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Queenslanders for End of Life Legal Options @q4eollo.fyi · 7h

Sigh. Our kids and grandkids are locked out of the housing market. They are going to very angry Aussies some day.

We can't get Telehealth allowed for VAD for the terminally ill.

We seriously doubt anyone in Canberra could fix something as complicated as housing affordability

youtu.be/4IihsPhVd7c

Australian housing crash 2025 explained: Top Economist warns

YouTube video by ProfSteveKeen

youtu.be

Reposted by Queenslanders for End of Life Legal Options

Ian Kremer @leadcoalition.bsky.social · 20h

Let's all raise awareness about the power of #music in lives of people facing #Alzheimers disease and related forms of #dementia.

#happiness #quote

"Dear music, thank you for always clearing my head, healing my heart, and lifting my spirits." ~ Lori Deschene

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Queenslanders for End of Life Legal Options @q4eollo.fyi · 2d

Dementia and Voluntary Assisted Dying (VAD)

"Can I use VAD if I am diagnosed with dementia?" is the most frequently asked question at any public forum on VAD.

VADSA have put together a Dementia Resources Page

Here👇

www.vadsa.org.au/dementia?

Dementia resources

www.vadsa.org.au

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Reposted by Queenslanders for End of Life Legal Options

Ian Kremer @leadcoalition.bsky.social · 2d

Each of us needs attention, care, kindness, respect, and love.

#Alzheimers #dementia #mentalhealth #autism #kindness #poetry

"The Little Boy And The Old Man" by Shel Silverstein

Said the little boy, "Sometimes I drop my spoon."
Said the old man, "I do that too."
The little boy whispered, "I wet my pants."
"I do that too," laughed the little old man.
Said the little boy, "I often cry."
The old man nodded, "So do I."
"But worst of all," said the boy, "it seems
Grown-ups don't pay attention to me."
And he felt the warmth of a wrinkled old hand.
"I know what you mean," said the little old man.

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Queenslanders for End of Life Legal Options @q4eollo.fyi · 2d

Covid infection is associated with increased risk of new onset vascular dementia in adults over 50 years old.

Stay topped up with your Covid booster. If you're eligible under the guidelines go get it.

Talk to your GP👇

Ian Kremer @leadcoalition.bsky.social · 2d

COVID-19 infection associated with increased risk of new-onset vascular dementia in adults ≥50 years nature.com/articles/s44...

#COVID #coronavirus #dementia #health

COVID-19 infection associated with increased risk of new-onset vascular dementia in adults ≥50 years - npj Dementia

npj Dementia - COVID-19 infection associated with increased risk of new-onset vascular dementia in adults ≥50 years

nature.com

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Queenslanders for End of Life Legal Options @q4eollo.fyi · 3d

This isn't just for NYC.
It'll work here downunder just fine too.👇

Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 4d

By nychealthy @nychealthy.bsky.social

The best way to prevent Long COVID is to prevent getting COVID-19 or getting it multiple times. That means staying up to date with COVID-19 vaccines and wearing a well-fitting mask, especially when indoors among crowds.

Learn more: www.nyc.gov/site/doh/cov...

The image is a public health poster from NYC Health titled “Prevent Long COVID.”

It explains that the only way to prevent Long COVID is to avoid getting COVID-19, as each infection carries a risk.
It lists prevention tips:

Wear a well-fitting mask (N95, KN95, KF94) in crowded or poorly ventilated indoor spaces.

Stay up to date with COVID-19 vaccinations.

Stay home if sick, or wear a mask if you must go out.

Avoid close contact with sick people.

Wash hands often or use hand sanitizer.

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Queenslanders for End of Life Legal Options @q4eollo.fyi · 3d

Don't forget about Friday night's gig here at the Powerhouse in Brisbane. (10th Oct at 5:30 pm). 👇

brisbanepowerhouse.org/events/the-p...

The Power of Choice - Brisbane Powerhouse

Honouring the lives and dignity of his subjects, Julian Kingma appears alongside Andrew Denton to discuss this profound work and the real human stories that are often elided by political noise.

brisbanepowerhouse.org

Queenslanders for End of Life Legal Options @q4eollo.fyi · 3d

Australia Drug Regulators Approve Leqembi for Alzheimer’s.

"Not a cure" but may be "another option"👇

beingpatient.com/australia-ap...

Australia Drug Regulators Approve Leqembi for Alzheimer's | Being Patient

Both Alzheimer's anti-amyloid drugs Leqembi and Kisunla are now approved in Australia for patients without two copies of the ApoE4 gene.

beingpatient.com

Reposted by Queenslanders for End of Life Legal Options

Ian Kremer @leadcoalition.bsky.social · 3d

Learning to replace argument with reassurance can be as hard as it is worthwhile.

#Alzheimers #dementia #caregiving #quote

"Don't argue...it's their reality.
But you can promise. Promise always
with a hug, a kiss, or squeezing their hand,
because it calms them."

~ Eunice G.

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Queenslanders for End of Life Legal Options @q4eollo.fyi · 4d

An Australian perspective on Dementia 👇

💚🌏Myles🌏💚 @mylesjaybee.bsky.social · 6d

Dementia is now the leading cause of death in Australia, yet families are left waiting months or years for properly staffed residential care. The system recognises the disease as fatal, but still refuses to treat those living with it as a priority!
#auspol

Dementia is now the leading cause of death in Australia. But why is it fatal?

Dementia’s effects on the brain can cause death. But they can also lead to other complications, which can then be fatal.

theconversation.com

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Queenslanders for End of Life Legal Options @q4eollo.fyi · 4d

Don't forget your weekend wrap from NSL.

VAD gets two mentions this week.

👉 Good news - VAD laws WILL be introduced to the NT Parliament.

👉 Oliver Lee-Young: Last Cab to Darwin director, advocates for VAD as film marks 10-year anniversary.

+ more👇

National Secular Lobby @secularlobby.bsky.social · 4d

Welcome to the 5 October 2025 edition of the NSL Weekend Wrap, your weekly round-up of news and views on Australian #secular issues! #auspol #secularism

https://www.nsl.org.au/columns/weekend-wrap-for-5-october-2025/

Weekend Wrap for 5 October 2025 - National Secular Lobby

Catch up on the latest Australian secular news with the NSL's Weekend Wrap for 5 October 2025.

www.nsl.org.au

Queenslanders for End of Life Legal Options @q4eollo.fyi · 4d

We prefer to find primary sources of research / information when possible.

See some hints below for doing your own research. (We're a bit cautious of AI summaries tho)

👇

Good Brain News - by The Dementia League @dementialeague.bsky.social · 4d

‼️ Most people don't realize how easy it is to find research articles on any topic to directly answer your questions.

1) Google Scholar (type in keywords)
2) PubMed (type in keywords)
3) OpenEvidence (AI based)

OpenEvidence may be the best b/c it answers questions & gives supporting articles.

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Queenslanders for End of Life Legal Options @q4eollo.fyi · 4d

Good news for VAD access in the NT! 👇

National Secular Lobby @secularlobby.bsky.social · 4d

Voluntary assisted dying laws will be introduced to the Northern Territory Parliament, with the Country Liberal Government confirming it will move ahead with drafting a bill. #ntpol #auspol

https://cathnews.com/2025/10/02/nt-government-to-draft-voluntary-assisted-dying-bill/

NT Government to draft voluntary assisted dying bill - CathNews

Voluntary assisted dying laws will be introduced to the Northern Territory Parliament, with the Country Liberal Government confirming yesterday it will move ahead with drafting a bill. Source: NT News.

cathnews.com

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Queenslanders for End of Life Legal Options @q4eollo.fyi · 5d

👉 Australian Greens @greens.org.au
👉 Senator Waters @larissawaters.bsky.social
👉 Senator Allman-Payne @pennyallmanpayne.com
👉 Senator Faruqi @mehreenfaruqi.bsky.social
👉 Senator Hanson-Young @sarahhansonyoung.bsky.social
👉 Senator McKim @nickmckim.bsky.social

Can you bargain us some help pls?

Queenslanders for End of Life Legal Options @q4eollo.fyi · 5d

‪Today is Saturday No. 21 of the Albanese Govt's 2nd term.

We still don't have:

👉 Telehealth use decriminalised for VAD tasks
👉 Medicare coverage for VAD tasks

This govt, for the 2nd term, continues to ignore our terminally ill Aussies - especially our rural & remote patients.

How about it ASAP?

Queenslanders for End of Life Legal Options @q4eollo.fyi · 5d

‪Today is Saturday No. 21 of the Albanese Govt's 2nd term.

We still don't have:

👉 Telehealth use decriminalised for VAD tasks
👉 Medicare coverage for VAD tasks

This govt, for the 2nd term, continues to ignore our terminally ill Aussies - especially our rural & remote patients.

How about it ASAP?

Queenslanders for End of Life Legal Options @q4eollo.fyi · 5d

We imagine this'd be supported heavily here too.

But we have a few battles to fight before this one:

👉 Removal of gag clauses in southern states
👉 VAD legislated in hold out NT
👉 Telehealth use for VAD tasks
👉 Medicare coverage for VAD
👉 Institutional obstruction of VAD in aged care facilities

Dying With Dignity Canada @dyingwithdignity.ca · 5d

Did you know? A recent Ipsos poll commissioned by Dying With Dignity Canada indicates that 84% of people across Canada support advance requests for MAID for individuals with a grievous and irremediable medical condition.

Read more about the results on our website. ow.ly/Injn50VAr35

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Reposted by Queenslanders for End of Life Legal Options

The Realistic Caregiver @caregiverqueen.bsky.social · 5d

I love this!

Denise Brown @caregiving.bsky.social · 5d

We experience so much stress during our caregiving experience. Struggling to find someone who can receive the stories of our heartache and heartbreak added to our stress.

It's why we host the #Caregiving Listener Project so you can connect with a Volunteer Listening Artist.

youtu.be/jjXm1Tg_acs

Tell Us What May Be Difficult to Tell Another: Caregiving Listener Project

YouTube video by Caring Our Way through the Caregiving Years

youtu.be

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Reposted by Queenslanders for End of Life Legal Options

Ian Kremer @leadcoalition.bsky.social · 5d

For so many people living with Alzheimer's disease, the present is confusing and recent experiences are difficult to retain. But older memories can be more vivid, less confusing, and can offer both greater self-confidence and happiness.

#Alzheimers #dementia #caregiving #happiness #quote

Caregiver Tip #53

"When I get overwhelmed, I try to spend time talking to my mom about her life, her memories of her childhood, and her family. When she smiles, it makes my heart smile and I don't feel so overwhelmed."

~ Debbie M.

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Queenslanders for End of Life Legal Options @q4eollo.fyi · 6d

From Go Gentle re aged care:

"Always be prepared. Ask an aged care facility as far in advance as you can if VAD can take place on their premises. Ideally, find out the provider's position on VAD before becoming resident in their facility. This means you can plan, and avoid any unexpected transfers"

Queenslanders for End of Life Legal Options @q4eollo.fyi · 6d

Check out the Go Gentle report card on VAD in Residential Aged Care Homes.

It is not good.

"Disturbing"

"85 per cent of residential aged care providers do not offer VAD access to their residents, or do not offer any public information about VAD."

👇
www.gogentleaustralia.org.au/2025_vad_age...

VAD in Residential Aged Care Homes

Our vision is an Australia where we all have choice at the end of life. We empower people to choose the care that is right for them, including the option of voluntary assisted dying.

www.gogentleaustralia.org.au

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Queenslanders for End of Life Legal Options @q4eollo.fyi · 6d

Check out the Go Gentle report card on VAD in Residential Aged Care Homes.

It is not good.

"Disturbing"

"85 per cent of residential aged care providers do not offer VAD access to their residents, or do not offer any public information about VAD."

👇
www.gogentleaustralia.org.au/2025_vad_age...

VAD in Residential Aged Care Homes

Our vision is an Australia where we all have choice at the end of life. We empower people to choose the care that is right for them, including the option of voluntary assisted dying.

www.gogentleaustralia.org.au

2

Reposted by Queenslanders for End of Life Legal Options

Ian Kremer @leadcoalition.bsky.social · 7d

It is easy to become consumed by stress and hard to find time for self-care. But preventing burnout is essential to sustaining and potentially improving our caregiving for loved ones with dementia.

(image: @positivelypresent.bsky.social) #Alzheimers #dementia #caregiving #stress #mentalhealth

An infographic about self-care/motivationals to try during October

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Queenslanders for End of Life Legal Options @q4eollo.fyi · 7d

Click on "awards" in the top line to go thru to the WFRTDS site for past award recipients and further details.

👇

Thaddeus Mason Pope @thaddeuspope.bsky.social · 7d

World Federation of Right to Die Societies - Awards 2026

Please consider making a nomination for one of these 2026 WFRTD awards. Marilynne Seguin Award Established in 2004, this award recognises a person who has made an outstanding contribution to achieving legal assisted dying in their own country. Named after Marilynne Seguin, a Canadian nurse and author of A Gentle Death, the award honours those who, like her, have advocated tirelessly to ensure the suffering of others is met with dignity and choice. Health Professional Award Created in 2006, this award is presented to a health professional who has shown extraordinary commitment and leadership in advancing the right to die with dignity, particularly through personal risk or advocacy within their profession.

dlvr.it

Queenslanders for End of Life Legal Options @q4eollo.fyi · 7d

So stay topped up with all your vaccines! If you're eligible go get them.

Vaccines may reduce your risk of dementia.

Check it out👇

Aging Well Institute @awi-bu.bsky.social · 7d

Four vaccines that reduce your risk of dementia

flip.it/R7QyxJ

Four vaccines that reduce your risk of dementia

Recent studies indicate that vaccines, including shingles, RSV, Tdap, and flu vaccines, can significantly reduce the risk of dementia.

flip.it

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Queenslanders for End of Life Legal Options @q4eollo.fyi · 7d

In Case of Emergency.

Many have an "ICE" on their phone - accessible by medical / emergency personnel without needing to unlock the phone. You can put your medications, ailments etc in there.

I added "please respect my AHD" and where to find it to mine.

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Queenslanders for End of Life Legal Options @q4eollo.fyi · 8d

So you've completed your advance health directive.

What then?

You’ll now want to make sure it's used if the time ever comes.

It’s very important to share copies.

Here's a guide👇

Print out the pdf wallet card too. Maybe copy card to ICE on mobile.

www.advancecareplanning.org.au/start-planni...

Store and share your documents

How to store and share your advance care planning documents.

www.advancecareplanning.org.au

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