Mollie
@one-change.com
Our life & home are labs for inclusivity.
Chronic illness & mental health advocate. Living with Long COVID. https://one-change.com
Chronic illness & mental health advocate. Living with Long COVID. https://one-change.com
Reposted by Mollie
I’ll be taking down the #Pride shirts at the end of the month. I’ll be making some new designs next year that I’ll put up in May so we can all have them for the entire month of June.
June 29, 2025 at 9:42 PM
I’ll be taking down the #Pride shirts at the end of the month. I’ll be making some new designs next year that I’ll put up in May so we can all have them for the entire month of June.
Without support--financial, social, medical--people with #LongCOVID + other #chronicillness cannot recover in any meaningful way.
January 10, 2025 at 6:30 PM
Without support--financial, social, medical--people with #LongCOVID + other #chronicillness cannot recover in any meaningful way.
I always try to do my future self a favor when I can. It’s been everything from spending my 20s laying a foundation for my mental health by focusing on healing from #CPTSD to these days getting medication set up on days where I have a little bit more ability to do it.
January 10, 2025 at 6:11 PM
I always try to do my future self a favor when I can. It’s been everything from spending my 20s laying a foundation for my mental health by focusing on healing from #CPTSD to these days getting medication set up on days where I have a little bit more ability to do it.
Long COVID doesn't pause for things you look forward to, want or need. My kids and I have been feeling particularly rough lately. Especially one of our sons. #longcovid
December 26, 2024 at 12:01 AM
Long COVID doesn't pause for things you look forward to, want or need. My kids and I have been feeling particularly rough lately. Especially one of our sons. #longcovid
When someone shares about their unseen #ChronicIllness or #Disability, it's okay to not have the perfect response. It's okay to not "fix" things. Just being there--listening, holding space--mean so much more than you think.
December 21, 2024 at 12:41 AM
When someone shares about their unseen #ChronicIllness or #Disability, it's okay to not have the perfect response. It's okay to not "fix" things. Just being there--listening, holding space--mean so much more than you think.
Was told the other day by someone who has seen firsthand how sick my kids & I are, that we'll just need to find new hobbies. Its not a lack of imagination. Its lack of ability thats keeping us from being able to do anything other than lay down. Its the reality of living w/ #LongCOVID #ChronicIllness
December 20, 2024 at 11:44 PM
Was told the other day by someone who has seen firsthand how sick my kids & I are, that we'll just need to find new hobbies. Its not a lack of imagination. Its lack of ability thats keeping us from being able to do anything other than lay down. Its the reality of living w/ #LongCOVID #ChronicIllness
I'm very open about my kids and I having #LongCOVID. There are many times where people will make ablest assumptions and I will share our situation. The vast majority of people are VERY awkward.
December 20, 2024 at 11:41 PM
I'm very open about my kids and I having #LongCOVID. There are many times where people will make ablest assumptions and I will share our situation. The vast majority of people are VERY awkward.
For everyone out there whether living with #ChronicIllness or not. No matter how you choose to celebrate this holiday season, know this: your presence, just as it is, is enough. You're doing a great job just by being YOU.
December 19, 2024 at 11:57 PM
For everyone out there whether living with #ChronicIllness or not. No matter how you choose to celebrate this holiday season, know this: your presence, just as it is, is enough. You're doing a great job just by being YOU.
Chronically ill people aren’t asking for miracles. We’re asking for a world that sees our reality.
It’s not just about the pain, fatigue, or struggle—it’s about how these challenges coexist with our love, empathy, and strength. #ChronicIllness
It’s not just about the pain, fatigue, or struggle—it’s about how these challenges coexist with our love, empathy, and strength. #ChronicIllness
December 19, 2024 at 4:43 AM
Chronically ill people aren’t asking for miracles. We’re asking for a world that sees our reality.
It’s not just about the pain, fatigue, or struggle—it’s about how these challenges coexist with our love, empathy, and strength. #ChronicIllness
It’s not just about the pain, fatigue, or struggle—it’s about how these challenges coexist with our love, empathy, and strength. #ChronicIllness
Telehealth is at risk. Our family is almost entirely dependent on telehealth for our medical and mental health needs. Our family would lose access to weekly PT therapy and doctor appointments. #telehealth #chronicillness
December 19, 2024 at 1:07 AM
Telehealth is at risk. Our family is almost entirely dependent on telehealth for our medical and mental health needs. Our family would lose access to weekly PT therapy and doctor appointments. #telehealth #chronicillness
Recently we just had the first person in 4.5 years of being sick with #LongCovid ask us if there was anything they could do to make an event inclusive for someone in our family. They asked if there was a way they could advocate for us.
I'm so grateful.
I'm so grateful.
December 18, 2024 at 11:43 PM
Recently we just had the first person in 4.5 years of being sick with #LongCovid ask us if there was anything they could do to make an event inclusive for someone in our family. They asked if there was a way they could advocate for us.
I'm so grateful.
I'm so grateful.
People with #LongCOVID are among the most loving, kind, generous, empathetic, strong, compassionate, soulful and real people I've ever met. I'm regularly struck with awe and respect.
December 18, 2024 at 11:42 PM
People with #LongCOVID are among the most loving, kind, generous, empathetic, strong, compassionate, soulful and real people I've ever met. I'm regularly struck with awe and respect.
The emotional roller coaster of getting our hopes up for a treatment that has the potential to help relieve/eliminate symptoms and the crash that happens when it doesn’t work or makes us worse, then trying to figure out what the next move is part of the invisible toll of #ChronicIllness.
December 17, 2024 at 3:16 AM
The emotional roller coaster of getting our hopes up for a treatment that has the potential to help relieve/eliminate symptoms and the crash that happens when it doesn’t work or makes us worse, then trying to figure out what the next move is part of the invisible toll of #ChronicIllness.
Before I got sick I worked full time (ed. + raising our kids), laundry, ran 99% of errands, menu planned, grocery shopped, made 75% of meals, all snacks, dishes, planned/prepped outings including vacations, 100% of bdays and Xmas, cleaned the car/house, grew our food, coordinated babysitting, etc.
December 6, 2024 at 12:56 AM
Before I got sick I worked full time (ed. + raising our kids), laundry, ran 99% of errands, menu planned, grocery shopped, made 75% of meals, all snacks, dishes, planned/prepped outings including vacations, 100% of bdays and Xmas, cleaned the car/house, grew our food, coordinated babysitting, etc.
We're working toward moving. We need to be in a living situation that works better for our family.
I used to be the one to pack us up when we moved. Even with our last move, I had #LongCOVID and still did the vast majority of the packing. It's hard to figure out how to do it now.
I used to be the one to pack us up when we moved. Even with our last move, I had #LongCOVID and still did the vast majority of the packing. It's hard to figure out how to do it now.
December 6, 2024 at 12:54 AM
We're working toward moving. We need to be in a living situation that works better for our family.
I used to be the one to pack us up when we moved. Even with our last move, I had #LongCOVID and still did the vast majority of the packing. It's hard to figure out how to do it now.
I used to be the one to pack us up when we moved. Even with our last move, I had #LongCOVID and still did the vast majority of the packing. It's hard to figure out how to do it now.
For too long, society has devalued the lives of disabled and chronically ill people. This isn’t just a healthcare issue—it’s a human rights issue. Let’s work toward a world where everyone is seen and valued.
What does being seen look like for you?
#disabledSky #chronicillness
What does being seen look like for you?
#disabledSky #chronicillness
December 5, 2024 at 4:39 PM
For too long, society has devalued the lives of disabled and chronically ill people. This isn’t just a healthcare issue—it’s a human rights issue. Let’s work toward a world where everyone is seen and valued.
What does being seen look like for you?
#disabledSky #chronicillness
What does being seen look like for you?
#disabledSky #chronicillness
Fatigue is just one part of #LongCOVID. Imagine living every day feeling like you’re on the edge of consciousness, compounded by debilitating symptoms like cognitive impairment, heart issues, and chronic pain. This isn’t “just being tired.”
December 4, 2024 at 11:54 PM
Fatigue is just one part of #LongCOVID. Imagine living every day feeling like you’re on the edge of consciousness, compounded by debilitating symptoms like cognitive impairment, heart issues, and chronic pain. This isn’t “just being tired.”
Society often ignores the experiences of the most vulnerable, especially those with #LongCovid or #chronicillness. Those devastated by the pandemic have been left voiceless while the least affected dominate the narrative.
December 4, 2024 at 11:07 PM
Society often ignores the experiences of the most vulnerable, especially those with #LongCovid or #chronicillness. Those devastated by the pandemic have been left voiceless while the least affected dominate the narrative.
Many have decided the pandemic is over—not because it truly is, but because they want it to be. For those living with #LongCOVID or grieving loved ones, the pandemic is far from over. Read more about this reality and how we can approach it with empathy.
Long COVID and the Need for Empathy: The Pandemic Isn’t Over for Everyone | One Change
COVID isn't over for everyone. Let's foster empathy and understanding for those still struggling with Long COVID and chronic illness.
buff.ly
December 4, 2024 at 8:13 PM
Many have decided the pandemic is over—not because it truly is, but because they want it to be. For those living with #LongCOVID or grieving loved ones, the pandemic is far from over. Read more about this reality and how we can approach it with empathy.
Living with #LongCovid isn’t just an extended flu—it’s a life-changing, body-altering, all-consuming experience. Here’s what it’s really like, from someone who’s been there. ↓
December 4, 2024 at 6:44 PM
Living with #LongCovid isn’t just an extended flu—it’s a life-changing, body-altering, all-consuming experience. Here’s what it’s really like, from someone who’s been there. ↓
There are so many aspects of #LongCOVID that make me not feel like me.
December 4, 2024 at 3:47 PM
There are so many aspects of #LongCOVID that make me not feel like me.
Being with someone when they are in the midst of a crisis means getting your hands dirty. You are going to hurt, see their mess, their pain, their suffering. #ChronicIllness #LongCovid
December 4, 2024 at 6:56 AM
Being with someone when they are in the midst of a crisis means getting your hands dirty. You are going to hurt, see their mess, their pain, their suffering. #ChronicIllness #LongCovid
My North Star in everything is to learn and grow. It has been my entire life. As our family navigates #LongCOVID that continues to be what guides me. I want to come out of the other side of this, if there is one, healthier than I was going in.
December 2, 2024 at 5:56 PM
My North Star in everything is to learn and grow. It has been my entire life. As our family navigates #LongCOVID that continues to be what guides me. I want to come out of the other side of this, if there is one, healthier than I was going in.
CPTSD, PTSD and ongoing #Trauma often manifest as switching btwn fight/flight & collapse. Our systems try to mobilize (fight/flight which can look like anger, anxiety, etc) & when we can't sustain the output of energy we collapse (can look like depression). We can be stuck bouncing between these.
December 2, 2024 at 7:16 AM
CPTSD, PTSD and ongoing #Trauma often manifest as switching btwn fight/flight & collapse. Our systems try to mobilize (fight/flight which can look like anger, anxiety, etc) & when we can't sustain the output of energy we collapse (can look like depression). We can be stuck bouncing between these.
December 1, 2024 at 6:53 AM