Niko Suvisto
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nikosuvisto.com
Niko Suvisto
@nikosuvisto.com
Life on hold by severe #MECFS, currently 99% bedbound 🛌

Documenting my life like it is now, advocacy through photography 📷

📍Finland

https://nikosuvisto.com/
Reposted by Niko Suvisto
7) As might be expected from post-exertional malaise, exercise programmes are often followed by reports of deterioration. [...] People with ME/CFS will naturally tend do as much as their illness will allow without provoking post-exertional malaise...
December 15, 2025 at 8:47 AM
It’s of course in Finnish, but browsers should be able to translate it for those who are interested enough! 2/2
December 15, 2025 at 4:05 PM
Thanks for always supporting me!
December 13, 2025 at 3:24 PM
Happy birthday! Sausage roll sounds great!
December 12, 2025 at 12:02 PM
Thanks! The heavy lifting was done by others on this matter! Which I’m very thankful of.
December 6, 2025 at 4:03 PM
We’ll continue the fight, as always. Happy Independence Day, especially to those who fight for our rights ✊🏻 10/10
December 6, 2025 at 12:21 PM
I’d love to contribute to our society, and I did until my body broke down, a sacrifice not worth it. I’d like to just celebrate this day, at least by reminiscing about everything good, but I just can’t do it. Something deep down has been shattered and it can’t be fixed anymore. 9/10
December 6, 2025 at 12:21 PM
This matter makes me incredibly sad on a day like this. I have always loved this country. I can’t even go outside anymore to see the beauty of our nature, to swim in one of the thousand lakes or to experience the four different seasons. 8/10
December 6, 2025 at 12:21 PM
And it’s not about what you contributed, as our rights are written in the law, and belong to everyone. Forget the law too, it’s the morally right thing to do to take care of the disabled and ill. What are we if we don’t take care of the most vulnerable? 7/10
December 6, 2025 at 12:21 PM
There is no single authority that takes responsibility. We have done our part to contribute to this society: worked and studied, paid taxes and pensions, served in the mandatory military service, and so on. 6/10
December 6, 2025 at 12:21 PM
No one says “ok, we need to change this. We need to do better”. No and no. These people not only deny it, but they also actively speak against us, even blame us, the most vulnerable, in the media. That’s disgusting and hurtful. 5/10
December 6, 2025 at 12:21 PM