosuvisto.com
In the end, the only thing that matters is us having each other. My days will always be full of happiness, wherever we are or in whatever situation. 8/8
A collage of two photos. One photo of a man’s, Niko’s, hand with a yellow gold signet-style tiger’s eye ring on his left hand ring finger and a gold wristwatch. Another photo of a woman’s, Line’s, hand with pinkish nails and a yellow gold dark green tourmaline ring with diamonds on her left hand ring finger.
November 30, 2025 at 12:26 PM
nikosuvisto.com
We both have endured a lot, especially during these past few years. Life’s fragility looms over us every day, which makes us act — we want to and need to do things now. You don’t know what the future holds, good or bad, so it’s better to take action now. 3/8
A black and white photo of a man, Niko, in a dark suit and a tie, sitting in a hospital bed, showing a ring in its box to a phone’s camera, which is held by another person. A black and white photo of a man, Niko, in a dark suit and a tie, sitting in a hospital bed, while using his phone and having a slight smile on his face. His mother, Päivi, stands next to him and they are having a conversation. In the background a wheelchair and basketball jerseys are visible. A man, Niko, wearing a navy suit, a chambray button-down collared shirt, and a striped tie, is sitting on a hospital bed. He has a yellow gold signet-style ring with a tiger’s eye stone on his left hand ring finger, and he has a gold watch on his wrist. He is looking at the camera. A black and white photo of a man, Niko, in a dark suit and a tie, lying on a hospital bed. He has earmuffs on, looks at the camera and makes a peace sign with his hand.
November 30, 2025 at 12:26 PM
nikosuvisto.com
I have some exciting news! Two weeks ago, on the 16th of November, my partner and I got engaged! 1/8
A black and white photo of a man, Niko, wearing a suit, a button-down collared shirt, and a tie. He has a signet-style ring on his left hand ring finger, and he holds a ring with a tourmaline stone and diamonds between his thumb and index finger. He has a watch on his wrist.
November 30, 2025 at 12:26 PM
nikosuvisto.com
Every morning, I wait in the darkness for my mother to open my room’s door so that we can start the daily routines.

#MECFS #SevereME #pwME #Photography #SelfDocumentary
A black and white photograph of a dark bedroom floor. The light peeks through under the closed door, lits part of a wheelchair and a cable running across the floor.
November 15, 2025 at 1:19 PM
nikosuvisto.com
We need to raise this kind of awareness, because we don’t have other choices. Most of us are too sick to participate in protests or go out into the streets to demand change. So, we do our best on social media and through other accessible means. 8/10
A black and white photo of a woman, Päivi, giving a haircut to Niko, who is lying in a bed. She uses clippers with a focused expression. The bedroom has cabinets in the background and a bedside lamp.
October 21, 2025 at 7:22 AM
nikosuvisto.com
I need this work, and I have always made it for myself first and foremost. It’s my escape from the agonising reality — a way to take distance and observe, rather than feel it all. It gives me purpose, so my suffering isn’t in vain. 5/10
A high contrast black and white photograph of a completely dark bedroom. A long and narrow ray of light peaks through the corner of the curtain covered window. The silhouette of the window is seen through the curtain.
October 21, 2025 at 7:22 AM
nikosuvisto.com
It’s an understatement to say this work is deeply personal, it truly is my whole life. These photographs are me. 2/10
A black and white photo of a woman, Päivi, looking outside of the frame as she prepares to wash a man’s, Niko’s, feet as he lies on a bed his feet in a basin wearing just boxers. The room features white cabinets and is a bedroom.
October 21, 2025 at 7:22 AM
nikosuvisto.com
It has been one year since I started sharing more openly about my life with severe ME/CFS. I chose to do it through my photography, resulting in my ongoing series ‘Enduring: Life with Severe ME/CFS’. 1/10

#MECFS #pwME #Photography #SelfDocumentary
A black and white photograph of a shirtless man sitting on a bed, curled up with his arms wrapped around his knees and his head down. The room has white cabinets in the background, and the setting conveys a sense of isolation.
October 21, 2025 at 7:22 AM
nikosuvisto.com
As the days go by, I settle back into my strict routines, with a taste of life still lingering in my mouth. It’s always a mix of emotions; the good and the bad. Thank you to my friends for being there for me, and until next time. 9/9
A black and white photo of Niko’s point of view from his bed. The room’s curtain is halfway closed. The light that’s coming through illuminates three flower bouquets. One is sitting on top of a record player, other two are on stools.
October 5, 2025 at 2:50 PM
nikosuvisto.com
Cheerful chatter fills the room, as if we had just seen each other yesterday. I don’t feel like an outsider; we talk about very ordinary things, which is such a welcome change. Their children shuffle in and out of my room but prefer to play with their toys outside. 3/9
A black and white photo of Niko’s point of view from his bed: his feet are resting on the bed, while a woman is standing in the left side of the image. She’s holding a child with her hand. A man looking at her sits across the room. Natural light comes into the room through a window. In the background there are personal belongings and artworks hanging on the wall.
October 5, 2025 at 2:50 PM
nikosuvisto.com
Now, suddenly, my room is full of people, the familiar faces of my friends gathered around my bed. For a moment, it feels overwhelming; I can sense my body crossing the threshold — this is definitely overexertion. 2/9
A black and white photo of four men sitting together. They each look at a child that’s talking to one of the men. Natural light comes into the room through a window.
October 5, 2025 at 2:50 PM
nikosuvisto.com
It was my birthday two weeks ago, and I managed to celebrate it with my friends. I hadn’t seen them all year because my health hasn’t allowed it. My days are spent in isolation; usually only my mom visits my room throughout the day to carry out her care duties. 1/9

#Photography #MECFS #pwME
A black and white photo of a flower bouquet on a record player, next to a window that illuminates natural light inside the room.
October 5, 2025 at 2:50 PM
nikosuvisto.com
This week something very exciting happened… My mom came to my room to wash my windows. That’s probably one of the top three action-packed things that has happened this year.

I had to photograph it as I love documenting the ordinary.

#MECFS #Photography
A black and white photo of an older woman washing an opened window inside a bedroom. She’s facing the camera and reaching with her hand to wash the upper part of the window. Light comes through the window. Personal belongings are visible on a shelf.
October 4, 2025 at 11:27 AM
nikosuvisto.com
Today is my birthday, and I’m turning 34. Do I feel my age? No. The perception of age vanished at some point while I became chronically ill. Still, there are fleeting moments when I’m reminded of it. 1/9

#MECFS #pwME #Photography
@openmedf.bsky.social
A black and white photo inside a white frame: Niko, a white man with dark buzz cut hair and a beard, lying in bed. His head is resting on a pillow, and he’s looking at the distance. He’s wearing a grey sweatshirt.
September 20, 2025 at 4:26 PM
nikosuvisto.com
What will my health be like next year? Will I see that playful light again? Will I tolerate it? Will I be able to photograph those fleeting moments? I can’t answer those questions, only time will tell. 3/8
Black and white photo of a window with blinds partially open, letting light fall across a white wardrobe, creating strong contrasts of shadow and brightness.
September 15, 2025 at 2:47 PM
nikosuvisto.com
The last rays of summer sun have now left my bedroom. It’s funny how aware of these things you become when trapped inside one room. It will be a while before I can see that evening light casting dancing shadows on the wardrobe doors again. 1/8

#MECFS #pwME #Photography
Black and white photo of tall white wardrobe doors, with sunlight casting reflections of trees from outside, forming abstract patterns on the glossy surface.
September 15, 2025 at 2:47 PM
nikosuvisto.com
I hope that one day there will be more light than dark, for all of us.

All photographs part of my series ‘Enduring: Life with Severe ME/CFS’. 2/2

#Photography #MECFS #pwME #SelfDocumentary
A black and white high contrast photograph showing a ray of light against the ceiling of a dark bedroom. A high contrast black and white photo of a painting on a wall. The painting is a landscape of a house. A window casts abstractly shaped shadows over the wall. A high contrast black and white photograph of a wall lamp without its shade. The light bulb lights the otherwise dark surroundings. A black and white photo of a dimly lit bedroom. Niko, a man with a jumper and sweatpants, lies on the bed. He has ear protectors on and his eyes are closed. A chair beside the bed holds medical equipment, personal items. The door to the room is open and illuminates light from a hallway.
August 31, 2025 at 7:31 AM
nikosuvisto.com
Light and dark; two things that co-exist in our lives.

It’s easy to look at the dark parts and think that they are the ones that weave themselves tighter into the canvas.

The light always reveals what is hidden, but we need the dark to give us the shapes and forms against the light. 1/2
A high contrast black and white photograph of a woman standing inside a dimly lit room, leaning forward to look out of a window. The window reveals a snowy landscape outside, while the room is filled with furniture, books, and various objects.
August 31, 2025 at 7:31 AM
nikosuvisto.com
In the moments I’m with her, I forget I’m sick — she takes all the pain of this world away. Every night, she’s the last thing on my mind; every morning, the first. I feel at home with her. 8/8
A collage of two photographs. On the left side there is a white woman in a dark room, her head rests on a pillow and her eyes are closed, she’s smiling and she has a sleep mask on her forehead. She’s wearing a black and white striped shirt with text on it. On the right side there is a white man with dark buzz cut hair and a beard, his head rests on a pillow and he’s looking at the camera with a smile on his face. He’s wearing a red and white striped shirt.
August 18, 2025 at 6:40 AM
nikosuvisto.com
I’ve not been doing that great this summer. In all honesty, these past years have been extremely hard, and my body has given up on me. In the end, I’m just grateful I’m still here to experience life. 1/8

#MECFS #pwME #Photography #SelfDocumentary
A black and white close up photograph of hands against a dark background, resting on a person’s body. The thumbs and fingers form a heart shape in the middle.
August 18, 2025 at 6:40 AM
nikosuvisto.com
POV: You are bedbound and need a wash.

I haven’t had a shower yet this year, which feels a bit surreal, if I’m being honest. I could do it, but it just isn’t worth suffering so much, as it would trigger a huge PEM (post-exertional malaise). 1/2

#MECFS #Photography #SelfDocumentary
A black and white photograph in a point of view of a person laying in bed, while an older woman is hovering over and washing the person’s extended arm with a cloth while she holds the person’s arm with her other arm.
August 13, 2025 at 2:07 PM