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EORTC Quality of Life Group (QLG) @qol.eortc.org · 9d

👏 Honoured to see our colleague Claire Piccinin share @eortc.org perspectives at the NASEM Cancer Policy Forum today.

Her talk will highlight how patient-reported outcomes can shape research and care that is truly patient-centred 💪

#GivingVoice2Patients #QualityofLife

More info 👇

European Organisation for Research and Treatment of Cancer @eortc.org · 10d

📢 Today, at the NASEM National Cancer Policy Forum, our colleague Claire Piccinin will present perspectives from EORTC on patient-centred initiatives and ongoing efforts to promote the impactful use of patient-reported outcome data 👇

www.nationalacademies.org/event/44567_...

#QLG @qol.eortc.org

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Reposted by EORTC Quality of Life Group (QLG)

Winette van der Graaf @winettevandergraaf.bsky.social · 11d

Very interesting session with speakers from Japan, India, Slovenia, Jordan, South Africa and South Korea.
Language matters, cultural sensitivity even more, particularly in Quality of Life Research. There’s work to do!

Happy to have introduced the topic showing other global activities @eortc.org

EORTC Quality of Life Group (QLG) @qol.eortc.org · 12d

💡 Insightful panel discussion as part of @eortc.org #QualityofLife Group autumn meeting closing plenary session.
We look forward to broadening our collaborations in global context🤝

#QLGmeeting #GivingVoice2Patients
@winettevandergraaf.bsky.social @miekevhr.bsky.social

www.eortc.org/event/eortc-...

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EORTC Quality of Life Group (QLG) @qol.eortc.org · 12d

👏Another great meeting of @eortc.org #QualityofLife Group coming to an end.
Many projects, collaborations, inspiring discussions &exchanges of ideas💡

Thank you for joining us, see you in Berlin in April 2026!
#QLGmeeting #GivingVoice2Patients
@mogensgroenvold.bsky.social @dirkhofmeister.bsky.social

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EORTC Quality of Life Group (QLG) @qol.eortc.org · 12d

💡 Insightful panel discussion as part of @eortc.org #QualityofLife Group autumn meeting closing plenary session.
We look forward to broadening our collaborations in global context🤝

#QLGmeeting #GivingVoice2Patients
@winettevandergraaf.bsky.social @miekevhr.bsky.social

www.eortc.org/event/eortc-...

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Reposted by EORTC Quality of Life Group (QLG)

Mogens Groenvold @mogensgroenvold.bsky.social · 13d

Excited to host - for the third time - this meeting of a scientific group that I joined in 1989, and which has since made a very substantial contribution to its field.

EORTC Quality of Life Group (QLG) @qol.eortc.org · 14d

👏🏼 Welcome to the @eortc.org #QualityofLife Group autumn meeting 2025 in sunny Copenhagen! 🇩🇰

We have a packed room for the welcome session and a busy programme for the two days ahead - looking forward to another productive meeting! 💪🏼

#GivingVoice2Patients #QLGmeeting

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EORTC Quality of Life Group (QLG) @qol.eortc.org · 14d

👏🏼 Welcome to the @eortc.org #QualityofLife Group autumn meeting 2025 in sunny Copenhagen! 🇩🇰

We have a packed room for the welcome session and a busy programme for the two days ahead - looking forward to another productive meeting! 💪🏼

#GivingVoice2Patients #QLGmeeting

EORTC Quality of Life Group (QLG) @qol.eortc.org · 20d

🌟Attending the 3rd International Multidisciplinary Anal Cancer Conference (IMACC 2025) in Leeds today &tomorrow?

Don't miss the 3 poster presentations & mini oral presentation by our @eortc.org #QualityofLife Group members Samantha Sodergren & Daniel Aze 👇

More info: english.events/imacc2025/co...

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EORTC Quality of Life Group (QLG) @qol.eortc.org · 28d

📢 Attending #EAPM2025 this week?
Today, our @eortc.org #QualityofLife Group member Ines Rathgeber will report on the development of an e-learning course focusing on the use of EORTC PRO measures for quality of life assessment in clinical practice 👇

eapm.eu.com/2025-eapm-co...

#CancerResearch

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EORTC Quality of Life Group (QLG) @qol.eortc.org · Sep 2

👏 Proud to see this new policy review by Ian Tannock et al. in
@thelancetoncol.bsky.social!

It highlights the need for standardised HRQoL responder criteria for better patient care & clinical decision-making.
👉 eortc.org/blog/2025/09...

#QualityofLife #GivingVoice2Patients
@madelinepe.bsky.social

European Organisation for Research and Treatment of Cancer @eortc.org · Sep 2

🔔 New in @thelancetoncol.bsky.social:
Policy review led by Ian Tannock & Madeline Pe with EORTC & CSO highlights the critical role of patient quality of life data in the evaluation of treatments for people with advanced cancer.
📖Read more: www.eortc.org/blog/2025/09...
#CancerResearch #QualityofLife

Reposted by EORTC Quality of Life Group (QLG)

European Organisation for Research and Treatment of Cancer @eortc.org · Aug 14

🎯 New date!

Join EORTC on 24 Sept 2025 for Treatment Optimisation: Making Cancer Treatment Accessible & Sustainable in Europe, hosted by Mrs Tilly Metz at the @europarl.europa.eu.

🗓️ 24 Sept

📍 EU Parliament & online

🔗 www.eortc.org/event/eortc-...

⚠️ Previous registrations are invalid.

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EORTC Quality of Life Group (QLG) @qol.eortc.org · Aug 18

📢 Final reminder to please register by 1st September (extended deadline) if you wish to attend the @eortc.org #QualityofLife Group autumn Meeting 2025:

📅 25-26 September
📍 Copenhagen (DK)
🔗 Registration link in invitation email
🔎 Info on programme etc: www.eortc.org/event/eortc-...

#QLGmeeting

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EORTC Quality of Life Group (QLG) @qol.eortc.org · Aug 14

🚨Important findings in K Taylor et al. study on life after head & neck cancer: long-term toxicities affect most survivors — highlighting the need for better patient support & tailored follow-up care.

doi.org/10.1002/ijc....

#CancerCare #GivingVoice2Patients #QualityofLife
@uiccofficial.bsky.social

European Organisation for Research and Treatment of Cancer @eortc.org · Aug 13

📰New @uiccofficial.bsky.social International Journal of Cancer study by K. Taylor et al. for @qol.eortc.org & @eortc.org Head & Neck Cancer (HNC) Group: 68% of long-term HNC survivors face moderate–severe toxicities. Insights can guide patient info & survivorship care.

doi.org/10.1002/ijc....
#QoL

Reposted by EORTC Quality of Life Group (QLG)

European Organisation for Research and Treatment of Cancer @eortc.org · Aug 5

Are cancer treatments truly optimised for patients?

Our CEO, Denis Lacombe, shares why treatment optimisation must be central to cancer care, and how EU policy can help.

🔗 europeancancer.org/resources/ne...

#CancerCare #TreatmentOptimisation

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EORTC Quality of Life Group (QLG) @qol.eortc.org · Jul 28

🧠 New publication on survivors of oligodendroglioma highlights long-term impacts on health-related #qualityoflife and cognitive functioning. An international cross-sectional study from the @eortc.org Quality of Life Group study team.

🔗 doi.org/10.1093/neuo...

#NeuroOncology #GivingVoice2Patients

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EORTC Quality of Life Group (QLG) @qol.eortc.org · Jul 22

📅 Reminder: Registration is open for the @eortc.org #QualityofLife Group (QLG) autumn meeting, to be held on 25-26 September in Copenhagen!

⏰ Register by 19th August to secure your place!

🔗More info including on venue & programme: www.eortc.org/event/eortc-...

#QLGmeeting

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EORTC Quality of Life Group (QLG) @qol.eortc.org · Jul 15

📢 A unique opportunity to contribute to meaningful, patient-focused research in oncology. If you are looking to deepen your experience in #QualityofLife studies within clinical trials, this @eortc.org Fellowship is an excellent step forward.
Join our team!👇

www.eortc.org/job/fellowsh...

European Organisation for Research and Treatment of Cancer @eortc.org · Jul 15

🚨 Fellowship opportunity at EORTC!

Passionate about patient-centred research in oncology? Join EORTC’s #QualityofLife team in Brussels for hands-on experience in designing, managing & analysing QoL studies in cancer trials.

Apply now 👉 www.eortc.org/job/fellowsh...

@qol.eortc.org #CancerResearch

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EORTC Quality of Life Group (QLG) @qol.eortc.org · Jul 10

📢 Attending the Research & Innovation Conference at @leedsth.nhs.uk today?

🎤 Rose Peacock is presenting a poster on behalf of @eortc.org #QualityofLife Group on the current use of customised Patient-Reported Outcome (PRO) item lists in #CancerResearch.

More info: www.leedsth.nhs.uk/research/ri-...

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Reposted by EORTC Quality of Life Group (QLG)

European Organisation for Research and Treatment of Cancer @eortc.org · Jul 2

🎤“#EUHTA's regulation offers a framework for collaborative assessment, potentially speeding up patient access to new treatments. But it overlooks treatment optimisation & post-licensing studies. Balanced systems are key to patient-centricity,” Denis Lacombe at EU HTA conference.

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EORTC Quality of Life Group (QLG) @qol.eortc.org · Jun 27

📣 Registration is now open for the @eortc.org #QualityofLife Group (QLG) autumn meeting, on 25-26 September in Copenhagen (DK)!

✉️ Registration link sent to all EORTC QLG members by email today
🔎 More information on venue, programme, etc, available here: www.eortc.org/event/eortc-...

#QLGmeeting

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EORTC Quality of Life Group (QLG) @qol.eortc.org · Jun 19

📢 Team of international researchers establish @eortc.org QLQ-F17 as an equivalent to EORTC QLQ-C30 to assess functioning in cancer patients.

👉 Learn more about this recent study in the related news release just published: qol.eortc.org/researchers-...

#QualityofLife @mogensgroenvold.bsky.social

EORTC Quality of Life Group (QLG) @qol.eortc.org · Jun 5

🚀 New publication by Florian Zeman et al. shows that future clinical studies can use the @eortc.org QLQ-F17 questionnaire as a generic tool without losing comparability to studies using the QLQ-C30.

🔗 Read more here: doi.org/10.1016/j.ec...

#CancerResearch #QualityofLife #GivingVoice2Patients

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EORTC Quality of Life Group (QLG) @qol.eortc.org · Jun 19

🔗 More information on the 9th UK #PROMs conference including the programme: www.birmingham.ac.uk/research/cen...

@unibirmingham.bsky.social #GivingVoice2Patients

EORTC Quality of Life Group (QLG) @qol.eortc.org · Jun 19

🎤 Excited to share another upcoming presentation today at the 9th UK #PROMs conference!

👉 Christopher Bedding from @eortc.org #QualityofLife (QoL) Group will present new guidelines for the use of patient-reported outcome (PRO) item libraries to allow more flexible PRO assessment in #CancerCare.

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EORTC Quality of Life Group (QLG) @qol.eortc.org · Jun 19

🔗 More information on the 9th UK #PROMs conference including the programme: www.birmingham.ac.uk/research/cen...

EORTC Quality of Life Group (QLG) @qol.eortc.org · Jun 19

🔎 With the @eortc.org QLQ-ANL27, patients with anal cancer now have a validated health-related quality of life (HRQoL) tool post-chemoradiotherapy—reliable, sensitive & multilingual. Supporting better outcomes worldwide.
#CancerCare #GivingVoice2Patients

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