The ME/CFS research foundation has started tracking the Norway and Iceland research landscape (alongside existing Germany, Austria, Switzerland and the Netherlands tracking).

Image is of Norway publications. They have 3 Phase II trials currently running.

mecfs-research.org/en/news-mrr-...

Covid is dropping fast too.

A whopping 140,179 papers in 2021 and its down to 58599 last year. Still much much bigger than the Long Covid and ME/CFS showing the long term disease aspect is still comparatively poorly studied.

ME/CFS has grown significant, there was 9 papers in 2001 and 258 last year. At current rates this year there will be 313 papers, the most ever.

🧵The number of papers going through pubmed on Long Covid is dropping. The height was 2022 with 11166 papers whereas last year there was 7369 and at current rates this year will reach 6,645.

but for ME/CFS however....

"half of the diagnosed patients (3026, 47.6%) were seen in a hospital-based ME/CFS specialist service. NHS GPs saw most diagnosed (4758, 74.9%) and undiagnosed (177, 63.0%) patients."

NHS experience after being diagnosed with ME/CFS, 33.76% described their experience as very poor, poor and mixed experiences were also commonly reported, with 18.39% and 25.52%. Only 5.29% reported good experiences , excellent 1.39% or did not know 0.53%.

A "map" created by NIHR of 639 studies of ME/CFS from January 2018 to May 2023. Concerningly only 11% of studies included people with postexertional malaise.

The map of types of studies (7) and goals is quite interesting as is the bias chart (9).

meassociation.org.uk/2025/03/nihr...

Retractions seem to cluster on a number of institutions rather than individuals suggesting poor regulation within those universities. 60% are affliated with China. Ethiopia, Saudi Arabia Iraw and Pakistan have high retraction rates, 10x somewhere like the USA or UK.

www.nature.com/articles/d41...

Sometimes you come across a study and you think "really?". This is one of them, using lasers on blood to cure brain fog. Showed big improvements apparently.

pubmed.ncbi.nlm.nih.gov/39960888/

Wages over time really cuts through the medical misinformation on ME/CFS. This norwegian study showed just 5% improved to something more like median wages, 38% moved to a lower wage. The impact on wages appeared 3 years before diagnosis.

www.meresearch.org.uk/wages-earned...

Cataloging the proteins made inside a human cell has found a number of previously unknown proteins that are relatively short consisting of a few amino acids and we have no idea what they do coming from genes we had assumed was excess.

www.nature.com/articles/d41...

Andrew who posted on Phoenix Rising has died on the 5th November. 😢

#mecfs

This is a truly bizarre finding. The higher incoming countries offer less services really notably they don't treaty paediatric Long Covid at 1/3 of low income hospitals.
Maybe the suppression of Long Covid and its treatment is a western medical thing not a world wide problem!

This graph shows the extent of the problem and how varied the care is with most offering very little in medical services.

Iraq multicentre mid size study with control looking at likely neurological Long Covid (not WHO criteria). Found antibodies against neuronal proteins elevated and somewhat correlated with #LongCovid severity.

Some patients appear to have this, not all.

www.sciencedirect.com/science/arti...

L-Arginine (1.6g) and Vitamin C (500mg) for 30 days in a big study (>1300) people shows big improvements compared to a multivitamin on a variety of subjective symptoms in Long Covid patients. These are not small improvements they are massive improvements in QoL for a lot of people.