The millions of people suffering from #LongCOVID deserve empathy, compassion and resources to recover our lives in a meaningful way.

Disaster struck our family almost 5 years. We've been left on our own by society + the government to find our way through it. We didn't do something to deserve what happened.

Our lives matter.

I’d love to hear any ways that you do your future self a favor especially if you’re chronically ill or helping to care for others. #chronicillness

When I was #pregnant with my kids we stocked up on a freezer full of meals by doubling recipes.

We don't have to perform. All feelings are OK. You will not be left alone or left out. We will change what we need to to make sure that everyone is cared for and included.

#InclusionMatters

Here’s a reminder I just gave my son & @k3nd477.com has given me plenty of times:

These holidays are for us. We adapt them to fit our needs.

If someone shares this with you, it’s ok to feel the discomfort and awkwardness. Don't run from it. Lean in. That's the only way we learn how to hold space for one another. #DisabilitySky

It's really important as a human to be able to sit with suffering--both your own and others. It's an essential basic human skill that most people haven't learned. #ChronicIllness

Happy birthday!

Our risk for infection would greatly go up, access to healthcare would go down because we cannot travel that frequently, our symptoms would be exacerbated, and we would have more crashes if we didn’t have access to telehealth. We need to be able to access care at home. @longcovidfam.bsky.social

Longhaulers often struggle to get through the basics of eating and going to the bathroom in a day and yet they will listen, help and love with the very little energy they have. #ChronicIllness

All of this while still taking care of my mental and physical health. It's really irritating that only now that my husband does some of these things, because I'm unable, they are acknowledged and praised by others.