Raspberry ♾️🌈🧠
@raspberry0987.bsky.social
God’s greatest little contraption. CHRONIC MIGRAINE CRUSHER, ME/CFS MASTER, ORTHOSTATIC HYPOTENSION OCTAHEDRON, IBS INVADER, HYPERMOBILE EDS HAMMERHEAD, FUNCTIONAL NEUROLOGICAL DISORDER FUNHOUSE, MCAS MEGATRON. Woman in STEM. I like House MD. 21yo.
Pinned
Raspberry ♾️🌈🧠
@raspberry0987.bsky.social
· Jan 19
Hi, I’m Raspberry! (she/her)
I have hEDS and a ton of comorbidities which I talk about a lot. I use a screen reader part-time due to photophobia and difficulty processing text. Please make images accessible if you can! That includes avoiding untagged strobe effects or eyestrain (e.g. stripes) 🙂
I have hEDS and a ton of comorbidities which I talk about a lot. I use a screen reader part-time due to photophobia and difficulty processing text. Please make images accessible if you can! That includes avoiding untagged strobe effects or eyestrain (e.g. stripes) 🙂
I was initially a bit uneasy about the autistic Barbie doll having a fidget spinner because of the stereotypes and distasteful memes but now I find out that it ACTUALLY SPINS?? NEVER MIND IDGAF ABOUT STEREOTYPES IT FUCKING SPINS
January 16, 2026 at 4:30 PM
I was initially a bit uneasy about the autistic Barbie doll having a fidget spinner because of the stereotypes and distasteful memes but now I find out that it ACTUALLY SPINS?? NEVER MIND IDGAF ABOUT STEREOTYPES IT FUCKING SPINS
Reposted by Raspberry ♾️🌈🧠
hearing from sources that Amelia Bedelia has been arrested in connection with the water-pouring assault. "but it was ICE headquarters," she said
January 16, 2026 at 12:58 AM
hearing from sources that Amelia Bedelia has been arrested in connection with the water-pouring assault. "but it was ICE headquarters," she said
I’ve had consistent nasal congestion each night following my new med, prazosin, so I know it’s doing something but it’s NOT PREVENTING MY FUCKING PTSD NIGHTMARES I just had a long horrible one at 6 AM and woke up to a dissociative seizure (I think, I can’t really remember it) and can no longer sleep
January 16, 2026 at 3:53 PM
I’ve had consistent nasal congestion each night following my new med, prazosin, so I know it’s doing something but it’s NOT PREVENTING MY FUCKING PTSD NIGHTMARES I just had a long horrible one at 6 AM and woke up to a dissociative seizure (I think, I can’t really remember it) and can no longer sleep
Reposted by Raspberry ♾️🌈🧠
It’s so funny to be like “this is when women were WOMEN”
January 16, 2026 at 1:50 PM
It’s so funny to be like “this is when women were WOMEN”
I was mid mental breakdown tweeting on my private X/Twitter account when the entire site apparently had an outage so I’m here now
January 16, 2026 at 3:37 PM
I was mid mental breakdown tweeting on my private X/Twitter account when the entire site apparently had an outage so I’m here now
Anyone else with #OrthostaticHypotension on Prazosin? It’s contraindicated I know but it’s seemingly my last hope for getting my PTSD nightmares and therefore sleep under control. And my dysautonomia specialist said up to 4mg should be okay as long as it’s nighttime only use.
#NEISVoid
#NEISVoid
January 16, 2026 at 5:45 AM
Anyone else with #OrthostaticHypotension on Prazosin? It’s contraindicated I know but it’s seemingly my last hope for getting my PTSD nightmares and therefore sleep under control. And my dysautonomia specialist said up to 4mg should be okay as long as it’s nighttime only use.
#NEISVoid
#NEISVoid
I’ve been eating chocolate almost every day even though my MCAS reacts fairly significantly to it because I just can’t. I can’t give it up man. It’s chocolate. How could you
January 16, 2026 at 5:42 AM
I’ve been eating chocolate almost every day even though my MCAS reacts fairly significantly to it because I just can’t. I can’t give it up man. It’s chocolate. How could you
It’s weird to think about how an FND diagnosis is so invalidating and incorrect for so much of the communities I’m in like with ME/CFS but was so validating and a huge relief for me. Like yes it is in my head, I have a brain problem and it’s not my fault and I’m not imagining it
January 16, 2026 at 5:37 AM
It’s weird to think about how an FND diagnosis is so invalidating and incorrect for so much of the communities I’m in like with ME/CFS but was so validating and a huge relief for me. Like yes it is in my head, I have a brain problem and it’s not my fault and I’m not imagining it
Twitter is making me irrationally angry today and I don’t want to flare again so trying to be more active here. How are my chronically ill friends (or non-friends)?
January 16, 2026 at 5:23 AM
Twitter is making me irrationally angry today and I don’t want to flare again so trying to be more active here. How are my chronically ill friends (or non-friends)?
Hi guys how are you all? Today I'm loving going to the doctor and getting worse from travel alone
January 8, 2026 at 1:00 AM
Hi guys how are you all? Today I'm loving going to the doctor and getting worse from travel alone
Also I can’t remember if I posted I got diagnosed with Small Fiber Neuropathy, it was confirmed via skin biopsy, very grateful to have better answers
November 20, 2025 at 5:54 AM
Also I can’t remember if I posted I got diagnosed with Small Fiber Neuropathy, it was confirmed via skin biopsy, very grateful to have better answers
Sorry for my sudden inactivity again I’ve been having a lot of dissociative episodes on a daily basis. Physical health has been up and down, my neurogenic orthostatic hypotension is improving with treatment, I started Mestinon in addition to the two other dysautonomia drugs which has helped a lot
November 20, 2025 at 5:52 AM
Sorry for my sudden inactivity again I’ve been having a lot of dissociative episodes on a daily basis. Physical health has been up and down, my neurogenic orthostatic hypotension is improving with treatment, I started Mestinon in addition to the two other dysautonomia drugs which has helped a lot
Hi guys, things kinda suck right now but I’m alive, how are you all?
September 24, 2025 at 6:03 PM
Hi guys, things kinda suck right now but I’m alive, how are you all?
Feeling really dissociated and floaty and kind of hallucinating after eating my favorite brand of pickle flavored potato chips which I just discovered has citric acid in the ingredients
August 11, 2025 at 8:36 PM
Feeling really dissociated and floaty and kind of hallucinating after eating my favorite brand of pickle flavored potato chips which I just discovered has citric acid in the ingredients
I’m so nauseous and brain fogged and weak. I thought I could handle going to the mall if I paced myself to two hours limit + use of electric wheelchair but I was already having a migraine and extreme tachycardia from anxiety by the time I got to the bus stop (at least I learned how to use the bus)
August 10, 2025 at 5:19 PM
I’m so nauseous and brain fogged and weak. I thought I could handle going to the mall if I paced myself to two hours limit + use of electric wheelchair but I was already having a migraine and extreme tachycardia from anxiety by the time I got to the bus stop (at least I learned how to use the bus)
Content warning: mentions of sex trafficking, pedophilia, CSA
Hi can we not do posts like this? Not only is it bad for screen readers due to the lack of alt text/censored text that screws up even my screen reader which can read images, it’s impossible to mute the post via word muting, so those
🧵
Hi can we not do posts like this? Not only is it bad for screen readers due to the lack of alt text/censored text that screws up even my screen reader which can read images, it’s impossible to mute the post via word muting, so those
🧵
August 10, 2025 at 5:16 PM
Content warning: mentions of sex trafficking, pedophilia, CSA
Hi can we not do posts like this? Not only is it bad for screen readers due to the lack of alt text/censored text that screws up even my screen reader which can read images, it’s impossible to mute the post via word muting, so those
🧵
Hi can we not do posts like this? Not only is it bad for screen readers due to the lack of alt text/censored text that screws up even my screen reader which can read images, it’s impossible to mute the post via word muting, so those
🧵
Bruh even breathing deeply makes my joints pop
July 31, 2025 at 1:50 AM
Bruh even breathing deeply makes my joints pop
I’ve had a migraine all day and now for some godforsaken reason I’m seriously craving apple pie. I can’t even have apples or cinnamon or high glycemic index foods like pie 
July 31, 2025 at 1:12 AM
I’ve had a migraine all day and now for some godforsaken reason I’m seriously craving apple pie. I can’t even have apples or cinnamon or high glycemic index foods like pie 
I hate scheduling so much I’m genuinely getting worse care because of it. I should talk to my doctor about my constant chest pain, but I’m pretty sure it’s benign, probably costochondritis, but I’ve been putting off scheduling sleep specialty, optometry, endodontist, etc. and IDK what to do first
July 30, 2025 at 1:43 AM
I hate scheduling so much I’m genuinely getting worse care because of it. I should talk to my doctor about my constant chest pain, but I’m pretty sure it’s benign, probably costochondritis, but I’ve been putting off scheduling sleep specialty, optometry, endodontist, etc. and IDK what to do first
It was uncomfortable but it went well. All just intake stuff this time. My mom actually let me talk for more than a couple minutes which was very surprising
Going to family counseling with my mom in about an hour, which I haven’t done in months, we’re starting with a new counselor, one that’s covered by insurance thank god. I’m hoping to eventually discuss my mom’s strong belief that my illnesses are all psychosomatic and caused by my dad. Wish me luck
July 30, 2025 at 1:37 AM
It was uncomfortable but it went well. All just intake stuff this time. My mom actually let me talk for more than a couple minutes which was very surprising
Going to family counseling with my mom in about an hour, which I haven’t done in months, we’re starting with a new counselor, one that’s covered by insurance thank god. I’m hoping to eventually discuss my mom’s strong belief that my illnesses are all psychosomatic and caused by my dad. Wish me luck
July 29, 2025 at 4:15 PM
Going to family counseling with my mom in about an hour, which I haven’t done in months, we’re starting with a new counselor, one that’s covered by insurance thank god. I’m hoping to eventually discuss my mom’s strong belief that my illnesses are all psychosomatic and caused by my dad. Wish me luck
Not saying who but I had a recent falling out with an online friend and I ended up crashing because of it. It feels so stupid to get that upset over someone who apparently never cared about me and I only knew online but they had a lot of my same conditions and I thought we connected over that. 1/
July 28, 2025 at 2:54 AM
Not saying who but I had a recent falling out with an online friend and I ended up crashing because of it. It feels so stupid to get that upset over someone who apparently never cared about me and I only knew online but they had a lot of my same conditions and I thought we connected over that. 1/
Made it through the dentist today. I think I’m gonna cry. My new dentist is so kind and caring and doesn’t gaslight me and is so gentle and I’m realizing just what a shitty dentist/endodontist my last one was. He botched a root canal, leaving a piece of metal in my tooth, and had the audacity to- 1/
July 23, 2025 at 10:24 PM
Made it through the dentist today. I think I’m gonna cry. My new dentist is so kind and caring and doesn’t gaslight me and is so gentle and I’m realizing just what a shitty dentist/endodontist my last one was. He botched a root canal, leaving a piece of metal in my tooth, and had the audacity to- 1/
Finally said fuck it and got a bedpan and had my caregiver/dad assist with it. Most uncomfortable experience of this week and it took forever for me to push past the mental barrier that I’m not on the toilet so it was super frustrating trying to get the stream going but I did it eventually thank god
July 23, 2025 at 8:04 AM
Finally said fuck it and got a bedpan and had my caregiver/dad assist with it. Most uncomfortable experience of this week and it took forever for me to push past the mental barrier that I’m not on the toilet so it was super frustrating trying to get the stream going but I did it eventually thank god