Firstname Lastname #FuckTrump
@notunpackedyet.bsky.social
1.1K followers 650 following 1.8K posts
Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
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notunpackedyet.bsky.social
This is a playbook for modern times, it seems.
Reposted by Firstname Lastname #FuckTrump
whstancil.bsky.social
Just openly cheering the destruction of any representation of gay people in public space. They think their power is totally unrestricted, and the entire country will support them rolling back society to the 1950s, or maybe the 1850s
notunpackedyet.bsky.social
Thanks v much - and omg. So much of this is sick and twisted. Tells us so much about how we got here.
notunpackedyet.bsky.social
Ooooooh holy cow! Don't suppose you can remember the title, so I can search and bookmark that? That's shockingly awful.
notunpackedyet.bsky.social
2, definitivamente. Made me stop and think.
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newseye.bsky.social
If you had written this as a fake news headline a year ago, you would be called hysterical.

Reuters today. Fascism.
Reuters story headlines:

Trunp calls for jailing Democratic leaders as troops prepare for Chicago deployment
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greenparty.org.uk
As revealed by Channel 4 News’ documentary, UK arms exports to Israel have hit record highs — £408,000 in June and £316,000 in September.

The government says it’s restricting sales, but the data says otherwise.

The UK must end all arms sales to Israel now.
A bold black-and-white Green Party graphic with the slogan “REAL HOPE. REAL CHANGE.” at the top. The main message in large capital letters reads “END ALL ARMS SALES,” with “END” highlighted in green and underlined. The Green Party logo and name appear at the bottom.
notunpackedyet.bsky.social
Whilst I am heartbroken at what a tool Streeting is, my hope lies in the science. I hate the hang up on having a diagnostic test but, once we have this, it's v hard to say it's psychosomatic and to talk about over diagnosis. It becomes firmer ground for benefits and demanding research funding.
georgemonbiot.bsky.social
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
notunpackedyet.bsky.social
Yup, read a linkedin post by someone who's had MS for a decade. Terrible as MS is, this person was going on about having run 3 marathons in that time and all these career things. Like, #MEcfs, hello? I'd rather have MS because I'd live more, doctors would listen and there are medications.
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georgemonbiot.bsky.social
On the one hand, medical science is beginning to get a handle on the very complex physiological basis of this disease. On the other hand, we can expect the greatest medical scandal (so far) of the 21st Century – the mass mistreatment and neglect of ME/CFS sufferers – to continue.
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georgemonbiot.bsky.social
This commission points to where the government is heading. If the problem is “overdiagnosis” – which appears to be its foregone conclusion – then large numbers of people with horrendous conditions will be put through an even more punishing regime of tests and obstacles to qualify for benefits.
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georgemonbiot.bsky.social
In the firing line, as ever, are the UK’s hundreds of thousands of ME/CFS patients. As a practitioner once remarked, “the bastards don’t want to get better”. If there is one characteristic all the ME/CFS patients I’ve come across have in common, it is a desperation to get better.
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georgemonbiot.bsky.social
Like the Tories, the Labour government is trying to drive down the number of people who qualify for disability benefits by insisting there has been an epidemic of “overdiagnosis”: a favourite theme of the BBC and the junktanks of Tufton Street. Never mind the science: what outcome do we want?
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notunpackedyet.bsky.social
No doubt all the gammon will be nodding along.
notunpackedyet.bsky.social
Cutting anthropology, English?!? Oh fuck off! I hate these c*nts more every day.
ottoenglish.bsky.social
Badenoch and Co see education only as a means to a massive income in some soul destroying career.

Devoid of imagination and the power of knowledge they view life entirely through the prism of the CV.

My advice always is to study what interests you and the rest will follow
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deelomas.bsky.social
Make no mistake - not one defection to Reform is about policy or leadership. It’s about hanging on for all it’s worth to the prospect of a job. These defectors - no matter which party they are coming from - have all the fvcking morals and principles of an alley cat!

news.sky.com/story/politi...
Politics latest: 20 Tory councillors defect to Reform - as Jenrick defends 'didn't see another white face' comment
20 Tory councillors have announced they are defecting to Reform today. It comes on day three of the Conservatives' annual conference in Manchester. Meanwhile, shadow justice secretary Robert Jenrick h...
news.sky.com
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bearlypolitics.co.uk
Once again, the Telegraph seems shocked that the EU is acting like… the EU.

This is exactly what sovereignty looks like when you’re on the outside.
Ruthless EU has just taught Starmer a painful lesson
Steel tariff threats are a reminder of how Brussels really feels towards post-Brexit Britain
notunpackedyet.bsky.social
"UEA and Oxford BioDynamics revealed hundreds of additional changes, including five of the eight sites identified by DecodeME, which can now provide a deeper understanding of the disease." #MEcfs
notunpackedyet.bsky.social
He is an evil piece of shit, that smarms and charms and makes platitudes, when his actions show who he really is (i.e., contacting the CEO of NICE to meddle w the publication of the 2021 ME guideline).
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thegodpodcast.com
Pritzker is right. They want to normalize troops in cities so they can steal every election just like Putin does.
notunpackedyet.bsky.social
Waiting to find out whether they will be offering remote access but, #MEcfs #LongCovid, if you're in York....
healthwatchyork.bsky.social
Our next VoICeS meeting focuses on women's health, particularly long term conditions.

It's on Weds 5 November, 10am - 12pm at Priory Street Centre. Share your experiences of conditions including ME/CFS, POTS, fibromyalgia, endometriosis, osteoperosis and more.

All welcome, no booking needed.
notunpackedyet.bsky.social
And you've got a Zoom/Teams link, right? For all those of us too disabled to leave the house/bed?