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niky-star.bsky.social
Honey Bear
@niky-star.bsky.social
19 followers 30 following 6 posts
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chromatowski.bsky.social
Invaluable piece, grateful to these patients for organizing.
thesicktimes.org The Sick Times @thesicktimes.org · Oct 10
A group of 53 people with #LongCOVID joined a clinical trial for Vyvgart. For many of them, the treatment changed everything.

Then, without warning, Argenx canceled the trial.

Most of them have now relapsed.

They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5
A photo Nicole Barrick, a woman in a pink KN95 mask, receives an infusion of Vyvgart. The text reads, "The Sick Times. Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White." "For those living with Long COVID, every ounce of hope is hard-won. This isn’t just about physical symptoms. It’s about the emotional toll of being given hope — and then having it taken away." - Vyvgart clinical trial participants Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White
October 10, 2025 at 9:35 PM
Reposted by Honey Bear
thesicktimes.org
A group of 53 people with #LongCOVID joined a clinical trial for Vyvgart. For many of them, the treatment changed everything.

Then, without warning, Argenx canceled the trial.

Most of them have now relapsed.

They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5
A photo Nicole Barrick, a woman in a pink KN95 mask, receives an infusion of Vyvgart. The text reads, "The Sick Times. Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White." "For those living with Long COVID, every ounce of hope is hard-won. This isn’t just about physical symptoms. It’s about the emotional toll of being given hope — and then having it taken away." - Vyvgart clinical trial participants Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White
October 10, 2025 at 5:42 PM
Reposted by Honey Bear
mileswgriffis.bsky.social
NEW: 53 participants involved in the Vyvgart trial for Long COVID are calling on the government to fund research for the drug after they saw significant improvements that the study didn’t capture.

thesicktimes.org/2025/10/10/v...
Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. - The Sick Times
We are a group of 53 individuals with Long COVID from across the U.S. In 2023, we joined a Long COVID clinical trial for Vyvgart (efgartigimod), a drug approved by the Food and Drug Administration (FD...
thesicktimes.org
October 10, 2025 at 5:05 PM
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1gardeningwitch.bsky.social
Board is accepting written public statements until 4 pm January 27th. Please make sure your voice is heard!
January 24, 2025 at 11:30 PM
Reposted by Honey Bear
1gardeningwitch.bsky.social
@darrellisa.bsky.social The mayor of El
Cajon in San Diego is putting a resolution before the board to allow our police to assist ICE agents to invade our schools, churches and hospitals!
Why are you ok with this?! The trauma this will cause!
January 24, 2025 at 1:02 AM
Reposted by Honey Bear
aaronparnas.bsky.social
BREAKING: RFK Jr. called Trump supporters idiots and compared Trump to Hitler in a new unearthed video.

The latest from @meidastouch.bsky.social: meidasnews.com/news/unearth...
Unearthed Video Shows RFK Jr. Comparing Donald Trump To Adolf Hitler
RFK Jr. has since apologized for making the remarks
meidasnews.com
November 21, 2024 at 4:09 PM