Patient Experience Library
@patientlibrary.bsky.social
1.5K followers 1.6K following 120 posts
Open access evidence base for patient experience, lived experience, patient/public involvement. www.patientlibrary.net
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sallygainsbury.bsky.social
Trump and pharma are lobbying gov hard to water-down the NHS’s ability to contain spending on new branded drugs. Today’s long read from me and the LSE’s Huseyin Naci sets out why the gov should hold firm to protect the health of the NHS and UK public nuffieldtrust.org.uk/news-item/th... >>
The tough choices at the heart of the government’s dispute with big pharma
The government has been locked in a dispute with pharmaceutical companies for a number of months over how much the NHS pays for new branded medicines. Sally Gainsbury and Huseyin Naci set out the issu...
nuffieldtrust.org.uk
patientlibrary.bsky.social
Patients often talk about medical care that has been excellent but communications and admin systems that have been poor. @hayleygullen.com tells her story of battling bureaucracy in the latest edition of our quarterly magazine. Get your copy here: pexlib.net?249293
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thekingsfund.bsky.social
The social care system is not fit for purpose. Many people can't access the care and support they need and others are left facing catastrophic costs. Our new long read outlines the six key issues and the options cited to tackle them. https://bit.ly/3VPOdH3
Fixing Social Care: The Six Key Problems And How To Tackle Them
Different people have different opinions about what’s ‘wrong’ with social care and how to fix it. This long read outlines the six key issues and the options cited to tackle them.
www.kingsfund.org.uk
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wrigleyfield.bsky.social
New podcast episode where I talk about what's going on with mortality in the US

A wide-ranging discussion of what happened before the pandemic & what's happened since then; racial disparities and how to get our heads around their scope; why things might be going so badly for Millennials & Gen Zers
Prof. Elizabeth Wrigley-Field Discusses Excess Deaths
Because the US death rate has exceeded that of 21 other high income countries for over four decades, an estimated 14.7 million US lives have been lost since1980.
www.thehealthcarepolicypodcast.com
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drlizamorton.bsky.social
My new book 'Beyond the Medical Gaze: Practicing Psychologically Informed Healthcare' is NOW AVAILABLE ONLINE from @oxunipress.bsky.social
Available in print from 28 Nov 25.
Download: academic.oup.com/book/61406

#booksky #medsky #psychsky #chronicillness #healthcare #livedexperience
Beyond the Medical Gaze: Practicing Psychologically Informed Healthcare
Abstract. Long-term health conditions (LTCs) affect one-third of the global population and are associated with a heightened risk of depression, anxiety, me
academic.oup.com
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hayleygullen.com
NHS bureaucratic failures are on my mind a lot right now. Can you tell????

#cansky
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thelancet.com
Maternal wellbeing has been described in the literature, but no consensus on a global definition is available 🌍

Introducing “Maternal wellbeing: a WHO definition and conceptual framework”, now in @lancetobgyn-wh.bsky.social 👉 tinyurl.com/ytj8umfs
Maternal wellbeing concepts. Copyrights: WHO/Adrien Liard.
patientlibrary.bsky.social
Patient Experience Quarterly out now. News, views and comment from the world of #PatientExperience and patient/public involvement. Plus our top picks from recent research studies and surveys. Get your copy here: pexlib.net?249293
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healthwatchengland.bsky.social
Think there is no power in your feedback? Don't believe it can make a difference to services? We want to show you this isn't the case. Check out some recent examples of how your feedback made a difference - www.healthwatch.co.uk/our-impact
Your feedback can lead to change and help make care better for everyone
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copronetwales.bsky.social
Our 12 week course, Co-production and You, has always been very highly rated by our previous students. Don't just take our word for it, check out the feedback below 👇
Spaces are starting to be booked - don't miss out! Find out more and book: buff.ly/Bede6gA
Reposted by Patient Experience Library
nursingtimes.bsky.social
New pill for advanced lung cancer recommended by NICE

A daily pill for treating an aggressive form of lung cancer that affects younger patients is being made available on the NHS in England. #NICE #lungcancer #NHS #cancer #nursing #healthcare #health

www.nursingtimes.net/cancer/new-p...
New pill for advanced lung cancer recommended by NICE
A daily pill for treating an aggressive form of lung cancer that affects younger patients is being made available on the NHS in England.
www.nursingtimes.net
patientlibrary.bsky.social
Referrals that vanish without trace. Phones that don’t get answered. Baffling jargon. @hayleygullen.com tells her story of battling NHS bureaucracy in the latest edition of #PatientExperience quarterly. Get your copy here: pexlib.net?249293
patientlibrary.bsky.social
Patient Experience Quarterly out now. News, views and comment from the world of #PatientExperience and patient/public involvement. Plus our top picks from recent research studies and surveys. Get your copy here: pexlib.net?249293
Reposted by Patient Experience Library
hayleygullen.com
Delighted to have written an article about the admin burden of navigating the NHS as a seriously ill person.

Bad admin is traumatising. If your system traumatises people, it can’t heal them.
patientlibrary.bsky.social
Patients often talk about medical care that has been excellent but communications and admin systems that have been poor. @hayleygullen.com tells her story of battling bureaucracy in the latest edition of our quarterly magazine. Get your copy here: pexlib.net?249293
patientlibrary.bsky.social
Patients often talk about medical care that has been excellent but communications and admin systems that have been poor. @hayleygullen.com tells her story of battling bureaucracy in the latest edition of our quarterly magazine. Get your copy here: pexlib.net?249293
Reposted by Patient Experience Library
hayleygullen.com
I was chuffed that Liz (who is working on the national breast screening programme) had some big thoughts after reading my book…
Reposted by Patient Experience Library
abcuk.bsky.social
The #NIHR Patient Engagement in Clinical Development Service, in collaboration with ABC UK, is looking for 6–8 adults (18+) in the UK who:
✅ Have lived experience of bladder cancer – either as a patient or carer
✅ Can access and use a program like Microsoft Word

tinyurl.com/mvupep8z

#BladderCancer
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centreformh.bsky.social
We're hiring! Brilliant opportunity to join our policy team
and lead a new, high-profile programme of work. This is an exciting opportunity to shape the national conversation on mental health at a time of major political and policy developments. www.centreformentalhealth.org.uk/vacancy/poli...
Photo of a young Black man wearing glasses, smiling, sitting at a desk witha laptop and looking off to the side. Text: Could you be our Policy Analyst?
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healthwatchoxfordshire.co.uk
October is #Menopause awareness month and we'd like to make you aware of the Menopause Information and Support sheet we have produced, for download healthwatchoxfordshire.co.uk/wp-content/u... along with our recent webinar "Let's talk menopause" healthwatchoxfordshire.co.uk/news-and-eve...
Image of our menopause information sheet, with a screen capture from the recent webinar
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nessieevidence.bsky.social
Would you like to get involved with our latest #NESSIE project? Visit our webpage or email us for more details – links in bio.  #evidencesynthesis#bestevidence#evidencebased#EvidenceBasedPractice#evidencedbasedresearch #PPI #patientinvolvement #chronicpain #LifeWithPain
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nursingtimes.bsky.social
The influence of gender stigma in the management of pain for women

Learn how stigma and bias affect women’s pain assessment and treatment in this fifth article in a series on stigma in healthcare. #nursing #nurses #pain #gender #stigma #womenshealth #health

www.nursingtimes.net/womens-healt...
The influence of gender stigma in the management of pain for women
Discover how gender bias impacts women’s pain care and learn strategies to improve assessment, diagnosis and treatment plans.
www.nursingtimes.net
Reposted by Patient Experience Library
ageingbetter.bsky.social
Less than half of Disabled people aged 50-66 feel their workplace is inclusive.

We can do better. Inclusive policies must be clearly communicated, upheld, and embedded in workplace culture.

Read more in our Supporting Disabled Older Workers report: buff.ly/9Ux1kRX

#OlderWorkers #DisabledWorkers
“They’re really hot on fairness, on wellbeing, mental and physical, providing tools that any of us need. I can’t fault them on that side of things at all.” Female, fifties, administrator in the NHS
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arc-west.bsky.social
🍃 #WorldMentalHealthDay event you may be interested in 👇
chcr-uwe.bsky.social
10th October, on the World Mental Health Day, UWE Bristol’s Centre for Public Health and Wellbeing is hosting “Nature based social prescribing: Translating evidence into impact” at the Watershed Bristol. Please click on the link to know more about the event. Thanks www.uwe.ac.uk/events/natur...
Nature based social prescribing: Translating evidence into impact | UWE Bristol
Join us at the Nature Based Social Prescribing: Translating Evidence into Impact event at the Watershed, Bristol.
www.uwe.ac.uk