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nmraredisease.bsky.social
Zia Zebra
@nmraredisease.bsky.social
20 followers 36 following 100 posts
🦓 Digital source for New Mexico Rare Disease Community.
🌐 www.nmraredisease.org
#NMRareDisease
#NMRare
#Showyourstripes
#ziazebras
Posts Replies Media Videos
nmraredisease.bsky.social
🦓 #MerryChristmas #NewMexico!🌲

🌶 Join the herd, and let's finalize the #RDAC for everyone's benefit! ❄️

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
December 25, 2025 at 2:41 PM
nmraredisease.bsky.social
🦓 Wishing those affected by #raredisease comfort, connection, and moments of light this holiday season. 🎄🎁

⏰️ It's time #NewMexico has an #RDAC! ❄️

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
December 23, 2025 at 4:51 PM
nmraredisease.bsky.social
🦓 Tons of patients have to travel out of state for #healthcare.

Many discover how difficult it is to get records & prescriptions filled by out of state providers due to restrictions in #NewMexico.

#Raredisease deserves better!

#nmleg #nmpol #nmrare #nmraredisease #ziazebra
December 19, 2025 at 3:05 PM
nmraredisease.bsky.social
🦓 Every day is #rarediseaseday for patients & families suffering from rare diseases.

They get no breaks or vacations but deserve quality healthcare, especially here in #NewMexico!

Let's make #NewMexico #healthcare better for all!
#nmrare #nmraredisease #raredisease #ziazebras
December 16, 2025 at 8:17 PM
nmraredisease.bsky.social
🦓 You’re not alone!
There’s a whole #raredisease community of people navigating similar challenges, even if your condition is rare.

🖇 Connection can happen in small, meaningful moments but not without effort.

#NewMexico
#RDAC #nmrare #nmraredisease #showyourstripes #ziazebras
December 13, 2025 at 2:19 PM
nmraredisease.bsky.social
🦓 #NewMexico #patients and especially those with #raredisease, deserve better #Healthcare!

No patient should have to travel to another state just to be seen or heard.

✔️ Join us and be a voice for positive change!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #ziazebras
December 10, 2025 at 2:56 PM
nmraredisease.bsky.social
🦓 Time is important when managing or diagnosing #raredisease.

🗓 #NM wait times vary from 4-8 weeks to months, depending on the provider.

It's unacceptable for anyone!

#NewMexico #patients deserve better!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
December 6, 2025 at 3:07 PM
nmraredisease.bsky.social
🦓 Holiday seasons are often painted as a time of joy, celebration, and togetherness. For those living with a #RareDisease, it can also bring unique challenges that aren’t always visible to others.
#NewMexico #RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
December 3, 2025 at 5:05 PM
nmraredisease.bsky.social
🦓Celebrate holidays in ways that work for you!
Maybe that means shorter visits, nights at home, virtual celebrations, or creating new traditions that honor both your needs & your joy.
#NewMexico
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
November 30, 2025 at 3:56 PM
nmraredisease.bsky.social
🦓 Happy #Thanksgiving #NewMexico!

🦃 We're so grateful for all the wonderful people who support & have stepped up to make a difference for #raredisease patients!

🙏 Hope more will join us in the future!

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
November 27, 2025 at 2:47 PM
nmraredisease.bsky.social
🦓 Give yourself grace!

The holidays can bring pressure, but it’s okay to prioritize rest, boundaries, and self-compassion.

#NewMexico needs a #RDAC.

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
November 25, 2025 at 4:54 PM
nmraredisease.bsky.social
🦓 Together, we can make rare diseases less rare by showing empathy, spreading knowledge, and fostering communities of support...

#NewMexico needs a #RDAC!

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
November 22, 2025 at 3:12 PM
nmraredisease.bsky.social
🦓 Rare Disease Day 2026 is coming...

Ready to join the herd?

#NewMexico needs a #RDAC!

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
November 19, 2025 at 2:25 PM
nmraredisease.bsky.social
🦓"When you hear hoof beats behind you don't expect to see a zebra" was the original quote urging physicians to ignore #RareDisease and focus on general diagnoses hindering #patients.
Let's chage that for #NewMexico!
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
November 16, 2025 at 7:27 PM
nmraredisease.bsky.social
🦓 While each rare disease may affect a few people, the impact is felt deeply by patients, families, and communities in #NM and globally.

#NewMexico needs a #RDAC.
Help us improve it for everyone.

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
November 13, 2025 at 4:21 PM
nmraredisease.bsky.social
🦓 Together, we can create a state and maybe even a world where those with #raredisease receive the care, understanding, and support they deserve locally without having to travel for #healthcare.

#NewMexico
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
November 10, 2025 at 3:48 PM
nmraredisease.bsky.social
🦓 Together, we can create a State and maybe even a world where those with #raredisease receive the care, understanding, and support they deserve locally without having to travel for #healthcare.

#NewMexico
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
November 10, 2025 at 3:47 PM
nmraredisease.bsky.social
🦓 Every diagnosis is a journey of uncertainty, hope, and courage.

As we raise awareness, let's remember:

No one should feel alone yet, many do.

Let's make #NewMexico #healthcare better for all.

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
November 7, 2025 at 2:11 PM
nmraredisease.bsky.social
🦓 Breathe in the cool, crisp mornings & enjoy the wonderful time of year before the holiday season begins.
Next year, more positive changes to #NewMexico #healthcare will be made for those with #raredisease.

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
November 4, 2025 at 5:31 PM
nmraredisease.bsky.social
🦓 #Happy Halloween! 🎃
👻 With the spooky state #NewMexico #healthcare is in we need people willing to step up, break the bad hocus pocus cycle & make positive changes for the future of #RareDisease!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras #BreakingBad
October 31, 2025 at 4:57 PM
nmraredisease.bsky.social
🦓 Every season is a #RareDisease season and deserves the appropriate attention from #healthcare providers to improve #qualityoflife in #NewMexico.

📣Share your voice and let's create a #RDAC for NM!

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
October 29, 2025 at 4:34 PM
nmraredisease.bsky.social
🦓 We're working to increase awareness among doctors and providers about #raredisease so mis & delayed diagnosis is less common for those living in #NewMexico with them!
🎃Let's make #healthcare less scary!!!
#RDAC #nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
October 27, 2025 at 3:15 PM
nmraredisease.bsky.social
🦓 Many people affected by #raredisease also suffer from #invisibledisabilities in #NewMexico.

This week, it's important not only to #seetheinvisible but also to hear it!

#RDAC #patientadvocacy
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
October 24, 2025 at 4:06 PM
nmraredisease.bsky.social
🦓 #RareDisease sounds scary, but it doesn't have to be!👻

🦓 Join our community and make a difference in #NewMexico today!

📣 New Mexico needs a #RDAC!

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
October 22, 2025 at 2:45 PM
nmraredisease.bsky.social
🦓Access to specialists in #NewMexico is challenging along with quality care.

#NM has many rural and underserved areas; specialists may be far away with long wait times to be seen.

#NM needs healthcare revolution!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
October 20, 2025 at 2:58 PM